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Final report

Final report

Recommendations from the 2021 Australasian Society for Autism Research “Health, Wellbeing and Suicide Prevention in Autism” Conference and Roundtable

Final report [PDF 3.4 MB]

Policy Brief

Policy Brief

Recommendations from the 2021 Australasian Society for Autism Research “Health, Wellbeing and Suicide Prevention in Autism” Conference and Roundtable: Policy Brief

Policy Brief [PDF 148KB]

Factors associated with the early emergence of atypical feeding behaviours in infants and young children: A scoping review

Factors associated with the early emergence of atypical feeding behaviours in infants and young children: A scoping review

Child: Care, Health & Development

Open access article

Mudholkar, A., Korostenski, L., Blackwell, D. & Lane, A.E. (2022). Factors associated with the early emergence of atypical feeding behaviours in infants and young children: A scoping review. Child: Care, Health & Development. http://doi.org/10.1111/cch.13005


Trembath, D., Stainer, M., Caithness, T., Dissanayake, C., Eapen, V., Fordyce, K., Frewer, V., Frost, G., Hudry, K., Iacono, T., Mahler, N., Masi, A., Paynter, J., Pye, K., Quan, S., Shellshear, L., Sutherland, R., Sievers, S., Thirumanickam, A., . . . Tucker, M. (2022). Spoken Language Change in Children on the Autism Spectrum Receiving Community-Based Interventions. J Autism Dev Disord. https://doi.org/10.1007/s10803-022-05511-4


Mantzalas, J., Richdale, A. L., & Dissanayake, C. (2022). A conceptual model of risk and protective factors for autistic burnout. Autism Research. https://doi.org/https://doi.org/10.1002/aur.2722


Muniandy, M., Richdale, A. L., Arnold, S. R. C., Trollor, J. N., & Lawson, L. P. (2022). Associations between coping strategies and mental health outcomes in autistic adults. Autism Res. https://doi.org/10.1002/aur.2694


Barbaro, J., Sadka, N., Gilbert, M., Beattie, E., Li, X., Ridgway, L., Lawson, L. P., & Dissanayake, C. (2022). Diagnostic Accuracy of the Social Attention and Communication Surveillance-Revised With Preschool Tool for Early Autism Detection in Very Young Children. JAMA Netw Open, 5(3), e2146415. https://doi.org/10.1001/jamanetworkopen.2021.46415


Canton, E., Hedley, D., & Spoor, J. R. (2022). The stereotype content model and disabilities. Journal of Social Psychology. https://doi.org/10.1080/00224545.2021.2017253


Chetcuti, L., Richdale, A. L., Haschek, A., Uljarević, M., & Lawson, L. P. (2022). Brief Report: Discrete Effortful Control Skills Moderate Relations Between Childhood Behavioural Inhibition and Mental Health Difficulties in Autistic Youth. J Autism Dev Disord. https://doi.org/10.1007/s10803-021-05360-7


Gal, E., Gal-Mishael, R., Vissoker, R. E., Hedley, D., Bury, S. M., & Stolar, O. (2022). Eating Challenges in Children with Autism Spectrum Disorder: Development and Validation of the “Aut-Eat” Questionnaire (AEQ). Journal of Autism and Developmental Disorders, 52(2), 811-822. https://doi.org/10.1007/s10803-021-04978-x


Hedley, D., Stokes, M. A., & Trollor, J. N. (2022). Suicide by young Australians, 2006–2015: a cross-sectional analysis of national coronial data [Letter]. Medical Journal of Australia, 216(1), 53. https://doi.org/10.5694/mja2.51359


Huang, Y., Hwang, Y. I. J., Arnold, S. R. C., Lawson, L. P., Richdale, A. L., & Trollor, J. N. (2022). Autistic Adults' Experiences of Diagnosis Disclosure. J Autism Dev Disord. https://doi.org/10.1007/s10803-021-05384-z


