Our Projects

We have produced research projects and publications that advance knowledge and promote quality improvement and consumer driven, evidence based practice in all areas of primary health, community health and aged care.

Ageing

Current

Dementia Training Australia

ACEBAC

Australian Government

2016 - 2019

La Trobe University (ACEBAC) is one of six members of the Dementia Training Australia consortium. Funded by the Australian Government, led by the University of Wollongong and comprising of Alzheimer's Australia, La Trobe University, the Queensland University of Technology, the University of Tasmania and the University of Western Australia.

Dementia Training Australia aims to improve the quality of care and support provided to people living with dementia and their families through providing development opportunities for existing and future professional carers of people living with dementia across all care settings. DTA's goal is to enhance the knowledge and skills base of the current and future dementia care workforce, delivering a nationally cohesive approach to dementia training.

This is achieved through a dedicated range of courses, workshops, seminars, fellowships that translate contemporary knowledge into practical, effective approaches to helping people living with dementia and their families. DTA programs are designed for health and aged care staff who provide care for people living with dementia.

https://dta.com.au/

Team members: Internal: Margaret Winbolt, Chris While, Rebecca Brown, Angela Casey.  External: Richard Fleming, Elizabeth Beattie, Andrew Robinson, David Sykes, Andrew Stafford


Palliative Care and Advance Care Planning in general practice
– a training package for Practice Nurses

CHSD

HammondCare Health and Hospitals

2016 - 2020

Advance is a national, federally funded program designed to introduce advance care planning into general practices in a sensitive and routine way. It will also help identify people who may benefit from a thorough assessment of their supportive care needs and consideration of early referral to palliative care. HammondCare invited Associate Professor Virginia Lewis to offer external evaluation advice to the Advance project. As an external evaluator, Virginia has provided the project with:

  • Assistance with choosing an appropriate evaluation framework.
  • Advice and input regarding draft study design, draft evaluation protocol, draft ethics application documents, draft surveys, and draft qualitative interview questions.
  • Advice and input regarding the qualitative and quantitative analysis (to be conducted by the evaluation officer).
  • An independent review of the evaluation process.

As a consequence of this working relationship, Virginia is now a CI on a newly funded project with HammondCare and other collaborators from the University of Sydney, Flinders University (CareSearch), Austin Health, University of Queensland, University of Technology Sydney, and University of Wollongong. It will include:

  • Consultation with relevant health professional bodies to identify the highest priority groups of clinicians for the new program and to tailor the resources and training for their specific needs.
  • Development of online learning resources for the new groups of clinicians.
  • Individual tele-mentoring for participating clinicians from across Australia.
  • Grants and train-the-trainer support for champion networks to deliver face-to-face training and to support implementation of the model into clinical practice.

Evaluation of the program, Australian Government Department of Health, National Palliative Care Project. The Advance Project: Initiating palliative care and advance care planning through training and resources for primary and chronic/complex care clinicians.

www.caresearch.com.au/advance

Team members: Virginia Lewis


Seniors Law - A health justice partnership

CHSD

Victorian Legal Service Board

2015 - 2018

The Seniors Law Health Justice Partnership was established by Justice Connect Seniors Law and cohealth to provide assistance to older people experiencing elder abuse and other legal issues.

https://www.justiceconnect.org.au/our-programs/seniors-law/get-help/health-justice-partnerships

The service operates as an embedded model, with a lawyer based in the community health centre and acting as a member of a number of health teams where elder abuse is likely to be identified. AIPCA has been working with this Health Justice Partnership from the funding application stage and was involved at all stages — supporting monitoring and evaluation, developing the evaluation and monitoring framework, developing tools to be used for data collection from health professionals, pro bono lawyers, and clients, data collection, data analysis and report writing.

The HJP is seeking further funding for the service to operate beyond 2018.

Results from the evaluation will be reported in early 2018.

https://www.justiceconnect.org.au/sites/default/files/HJP_first%20year%20report_web.pdf

Team members: Virginia Lewis, Vanessa White


Comprehensive Health Assessment of Older Person (CHAOP)

ACEBAC

Victorian Department of Health and Human Services (DHHS) and Health and Aged Care Services

2011 - Ongoing

2011 - DHHS commissioned ACEBAC to: develop 4-5 day education and training workshop on Comprehensive Health Assessment of the Older Person (CHAOP); and deliver and evaluate 20 of these workshops to health professionals working in Victorian Public Sector Residential Aged Care Services (PSRACS)

2012 – 2013 – DHHS commissions ACEBAC to deliver and evaluate 45 CHAOP workshops to health professionals working in Victorian Public Health Services (acute and sub-acute care, community care and residential aged care)

https://www2.health.vic.gov.au/ageing-and-aged-care/residential-aged-care/safety-and-quality/improving-resident-care/comprehensive-health-assessment

2014 - DHHS grants the licence to run CHAOP workshops fee for service.

2018 – 2019. DHHS commissions ACEBAC with administrative support from the ANMF to deliver 40 CHAOP workshops to health professionals working in Victorian Public Health Services.

Team members: Deirdre Fetherstonhaugh, Margaret Winbolt, Sandra Cowen, Michael Bauer, Joanna Lee


Development of Performance Measures and a Guide to Excellence for Public Sector Residential Aged Care Services in Victoria

ACEBAC

Victorian Department of Health and Human Services

2017 - 2018

1. A draft suite of consensus, evidence based performance measures for public sector residential aged care services (PSRACS) were developed to strengthen monitoring and accountability for the delivery of safe high quality person centred care to residents. This included a focus on measures designed to improve the capacity of public sector providers and the department to identify potential care system failure and resident harm

2. The development of a guide to excellence in residential aged care to be used to articulate a high performing service. It is forward thinking and adaptable for different services and includes:

  • Key domains - Principles, Characteristics, Attributes of good/best practice
  • Definitions to provide shared understandings of key concepts
  • Illustrative examples of exemplary/innovative practise.

This guide has been designed as a stand alone resource, but it aligns with the key domains, definitions, etc. used within the PSRACS performance measures development project.

Publications

Fetherstonhaugh, D. Ibrahim, J. Rayner, J. McAuliffe, L. & Bauer, M. (2018) Public Sector Aged Care Performance Measures Development. Final Report (internal DHHS) Rayner, J. Fetherstonhaugh, D. Ibrahim, J. McAuliffe, L. & Bauer, M. (2018) A guide to excellence in public sector residential aged care services. Final Report (internal DHHS)

Team members: Internal: Deirdre Fetherstonhaugh, Jo-Anne Rayner, Linda McAuliffe, Michael Bauer.  External: Joseph Ibrahim


Recognise and report changes in a residents' health: An education and training package for aged care facility staff

ACEBAC

Internal ACEBAC funding

2015 - Ongoing

This education and training package is specifically aimed at residential aged care personal care workers (PCWs) and personal care assistants (PCAs). It was developed to support PCWs/PCAs to recognise changes in a resident’s health status and report these to the appropriate person in the facility. The package is interactive and engaging and was developed using principles of adult learning. The package comprises eight modules – communication; wellbeing; movement and mobility; skin condition; breathing; eating, drinking and elimination; mental awareness; and end of life and takes 10 hours to complete.

The package has been designed for delivery by a nurse in an aged care facility. The package contains:

  1. One full set of presentation slides complete with text, case studies/vignettes, video clips and images (Windows and Mac compatible)
  2. One hardcopy of the facilitator’s manual and one hardcopy of the presentation slides with explanatory notes for the facilitator
  3. Hardcopies of the participants’ work book plus PDF for self-print option
  4. One hardcopy set of activity sheets, flash cards and templates, plus PDF for self-print options
  5. One hardcopy of a summary sheet for each module, plus PDF for self-print option.

Team members: Michael Bauer, Deirdre Fetherstonhaugh, Christine While, Sandra Cowen, Jo-Anne Rayner


Development of evidence-based standardised care processes (SCPs) in areas of clinical risk for older people living in residential aged care

ACEBAC

Department of Health and Human Services

2009 - Ongoing

This project identified clinical risks for older people living in residential aged care and develops evidence-based standardised care processes (SCPs). New SCPs are developed every year and all SCPs are reviewed every 2-3 years for currency and any new evidence. Up until 2018 16 SCPs have been developed with another three being drafted. The SCPs:

  1. Choking
  2. Constipation
  3. Dehydration
  4. Delirium
  5. Depression
  6. End of life care
  7. Falls
  8. Hypoglycaemia
  9. Oral and dental hygiene
  10. Polypharmacy
  11. Pain
  12. Physical restraint
  13. Pressure injuries
  14. Skin tears
  15. Sleep
  16. Unplanned weight loss

Resources available at:

https://www2.health.vic.gov.au/ageing-and-aged-care/residential-aged-care/safety-and-quality/improving-resident-care/standardised-care-processes

Team members: Deirdre Fetherstonhaugh, Christine While, Margaret Winbolt


Victorian Residential In-Reach Services evaluation

ACEBAC

Department of health and Human Services Victoria

2014-2019

An evaluation of two Victorian Residential In-Reach (RiR) programs from the perspective of residential aged care.