Kryszak, E. M., Albright, C. M., Stephenson, K. G., Nevill, R. E., Hedley, D., Burns, C. O., Young, R. L., Butter, E. M., Vargo, K., & Mulick, J. A. (2022). Preliminary Validation and Feasibility of the Autism Detection in Early Childhood-Virtual (ADEC-V) for Autism Telehealth Evaluations in a Hospital Setting. J Autism Dev Disord. https://doi.org/10.1007/s10803-022-05433-1


Lizzio‐Wilson, M., Thomas, E. F., Louis, W. R., Amiot, C. E., Bury, S. M., Molenberghs, P., Decety, J., & Crane, M. F. (2022). Do the means affect the ends? Radical tactics influence motivation and action tendencies via the perceived legitimacy and efficacy of those actions. European journal of social psychology.(ja). https://doi.org/10.1002/ejsp.2847


Lord, C., Charman, T., Havdahl, A., Carbone, P., Anagnostou, E., Boyd, B., Carr, T., de Vries, P. J., Dissanayake, C., Divan, G., Freitag, C. M., Gotelli, M. M., Kasari, C., Knapp, M., Mundy, P., Plank, A., Scahill, L., Servili, C., Shattuck, P., . . . McCauley, J. B. (2022). The Lancet Commission on the future of care and clinical research in autism [Review]. The Lancet, 399(10321), 271-334. https://doi.org/10.1016/S0140-6736(21)01541-5


Marciano, H., Gal, E., Kimchi, R., Hedley, D., Goldfarb, Y., & Bonneh, Y. S. (2022). Visual Detection and Decoding Skills of Aerial Photography by Adults with Autism Spectrum Disorder (ASD). Journal of Autism and Developmental Disorders, 52(3), 1346-1360. https://doi.org/10.1007/s10803-021-05039-z


Shrestha, R., Barbaro, J., & Dissanayake, C. (2022). Changes in Knowledge on the Signs of Autism in Young Children (11–30 Months) among Female Community Health Volunteers in Nepal. Journal of Autism and Developmental Disorders, 52(1), 219-239. https://doi.org/10.1007/s10803-021-04944-7


Sulek, R., Smith, J., Bent, C. A., Hudry, K., Trembath, D., Vivanti, G., & Dissanayake, C. (2022). The utility of LENA as an indicator of developmental outcomes for young children with autism. International Journal of Language and Communication Disorders, 57(1), 103-111. https://doi.org/10.1111/1460-6984.12678


Vinen, Z., Clark, M., & Dissanayake, C. (2022). Social and Behavioural Outcomes of School Aged Autistic Children Who Received Community-Based Early Interventions. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-022-05477-3

Baker, E. K., Arora, S., Amor, D. J., Date, P., Cross, M., O’Brien, J., Simons, C., Rogers, C., Goodall, S., Slee, J., Cahir, C., & Godler, D. E. (2021). The Cost of Raising Individuals with Fragile X or Chromosome 15 Imprinting Disorders in Australia. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-021-05193-4


Ballester-Navarro, P., Martínez-Madrid, M. J., Javaloyes-Sanchís, A., Belda-Cantó, C., Aguilar, V., Inda, M. D. M., Richdale, A. L., Muriel, J., Morales, D., & Peiró, A. M. (2021). Interplay of circadian clock and melatonin pathway gene variants in adults with autism, intellectual disability and sleep problems. Research in Autism Spectrum Disorders, 81, Article 101715. https://doi.org/10.1016/j.rasd.2020.101715


Barbaro, J., & Freeman, N. C. (2021). Investigating gender differences in the early markers of Autism Spectrum Conditions (ASC) in infants and toddlers. Research in Autism Spectrum Disorders, 83, Article 101745. https://doi.org/10.1016/j.rasd.2021.101745


Barbaro, J., Masi, A., Gilbert, M., Nair, R., Abdullahi, I., Descallar, J., Dissanayake, C., Eastwood, J., Hasan, I., Jalaludin, B., Karlov, L., Khan, F., Kohlhoff, J., Liaw, S. T., Lingam, R., Mendoza Diaz, A., Ong, N., Tam, C. W. M., Unwin, K., . . . Eapen, V. (2021). A Multistate Trial of an Early Surveillance Program for Autism Within General Practices in Australia. Frontiers in Pediatrics, 9, Article 640359. https://doi.org/10.3389/fped.2021.640359