Residential in-reach staff from both in-reach services and staff from a sample of aged care services in the health service catchment were interviewed about the use of residential in-reach services. The aim of the evaluation was to fully explore and explain why some residential aged care facilities (RACFs) use the RiR service more frequently than others.

Publication Rayner, J. Fetherstonhaugh, D. McDonald, E. Bauer, M. (2017) Evaluation of Residential in Reach: the perspective of residential aged care. Final Report for Residential In-Reach Service A (Internal report DHHS)

Team members: Jo-Anne Rayner, Deirdre Fetherstonhaugh, Ewan McDonald, Michael Bauer, Alice Rota-Bartelink


2015 - 2017

Advancing practice in the care of people with dementia: the Dementia Training Study Centres' (DTSC) National Practice Improvement Program

ACEBAC

Australian Department of Social Services

2015-2017

Funded under the Australian Government's Aged Care Service Improvement and Healthy Ageing Grants the DTSC National Practice Improvement Program delivered a program of education and support to aged care providers to facilitate knowledge translation and practice improvement in the care of people with dementia in four critical care areas: environmental design; sexuality and dementia; medication management; responding to behavioural and psychological symptoms of dementia.

Team members: Internal: Margaret Winbolt.  External: Richard Fleming, Elizabeth Beattie, Andrew Stafford, Katherine Cunningham


Supporting GPs and Practice Nurses in the Timely Diagnosis of Dementia

ACEBAC

Australian Department of Social Services

2015 - 2016

Funded under the Australian Government's Aged Care Service Improvement and Healthy Ageing Grants this project responded to the Australian Government's priority on improving timely diagnosis of dementia by delivering accredited continuing professional development training on dementia assessment, diagnosis and management to GPs and practice nurses throughout Australia. ACEBAC delivered the GP training component of the project

Team members: Internal: Margaret Winbolt. External: Allan Shell, Henry Brodaty


The development of an evidence-based intervention tool to improve hospital discharge practices for people with dementia and their family

ACEBAC

Nurses Board of Victoria Legacy

2014 - 2017

A Carer Controlled Health Record (to be used by the carer of an older person) was developed following: a literature review; interviews and focus groups with health service staff; drafting of the tool and then several Delphi rounds with experts until consensus was reached and finalisation of the tool..

Publication

https://www.latrobe.edu.au/aipca/australian-centre-for-evidence-based-aged-care/resources

Team members: Michael Bauer, Lesley Fitzgerald, Deirdre Fetherstonhaugh


Using the Montessori Approach

ACEBAC

Australian Government Department of Health & Victorian Department of Health and Human Services

2014 - 2015

This project seeks to improve levels of engagement in purposeful activity for people living with dementia who attend Planned Activity Groups. With Alzheimer's Australia.

Team members: Jo-Anne Rayner, Christine While


Sexual Health: What factors promote or inhibit the recognition of sexuality as a component of health care for older people? A systematic review of the literature

ACEBAC

Faculty of Health Sciences Grant

2014 - 2017

Sexuality is increasingly being recognised as a key component of health and wellbeing. For older people, however, including those with dementia, sexual expression, sexual health, and sexual identity are often excluded by health professionals in their care delivery and practice. It is important to understand how and why this oversight occurs, and what can be done to improve practice. To date, no solid evidence base exists around what factors promote or inhibit the inclusion of sexuality into the care of older people, and this project will attempt to address this important knowledge gap through a systematic review of the literature.

Publications

Haesler, E. Bauer, M. & Fetherstonhaugh, D. (2016) ‘Sexuality, sexual health and older people: A systematic review of research on the knowledge and attitudes of health professionals'. Heath and Social Care in the Community. 40 (May) 57-71.

Bauer, M. Haesler, E. Fetherstonhaugh, D. (2015) ‘Let’s talk about sex: Older people’s views on the recognition of sexuality and sexual health in the healthcare setting’. Health Expectations. DOI 10.1111/hex.12418.

Team members: Michael Bauer, Deirdre Fetherstonhaugh, Emily Haesler


Systematic review - The effectiveness of non-pharmacological interventions to support the functional activities/ADLs/personal care (bathing/showering, hygiene/toileting; feeding/eating/dining/meal times) of people living with dementia in residential aged care

ACEBAC

Dementia Collaborative Research Centre (DCRC3) - Carers and Consumers

2015 - 2017

The research literature was searched and reviewed (2000-2015) using the following parameters:

Participants:

  • people with dementia (Alzheimer’s disease, multi-infarct, Lewy body, young onset,….) living in RACFs (nursing home, hostel, low care, assisted living, long-term care, care homes)
  • nurses, (LPNs/ RNs) personal care workers, personal care assistants, personal carers/ assistants in nursing/ nurses aides, - health (care) professionals, GPs, allied health, occupational therapy/therapist, physiotherapist, diversional therapist, lifestyle therapist, dietician/dietitian, speech pathologist/therapist

Interventions of interest:

  • individualised care plan/approaches to care
  • bathing method/approaches/techniques
  • technology/assistive technology/assistive devices (equipment)
  • environmental adaptations
  • seating/postural care
  • education
  • training
  • music
  • complementary medicine i.e aromatherapy
  • exercise
  • rehabilitation/geriatric rehabilitation/rehabilitation care
  • reablement

Types of outcome measures:

  • performance in ADLs, functional abilities (i.e the functional abilities checklist FAC, Barthel score)
  • BPSD - aggression, agitation, wandering, social and sexual dis-inhibition, verbal outbursts, delusions, hallucinations, and anxiety
  • well-being
  • compliance/co-operation
  • independence
  • quality of Life
  • restiveness to care
  • pain
  • withdrawal
  • Types of studies:

  • quantitative studies incl. RCTs, CTs, quasi- experimental, cohort, case studies.
  • qualitative studies- descriptive, observational, expert opinion?

Publication

Fetherstonhaugh, D. Haesler, E. Beattie, E. Hill, K & Poulos, C. (2018) The impact of nurse and care staff education on the functional ability and quality of life of people living with dementia: A systematic review submitted to Nurse Education Today 67: 27-45.

Team members: Deirdre Fetherstonhaugh, Michael Bauer, Emily Haesler


2011 - 2014

Personalised MP3

ACEBAC with the Centre for Health Systems Development

Southern Cross Care

2011 - 2012

The aim of this project was to determine if, and when, an MP3 player is provided to informal caregivers of people with dementia, the use of the device by the person with dementia enables their caregivers to undertake activities that give them brief respite from the high level of vigilance often needed in caring for their family member, both at home and in public spaces. This project was conducted in collaboration with Southern Cross Care (Vic.) who funded the project. Findings from the study were launched in September 2013.

Publication

Lewis, V., Bauer, M., Winbolt, M., Chenco, C. & Hanley, G. (2014) A study of effectiveness of MP3 players to support family carers of people with dementia at home. International Psychogeriatrics 27(3): 471-479

Team members: Margaret Winbolt, Virginia Lewis, Michael Bauer, Carol Chenco, Francine Hanley


Staff-family relationships for people with dementia living in residential aged care -
Evidence-based online resource package

ACEBAC - University of Tasmania and Griffith University

Alzheimer’s Australia

2012 - 2015

This project aimed to translate the available evidence, into a nationally-applicable 'Staff-family relationships' online resource package and education program to facilitate the implementation of an evidence-based clinical guideline to improve an support collaborative staff-family relationships, and, by extension, improve the wellbeing of family carers of people with dementia living in RACFs.  These resources are available to RACFs around Australia, including in rural and remote areas.

In particular, the evidence translated into practice is derived from a systematic review of the literature, which identified a number of key factors known to influence the promotion and maintenance of collaborative staff-family relationships: - information sharing and the promotion of residents' uniqueness; - clear communication processes, expectations, goals and responsibilities in relation to resident care and decision making; - educational support for staff and families about developing constructive staff-family relationship; - staff working cooperatively and in partnership with families and a reciprocated recognition of roles, that is, shared understanding of each other's roles and contributions to care (Haesler, Bauer & Nay, 2010)

Published resource

http://qualitydementiacare.org.au/project/improving-staff-family-relationships-for-people-with-dementia-living-in-residential-aged-care/

Team members: Internal: Michael Bauer, Deirdre Fetherstonhaugh, Laura Tarzia. External: Wendy Moyle (Griffith University) Andrew Robinson (University of Tasmania)