Bury, S. M., Flower, R. L., Zulla, R., Nicholas, D. B., & Hedley, D. (2021). Workplace Social Challenges Experienced by Employees on the Autism Spectrum: An International Exploratory Study Examining Employee and Supervisor Perspectives. Journal of Autism and Developmental Disorders, 51(5), 1614-1627. https://doi.org/10.1007/s10803-020-04662-6


Chetcuti, L., Uljarević, M., Ellis-Davies, K., Hardan, A. Y., Whitehouse, A. J. O., Hedley, D., Putnam, S., Hudry, K., & Prior, M. R. (2021). Temperament in individuals with Autism Spectrum Disorder: A systematic review [Review]. Clinical Psychology Review, 85, Article 101984. https://doi.org/10.1016/j.cpr.2021.101984


Chetcuti, L., Uljarević, M., Varcin, K. J., Boutrus, M., Pillar, S., Dimov, S., Barbaro, J., Dissanayake, C., Green, J., Wan, M. W., Segal, L., Slonims, V., Whitehouse, A. J. O., Hudry, K., Iacono, T., Maybery, M., Renton, M., Sadka, N., Wakeling, S., . . . The, A. T. (2021). Caregiver Psychological Distress Predicts Temperament and Social-Emotional Outcomes in Infants with Autism Traits. Research on Child and Adolescent Psychopathology, 49(12), 1669-1681. https://doi.org/10.1007/s10802-021-00838-5


DeBoth, K. K., Reynolds, S., Lane, S. J., Carretta, H., Lane, A. E., & Schaaf, R. C. (2021). Neurophysiological Correlates of Sensory-Based Phenotypes in ASD. Child Psychiatry and Human Development. https://doi.org/10.1007/s10578-021-01266-8


Fanning, P. A. J., Sparaci, L., Dissanayake, C., Hocking, D. R., & Vivanti, G. (2021). Functional play in young children with autism and Williams syndrome: A cross-syndrome comparison. Child Neuropsychology, 27(1), 125-149. https://doi.org/10.1080/09297049.2020.1804846


Flower, R. L., Dickens, L. M., & Hedley, D. (2021). Barriers to Employment: Raters' Perceptions of Male Autistic and Non-Autistic Candidates during a Simulated Job Interview and the Impact of Diagnostic Disclosure. Autism in Adulthood, 3(4), 300-309. https://doi.org/10.1089/aut.2020.0075


Flower, R. L., Richdale, A. L., & Lawson, L. P. (2021). Brief Report: What Happens After School? Exploring Post-school Outcomes for a Group of Autistic and Non-autistic Australian Youth. Journal of Autism and Developmental Disorders, 51(4), 1385-1391. https://doi.org/10.1007/s10803-020-04600-6


Gabis, L. V., Gross, R., & Barbaro, J. (2021). Editorial: Personalized Precision Medicine in Autism Spectrum-Related Disorders [Editorial]. Frontiers in Neurology, 12, Article 730852. https://doi.org/10.3389/fneur.2021.730852


Goldfarb, Y., Zafrani, O., Hedley, D., Yaari, M., & Gal, E. (2021). Autistic adults’ subjective experiences of hoarding and self-injurious behaviors. Autism, 25(5), 1457-1468. https://doi.org/10.1177/1362361321992640


Harper-Hill, K., Trembath, D., Clark, M., Bruck, S., & Saggers, B. (2021). Meeting the communication needs of students on the autism spectrum in Australian classrooms: Adjustments reported by educators and specialists. International Journal of Speech-Language Pathology, 23(2), 191-200. https://doi.org/10.1080/17549507.2020.1758786


Hedley, D., Hayward, S. M., Denney, K., Uljarević, M., Bury, S., Sahin, E., Brown, C. M., Clapperton, A., Dissanayake, C., Robinson, J., Trollor, J., & Stokes, M. A. (2021). The association between COVID-19, personal wellbeing, depression, and suicide risk factors in Australian autistic adults. Autism Research, 14(12), 2663-2676. https://doi.org/10.1002/aur.2614