EN-ABLE

ACEBAC

Australian Department of Health and Ageing

2011 - 2012

The EN-ABLE Project addressed the target area 'Behaviour Management' in residential aged/dementia care. It supported a key national health priority, 'Promoting and Maintaining Good Health' and the Department of Health and Ageing reform agenda 'Encouraging Best Practices in Residential Aged Care'. The aim of this project was to skill residential care staff to respond in person-centred, evidence-based ways to need-driven behaviours (NDBs), variously referred to as behavioural and psychological symptoms of dementia (BPSDs) and Unmet Need Behaviours (UNBs) in the literature. The central project goal was to implement and evaluate the EN-ABLE education and training in residential aged/dementia care through an empowering staff support process.

Team members: Internal: Rhonda Nay, Margaret Winbolt, Carol Chenco. External: Lynn Chenoweth, Elizabeth Beattie, Elaine Fielding


Factors influencing residential aged care staff decision-making when a resident's health deteriorates

ACEBAC

Department of Health Victoria

2012 - 2014

This PhD project explored RACF staff decision-making regarding the transfer of residents to hospital.

Publications

Laging, B., M. Bauer, R. Ford and R. Nay (2014). "A systematic review on the experiences of Residential Aged Care Facility staff decision making regarding the transfer of residents to Emergency Departments. ." JBI Database of Systematic Reviews 12(2): 263-388.

Laging, B., R. Ford, M. Bauer and R. Nay (2015). "A meta-synthesis of factors influencing nursing home staff decisions to transfer residents to hospital." Journal of Advanced Nursing 71(10): 2224-2236.

Team members: Brigid Laging (PhD student). Michael Bauer, Rhonda Nay


Victoria and Tasmania Dementia Training Study Centre

ACEBAC

Australian Department of Health

2009 - 2016

Funded by the Australian Government and hosted by ACEBAC, the Victoria and Tasmania Dementia Training Study Centre was one of five Dementia Training Study Centres nationally which aimed to improve the quality of care and support provided to people living with dementia and their families through providing development opportunities for existing and future dementia care health professionals. This was achieved through a dedicated range of courses, workshops, seminars, scholarships, support, and curriculum development that translates contemporary knowledge into practical, effective approaches to helping people living with dementia and their families. DTSC’s goal was to enhance the knowledge and skills base of the current and future dementia care workforce, creating a nationally cohesive approach to dementia care.

Team members: Rhonda Nay, Margaret Winbolt


A family carer and consumer guide to intimacy and sexuality in residential aged care

ACEBAC

Dementia Collaborative Research Centre (DCRC) - Carers and Consumers

2013 - 2015

This project involved the development of consumer resource - family carer and consumer guide to intimacy and sexuality in residential aged care and involved a literature review, drafting the guide and then receiving feedback from people with dementia and carers of people with dementia before finalising the resource.

Publication

Bauer, M & Fetherstonhaugh, D. (2015) Sexuality and people in residential aged care facilities: A guide for partners and families https://www.latrobe.edu.au/aipca/australian-centre-for-evidence-based-aged-care/resources

Team members: Michael Bauer, Deirdre Fetherstonhaugh


Everyday decision-making: the experience of people living with dementia and their carers

ACEBAC

Dementia Collaborative Research Centre (DCRC3) - Carers and Consumers

2011 - 2013

Stage 1. This project informed by Van Manen’s approach to phenomenology (1997) explored the essence of decision making when a person has a diagnosis of dementia. People with early stage dementia were interviewed.

Stage 2. Carers of people living with dementia were interviewed to explore how they facilitated remained involvement in decision-making for the person living with dementia.

Publications

Fetherstonhaugh, D. Rayner, J & Tarzia, L. (2016) ‘Hanging on to some autonomy in decision-making: How do spouse carers support this?’ Dementia DOI:10.1177/1471301216678104 dem.sagepub.com.

Fetherstonhaugh, D. Tarzia, L & Nay, R. (2013) ‘Being central to decision making means I am still here!: The essence of decision making for people with dementia’. Journal of Aging Studies (27) 143-150.

Team members: Deirdre Fetherstonhaugh, Laura Tarzia, Jo-Anne Rayner, Rhonda Nay


The experiences and processes for decision-making by direct care staff in residential aged care facilities (RACFs) when the person about whom the decisions are to be made has a diagnosis of dementia

ACEBAC

Dementia Collaborative Research Centre (DCRC3) - Carers and Consumers

2011 - 2013

This project used grounded theory methodology to explore the experiences and processes of direct care staff in residential aged care facilities (RACFs) in enabling/preventing people with dementia to make decisions.  A literature review was undertaken and direct care staff (nurses and personal care workers) (N=80) from residential aged care services in two Australian states were recruited and took part in interviews or focus groups. Interview data was analysed.

Publications

Cameron, N. Fetherstonhaugh, D. Bauer, M & Tarzia, L It’s a matter of knowing your resident’. How residential care staff conceptualise identity and its relevance for decision-making with regard to residents with dementia. submitted to Ageing and Society (under review)

Cameron, N. Fetherstonhaugh, D. Bauer, M & Tarzia, L. (2018) How do care staff in residential aged care facilities conceptualise their non-verbal interactions with residents with dementia and what relevance has this for how residents’ preferences and capacity for decision making are understood? Dementia DOI:10.1177/1471301218798422

Tarzia, L. Fetherstonhaugh, D. Bauer, M. Beattie, E & Nay, R. (2015) ‘We have to work within the system!: Staff perceptions of organizational barriers to decision making for older adults with dementia in Australian aged care facilities’ Research in Gerontological Nursing. DOI: 10.3928/19404921-20150413-01.

Team members: Internal: Deirdre Fetherstonhaugh, Laura Tarzia, Michael Bauer, Rhonda Nay, Nadine Cameron. External: Elizabeth Beattie


Proxy decision-making on behalf of people with dementia - how do surrogates decide?

ACEBAC

Dementia Collaborative Research Centre (DCRC3) - Carers and Consumers

2013 - 2015

This study explored how proxy/surrogate decision-making on behalf of people with dementia. Specifically, the aims of this project were

  • To explore how proxy/surrogate decision makers make decisions on behalf of a person with dementia.
  • To explore whether proxy/surrogate decision makers feel they need support in making decisions on behalf of a person with dementia.
  • If determined that proxy/surrogate decision makers need support what type of support do they require?
  • If determined that proxy/surrogate decision makers need support in making decisions on behalf of a person with dementia how could this support be provided.

Semi-structured interviews were conducted with people who were proxy/surrogate decision makers for people with dementia and who have already made decisions on their behalf.

Publications

Fetherstonhaugh, D. McAuliffe, L. Shanley, C. Bauer, M. & Beattie, E. (2017). “Did I make the right decision?”: The difficult and unpredictable journey of being a surrogate decision maker for a person living with dementia. Dementia. DOI: https://doi.org/10.1177/1471301217721862

Shanley, C. Fetherstonhaugh, D. McAuliffe, L. Bauer, M & Beattie, E. (2017) Providing support to surrogate decision-makers for people living with dementia: healthcare provider, organisational and community responsibilities. Health and Social Care in the Community 10.1111/hsc.12456

Fetherstonhaugh, D. McAuliffe, L. Bauer, M. & Shanley, C. (2016) ‘Decision-making on behalf of people living with dementia: How do surrogate decision-makers decide? Journal of Medical Ethics doi;10.1136/medethics-2015-103301.

Team members: Internal: Deirdre Fetherstonhaugh, Linda McAuliffe, Michael Bauer. External: Chris Shanley, Elizabeth Beattie


The social participation of carers of people with dementia

ACEBAC

Dementia Collaborative Research Centre (DCRC3) - Carers and Consumers

2011 - 2013

This project explored the meaning, barriers and enablers of social participation for carers of older people with dementia. The concept of social participation has not been well defined, used inconsistently in the literature, and been used interchangeably with a range of other terms but it remains an important notion because it is an indicator of both the quality of life experienced by individuals and the extent to which communities are functioning successfully.  The meaning of social participation for carers of older people with dementia and the enablers and barriers that can facilitate or diminish that social participation had not been previously explored. Thirty three carers of older people with dementia from across Victoria and Queensland participated in a conversational semi-structured interview.

Publications

Nay, R. Bauer, M. Fetherstonhaugh, D. Moyle, W. Tarzia, L. & McAuliffe, L. (2014) ‘“Surviving”: Social participation and family carers of people living with dementia. Health and Social Care in the Community DOI: 10.1111/hsc.12163.