Hedley, D., Spoor, J. R., Cai, R. Y., Uljarevic, M., Bury, S., Gal, E., Moss, S., Richdale, A., Bartram, T., & Dissanayake, C. (2021). Advances in Autism, 7(1), 28-40. https://doi.org/10.1108/AIA-09-2019-0029


Hedley, D., Uljarević, M., Cai, R. Y., Bury, S. M., Stokes, M. A., & Evans, D. W. (2021). Domains of the autism phenotype, cognitive control, and rumination as transdiagnostic predictors of DSM-5 suicide risk. PLoS ONE, 16(1 January), Article e0245562. https://doi.org/10.1371/journal.pone.0245562


Huang, Y., Arnold, S. R. C., Foley, K. R., Lawson, L. P., Richdale, A. L., & Trollor, J. N. (2021). Factors associated with age at autism diagnosis in a community sample of Australian adults. Autism Research, 14(12), 2677-2687. https://doi.org/10.1002/aur.2610


Licari, M. K., Varcin, K., Hudry, K., Leonard, H. C., Alvares, G. A., Pillar, S. V., Stevenson, P. G., Cooper, M. N., Whitehouse, A. J. O., Barbaro, J., Boutrus, M., Chetcuti, L., Dissanayake, C., Green, J., Iacono, T., Maybery, M., Segal, L., Slonims, V., Wan, M. W., . . . the, A. T. (2021). The course and prognostic capability of motor difficulties in infants showing early signs of autism. Autism Research, 14(8), 1759-1768. https://doi.org/10.1002/aur.2545


Mallise, C. A., Lane, A. E., Murphy, V. E., Woolard, A., Whalen, O. M., Gibson, P. G., Karayanidis, F., & Campbell, L. E. (2021). Developmental Profiles of Infants with an Elevated Likelihood of Autism Who Were Born to Mothers with Asthma: a Case Series. Advances in Neurodevelopmental Disorders, 5(4), 473-487. https://doi.org/10.1007/s41252-021-00221-x


Mallise, C. A., Murphy, V. E., Campbell, L. E., Woolard, A. J., Whalen, O. M., Milton, G., Mattes, J., Collison, A., Gibson, P. G., Karayanidis, F., & Lane, A. E. (2021). Early Sensory and Temperament Features in Infants Born to Mothers With Asthma: A Cross-Sectional Study. Frontiers in Psychology, 12, Article 713804. https://doi.org/10.3389/fpsyg.2021.713804


Mallise, C. A., Murphy, V. E., Karayanidis, F., Armstrong, H., Whalen, O. M., Woolard, A. J., Gibson, P. G., Mattes, J., Collison, A., Lane, A. E., & Campbell, L. E. (2021). Parenting stress in mothers with asthma during the postpartum period. Journal of Asthma. https://doi.org/10.1080/02770903.2021.1993246


Masi, A., Dissanayake, C., Alach, T., Cameron, K., Fordyce, K., Frost, G., Grove, R., Heussler, H., Silove, N., Sulek, R., Tucker, M., Williams, K., & Eapen, V. (2021). Clinical outcomes and associated predictors of early intervention in autism spectrum disorder: A study protocol. BMJ Open, 11(8), Article e047290. https://doi.org/10.1136/bmjopen-2020-047290


Mazurek, M., & Richdale, A. L. (2021). Editors’ Prologue and Introduction to the Special Issue [Editorial]. Research in Autism Spectrum Disorders, 88, Article 101850. https://doi.org/10.1016/j.rasd.2021.101850


Mozolic-Staunton, B., Barbaro, J., Yoxall, J., & Donelly, M. (2021). Monitoring children’s development in early childhood education settings to promote early detection of autism. Australasian Journal of Early Childhood, 46(2), 163-178. https://doi.org/10.1177/1836939121998085


Muniandy, M., Richdale, A. L., Arnold, S. R. C., Trollor, J. N., & Lawson, L. P. (2021). Factor structure and psychometric properties of the Brief COPE in autistic older adolescents and adults. Research in Autism Spectrum Disorders, 84, Article 101764. https://doi.org/10.1016/j.rasd.2021.101764


Muniandy, M., Richdale, A. L., Arnold, S. R. C., Trollor, J. N., & Lawson, L. P. (2021). Inter-relationships between trait resilience, coping strategies, and mental health outcomes in autistic adults. Autism Research, 14(10), 2156-2168. https://doi.org/10.1002/aur.2564


Ray, K., Dally, K., Colyvas, K., & Lane, A. E. (2021). The Effects of a Whole-Class Kindergarten Handwriting Intervention on Early Reading Skills [Conference Paper]. Reading Research Quarterly, 56(S1), S193-S207. https://doi.org/10.1002/rrq.395


Ray, K., Dally, K., & Lane, A. E. (2021). Impact of A Co-taught Handwriting Intervention for Kindergarten Children in A School Setting: A Pilot, Single Cohort Study. Journal of Occupational Therapy, Schools, and Early Intervention. https://doi.org/10.1080/19411243.2021.1975604


Ray, K., Dally, K., Rowlandson, L., Tam, K. I., & Lane, A. E. (2021). The relationship of handwriting ability and literacy in kindergarten: a systematic review [Review]. Reading and Writing. https://doi.org/10.1007/s11145-021-10224-8


Roussis, S., Richdale, A. L., Katz, T., Malow, B. A., Barbaro, J., & Sadka, N. (2021). Behaviour, cognition, and autism symptoms and their relationship with sleep problem severity in young children with autism spectrum disorder. Research in Autism Spectrum Disorders, 83, Article 101743. https://doi.org/10.1016/j.rasd.2021.101743


Sheedy, A. J., Brent, J., Dally, K., Ray, K., & Lane, A. E. (2021). Handwriting Readiness among Digital Native Kindergarten Students. Physical and Occupational Therapy in Pediatrics, 41(6), 655-669. https://doi.org/10.1080/01942638.2021.1912247


Shrestha, R., Dissanayake, C., & Barbaro, J. (2021). Caregivers’ knowledge of autism in a local peri-urban community of Nepal: A cross-sectional study in Kirtipur, Kathmandu. Research in Autism Spectrum Disorders, 80, Article 101696. https://doi.org/10.1016/j.rasd.2020.101696


Shrestha, R., Dissanayake, C., & Barbaro, J. (2021). Implementing and evaluating Social Attention and Communication Surveillance (SACS) to prospectively identify autism in very young children in Nepal. Research in Developmental Disabilities, 115, Article 104013. https://doi.org/10.1016/j.ridd.2021.104013


Shui, A. M., Richdale, A. L., & Katz, T. (2021). Evaluating sleep quality using the CSHQ-Autism. Sleep Medicine, 87, 69-76. https://doi.org/10.1016/j.sleep.2021.08.022


Smith, J., Sulek, R., Abdullahi, I., Green, C. C., Bent, C. A., Dissanayake, C., & Hudry, K. (2021). Comparison of mental health, well-being and parenting sense of competency among Australian and South-East Asian parents of autistic children accessing early intervention in Australia. Autism, 25(6), 1784-1796. https://doi.org/10.1177/13623613211010006


Spoor, J. R., Bury, S. M., & Hedley, D. (2021). Non-autistic employees’ perspectives on the implementation of an autism employment programme. Autism, 25(8), 2177-2188. https://doi.org/10.1177/13623613211012880


Spoor, J. R., Flower, R. L., Bury, S. M., & Hedley, D. (2021). Employee engagement and commitment to two Australian autism employment programs: associations with workload and perceived supervisor support. Equality, Diversity and Inclusion. https://doi.org/10.1108/EDI-05-2020-0132


Thomas, E. F., McGarty, C., Louis, W. R., Wenzel, M., Bury, S., & Woodyatt, L. (2021). It’s About Time! Identifying and Explaining Unique Trajectories of Solidarity-Based Collective Action to Support People in Developing Countries. Personality and Social Psychology Bulletin. https://doi.org/10.1177/01461672211047083