Nay, R. Fetherstonhaugh, D. Bauer, M. Moyle, W. McAullife, L. & Hart, C. The social participation of carers of people with dementia. Dementia Collaborative Research Centre 3 Carers and Consumers http://www.dementia.unsw.edu.au/images/dcrc/output-files/707-dcrc_social_participation_report_october_2013.pdf

Team members: Internal: Deirdre Fetherstonhaugh, Michael Bauer, Rhonda Nay, Carol Hart. External: Wendy Moyle


Identifying support needs to improve rural dementia services: A Delphi consultation study

ACEBAC

La Trobe University 'Building Health Communities' grant

2014 - 2016

This project identified the priority support and service needs for:

  1. People living with dementia
  2. Carers of people living with dementia
  3. health service providers

This project was conducted in a rural area of Victoria and involved interviews and focus groups.

Publication Bauer, M. Fetherstonhaugh, D. Blackberry, I. Farmer, J & Wilding, C (2018) Identifying support needs to improve rural dementia services for people with dementia and their carers: A consultation study in Victoria, Australian Journal of Rural Health (in press)

Team members: Internal: Michael Bauer, Deirdre Fetherstonhaugh, Irene Blackberry. External: Jane Farmer


e-Health

Current

Aged Care Assessment Program

e-Health Unit

Department of Health Victoria

Support for the Aged Care Assessment Program in Victoria, providing technical and system support for all assessment services/health services in Victoria in relation to My Aged Care

Team members: Janette Collier, Sharon Gibson


2015 - 2017

ACE HACC Software

e-Health Unit

Department of Health Victoria

2012 - 2015

Maintenance, upgrading and further development services in relation to ACE Home and Community Care software.

Team members: Janette Collier, Sharon Gibson


2011 - 2014

Broadband Enabled Innovation Program

CHSD, with e-Health Unit

Royal District Nursing Service

2011 - 2014

Healthy, Happy and at Home: NBN-enabled medication management from older adults living independently.

With the e-Health Unit.

Team members: Virginia Lewis, Janette Collier

Pre 2011

Business process review of selected ACAS in Victoria

e-Health Unit

Department of Health Victoria

A project to conduct a review on four Aged Care Assessment Services in order to transition to e-business.

Team members: Janette Collier with Effective Change Pty Ltd & Lincoln Centre

Evaluation

Current

Seniors Law – a Health Justice Partnership

CHSD

Victorian Legal Service Board

2015 - 2018

The Seniors Law Health Justice Partnership was established by Justice Connect Seniors Law and cohealth to provide assistance to older people experiencing elder abuse and other legal issues.

https://www.justiceconnect.org.au/our-programs/seniors-law/get-help/health-justice-partnerships

The service operates as an embedded model, with a lawyer based in the community health centre and acting as a member of a number of health teams where elder abuse is likely to be identified. AIPCA has been working with this Health Justice Partnership from the funding application stage and was involved at all stages—supporting monitoring and evaluation, developing the evaluation and monitoring framework, developing tools to be used for data collection from health professionals, pro bono lawyers, and clients, data collection, data analysis and report writing.

The HJP is seeking further funding for the service to operate beyond 2018.

Results from the evaluation will be reported in early 2018.

https://www.justiceconnect.org.au/sites/default/files/HJP_first%20year%20report_web.pdf

Team members: Virginia Lewis, Vanessa White


2015 - 2017

Melton Brimbank Legal Service and Djerriwarrh Community Health Service’s Health Justice Partnership: Mortgage Wellbeing Service

CHSD

Melton Brimbank Legal Service and Djerriwarrh Community Health Centre

2016 - 2017

The Mortgage Wellbeing Service is a Health Justice Partnership (HJP) between Brimbank Melton Community Legal Centre and Djerriwarrh Community Health Service. It has been providing a holistic service delivery model for people with mortgage stress in the Melton area since early 2015, implementing a joint intake model of a lawyer, social worker and financial counsellor. AIPCA was contracted to conduct key stakeholder interviews and analyse data to support the evaluation of the HJP.

https://www.comm-unityplus.org.au/legal-services/our-projects/71-mortgage-wellbeing-service

Team members: Virginia Lewis, Vanessa White


CareSearch project

CHSD

CareSearch

2015 - 2017

A project to evaluate CareSearch: The Australian Palliative Care Knowledge Network.

Team members: Virginia Lewis


2011 - 2014

Assist and Support in Development and Implementation of an Evaluation Framework

CHSD

Australian Government Department of Health

2012 - 2013

Development and Implementation of an Evaluation Framework for Commonwealth Suicide Prevention Activities. With Australian Healthcare Associates.