Trembath, D., Sutherland, R., Caithness, T., Dissanayake, C., Eapen, V., Fordyce, K., Frost, G., Iacono, T., Mahler, N., Masi, A., Paynter, J., Pye, K., Reilly, S., Rose, V., Sievers, S., Thirumanickam, A., Westerveld, M., & Tucker, M. (2021). Clinician Proposed Predictors of Spoken Language Outcomes for Minimally Verbal Children with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 51(2), 564-575. https://doi.org/10.1007/s10803-020-04550-z


Tzelepis, F., Mitchell, A., Wilson, L., Byrnes, E., Haschek, A., Leigh, L., & Oldmeadow, C. (2021). The Long-Term Effectiveness of Internet-Based Interventions on Multiple Health Risk Behaviors: Systematic Review and Robust Variance Estimation Meta-analysis [Review]. Journal of Medical Internet Research, 23(12), Article e23513. https://doi.org/10.2196/23513


Unwin, K. L., Powell, G., & Jones, C. R. G. (2021). A sequential mixed-methods approach to exploring the experiences of practitioners who have worked in multi-sensory environments with autistic children. Research in Developmental Disabilities, 118, Article 104061. https://doi.org/10.1016/j.ridd.2021.104061


Unwin, K. L., Powell, G., & Jones, C. R. G. (2021). The use of Multi-Sensory Environments with autistic children: Exploring the effect of having control of sensory changes. Autism. https://doi.org/10.1177/13623613211050176


Waddington, H., Shepherd, D., van der Meer, L., Powell-Hector, N., Wilson, E., & Barbaro, J. (2021). Brief Report: Training New Zealand Well Child/Tamariki Ora Nurses on Early Autism Signs Using the Social Attention and Communication Surveillance-Revised. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-021-05344-7


Whitehouse, A. J. O., Varcin, K. J., Pillar, S., Billingham, W., Alvares, G. A., Barbaro, J., Bent, C. A., Blenkley, D., Boutrus, M., Chee, A., Chetcuti, L., Clark, A., Davidson, E., Dimov, S., Dissanayake, C., Doyle, J., Grant, M., Green, C. C., Harrap, M., . . . Hudry, K. (2021). Effect of Preemptive Intervention on Developmental Outcomes among Infants Showing Early Signs of Autism: A Randomized Clinical Trial of Outcomes to Diagnosis. JAMA Pediatrics, 175(11), Article e213298. https://doi.org/10.1001/jamapediatrics.2021.3298


Woolard, A., Lane, A. E., Campbell, L. E., Whalen, O. M., Swaab, L., Karayanidis, F., Barker, D., Murphy, V., & Benders, T. (2021). Infant and Child-Directed Speech Used with Infants and Children at Risk or Diagnosed with Autism Spectrum Disorder: a Scoping Review [Review]. Review Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s40489-021-00253-y


Yap, C. X., Alvares, G. A., Henders, A. K., Lin, T., Wallace, L., Farrelly, A., McLaren, T., Berry, J., Vinkhuyzen, A. A. E., Trzaskowski, M., Zeng, J., Yang, Y., Cleary, D., Grove, R., Hafekost, C., Harun, A., Holdsworth, H., Jellett, R., Khan, F., . . . Gratten, J. (2021). Analysis of common genetic variation and rare CNVs in the Australian Autism Biobank. Molecular Autism, 12(1), Article 12. https://doi.org/10.1186/s13229-020-00407-5


Yap, C. X., Henders, A. K., Alvares, G. A., Wood, D. L. A., Krause, L., Tyson, G. W., Restuadi, R., Wallace, L., McLaren, T., Hansell, N. K., Cleary, D., Grove, R., Hafekost, C., Harun, A., Holdsworth, H., Jellett, R., Khan, F., Lawson, L. P., Leslie, J., . . . Gratten, J. (2021). Autism-related dietary preferences mediate autism-gut microbiome associations. Cell, 184(24), 5916-5931.e5917. https://doi.org/10.1016/j.cell.2021.10.015

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