Team members: Virginia Lewis


Pre 2011

Evaluation of the Aboriginal CRC

CHSD

CRC for Aboriginal Health

2009 - 2010

An evaluation of the Cooperative Research Centre for Aboriginal Health that focuses on identification of impacts and outcomes from CRCAH-related activity.


Mental health

Current

2015 - 2017

Mental Health Service System Community Partnerships Program

CHSD

St Vincent's Hospital Melbourne

2013 - 2015

Advice and Support to Evaluation of Mental Health Services System Community Partnerships Program for Victorian Transcultural Mental Health.

Team members: Virginia Lewis


2011 - 2014

Commonwealth Suicide Prevention Activities

CHSD

Australian Department of Health & Ageing

2012 - 2013

Development and implementation of an evaluation framework for Commonwealth Suicide Prevention Activities.

Team members: Virginia Lewis


Pre 2011

Evaluation of the Loddon Campaspe Southern Mallee Community Mental Health Plan

CHSD

Central Victorian Health Alliance

2009

The Loddon Campaspe Southern Mallee Community Mental Health Plan (2006 to 2009) was developed to facilitate improvements to mental health services, and consequently to mental health, for clients living in the region. The evaluation focused on: the process of implementation, including investigating the value of working together across sectors; and developing some recommendations to inform the post-2009 mental health plan for the region.


Primary health

Current

OPTIMISE – Collaborative Improvement of Primary Health Care Delivery to the Australian Refugee Community

CHSD

National Health & Medical Research Council

2016 - 2020

OPTIMISE is a four-year research project funded by the National Health and Medical Research Council’s Partnerships for Better Health Grants Scheme, which brings together academics and organisations from across the refugee health sector to develop and test innovative solutions to improve the delivery of accessible, coordinated and high quality primary care to refugees and asylum-seekers. Working in collaboration with Monash University, University of NSW, and a range of relevant partners, we are implementing and evaluating a model of practice facilitation across three regions in Australia that receive a high number of refugee and asylum-seeker settlement: North Western Melbourne, South Eastern Melbourne, and South-Western Sydney.

Partners in our region (North Western Melbourne) include:

North Western Melbourne PHN, cohealth (a large community health centre), AMES (Settlement Services), Department of Health & Human Services Victoria, and the Victorian Refugee Health Network.

Team members: Virginia Lewis, Geraldine Marsh


2015 - 2017

Supporting GPs and Practice Nurses in the Timely Disgnosis of Dementia

ACEBAC

Australian Department of Social Services

2015 - 2016

Funded under the Australian Government's Aged Care Service Improvement and Healthy Ageing Grants this project responded to the Australian Government's priority on improving timely diagnosis of dementia by dlivering accredited continuing professional development training on dementia assessment, disgnosis and management to GPs and practice nurses throughout Australia, ACEBAC delivered the GP training component of the project.

Team members: Internal: Margaret Winbolt. External: Allan Shell, Henry Brodaty


2011 - 2014

Targeted Programs for Vulnerable Clients

CHSD

APHCRI

2012 - 2013

Overcoming barriers for transitioning vulnerable clients from targeted programs to mainstream.

Team members: Virginia Lewis


Pre 2011

A Way Forward for Consumer, Carer and Community Engagement in Primary Health 2007­­–2010

CHSD

Department of Human Services Victoria

2007 - 2008

A project to undertake a review of present practices and to develop recommendations about how the Primary Health Branch can continue to support effective consumer, carer and community participation in the primary care sector until 2010.


Strategic

Current

2015 - 2017

Best practice in Spinal Cord Injury

CHSD

National Trauma Research Institute

2014 - 2015

Conduct of workshops to develop and implement clinical best practice in spinal cord injury.

Team members: Virginia Lewis


Service Plan and Model of Care

CHSD

Ballarat Community Health Services

2015 - 2016

A project to develop a service plan and model of care.

Team members: Jenny Macmillan


2011 - 2014

Clinical Placement Assessment Instruments Harmonisation Project

CHSD

James Cook University

2012 - 2013

Research and develop strategy for future harmonisation of Competency Based Clinical Placement Assessment Instruments.

Team members: Virginia Lewis, Jenny Macmillan


Pre 2011

Consultations and Report for the Review of the NHMRC Roadmap

CHSD

National Health & Medical Research Council

2008

With Flinders University, a strategic framework for improving the health of Aboriginal and Torres Strait Islander people through research.