Our Projects

Our research reports and publications advance knowledge and promote quality improvement and consumer driven, evidence-based practice in all areas of primary health, community health and aged care.

Ageing

2019 - 2020

Dementia Training Australia

ACEBAC

Australian Government

2016 - 2019; 2019 - 2021

La Trobe University (ACEBAC) is one of six members of the Dementia Training Australia consortium. Funded by the Australian Government, led by the University of Wollongong and comprising of Alzheimer's Australia, La Trobe University, the Queensland University of Technology, the University of Western Australia and, for the 2016-2019 funding period, the University of Tasmania.

Dementia Training Australia aims to improve the quality of care and support provided to people living with dementia and their families through providing development opportunities for existing and future professional carers of people living with dementia across all care settings. DTA's goal is to enhance the knowledge and skills base of the current and future dementia care workforce, delivering a nationally cohesive approach to dementia training.

This is achieved through a dedicated range of courses, workshops, seminars, fellowships that translate contemporary knowledge into practical, effective approaches to helping people living with dementia and their families. DTA programs are designed for health and aged care staff who provide care for people living with dementia.

https://dta.com.au/

Team members: Internal: Margaret Winbolt, Chris While, Rebecca Brown, Angela Casey. External: 2016-2019: Richard Fleming, Elizabeth Beattie, Andrew Robinson, David Sykes, Andrew Stafford. External: 2019-2020: Belinda Goodenough, Elizabeth Beattie, David Sykes, Ellie Newman


Development of education and training for the Victorian aged care sector

ACEBAC

Victorian Department of Health and Human Services (DHHS)

2020 - 2021

The scope of this project is to build capacity and capability within the Victorian residential aged care sector workforce. The project aim is to develop, implement and deliver a training program for Victorian residential aged care services with a focus on three key areas:

  • Dementia Care
  • Recognising and providing a palliative response to care
  • Oral hygiene and links to health and well-being

The project aim is to improve the lives of those living in residential aged care by ensuring that point of care staff have increased knowledge and confidence to provide evidence-based care.

The Royal Commission into Aged Care Quality and Safety identified gaps in training in these three key areas which should be critical foci for point of care staff, inclusive of nurses, personal care workers and allied health staff.

Team members: Anne-Marie Mahoney, Deirdre Fetherstonhaugh, Angela Casey, Jo-anne Joyce-McCouch


Provision of a Literature Review on the Potential Health Effects from Smoke Exposure during the First 24 hours

LINCOLN

Metropolitan Fire Brigade (now Fire Rescue Victoria)

May 2020 – February 2021

The aims of this project are to:

  • Identify and analyse contemporary peer-reviewed literature on the potential health impacts of short-term exposure to PM2.5.
  • Develop content for operational guidance materials for Incident Controllers to assist them to make informed decisions before, during, and after an urban fire/smoke event to minimise adverse health impacts from smoke on firefighters and other emergency responders.
  • Develop content for operational guidance materials for Incident Controllers to assist them to make informed decisions pertaining to advice and warnings to the community within a short-term period (less than 24 hours), particularly related to “shelter in place” and emergency evacuations, with the aim of minimising adverse health impacts from smoke in the community.

The methodology includes systematic rapid evidence review and broader “grey literature” review, internal and external workshops to evaluate the literature, and consultation with key stakeholders.

Team members: Internal: Yvonne Wells, Rachel Tham, Xia Li, Kane Solly, Sam Clune, and Nikk Hunter. External: Jen McCulloch (Fire Rescue Victoria)


Piloting draft performance measures in public sector residential aged care services (PSRACS)

ACEBAC

Victorian Department of Health and Human Services (DHHS)

2019 - 2021

This project involves piloting a suite of aged care performance measures in six Victorian public sector residential aged care services in 2020/2021 and then evaluating the pilot. The eight performance measures being piloted are:

  • The use of evidence-based guidelines
  • Open disclosure
  • Timely access to care
  • Recognition of end of life
  • Comprehensive resident review
  • Medication safety
  • Dignity of risk
  • Responsive behaviours management

A resource guide has been developed to define the performance measures and guide the pilot.

Team members: Internal: Deirdre Fetherstonhaugh, Jo Rayner, Linda McAuliffe, Yvonne Wells. External: Joseph Ibrahim (Monash)


Scoping social inclusion opportunities and desires for older people living in the community and residential aged care facilities

ACEBAC

Internal ACEBAC funding

2020

This project will address the following key research questions:

  • What is the nature of social inclusion for older people living in the community and how does this differ for older people living in Residential Aged Care Facilities (RACFs)?
  • What are the opportunities for social inclusion for older people living in the community as compared to older people living in RACFs?
  • What are the barriers and enablers for social inclusion for older people living in the community and RACFs?
  • What happened in RACFs during the COVID-19 lockdown when visiting was severely restricted i.e. what opportunities did RACFs provide their residents for social activities?

This project will involve: a state-wide survey of residential aged care services to explore the current social inclusion activities provided to residents; interviews with older people living in residential aged care services and in the community and; interviews and focus groups with aged care staff.

Team members: Deirdre Fetherstonhaugh, Jo Rayner, Linda McAuliffe, Samantha Clune, Sandra Cowen


Exploring the impact of Comprehensive Health Assessment of the Older Person (CHAOP) training on future nursing practice

ACEBAC

Internal ACEBAC funding

2020

This project will explore:

  • Whether Comprehensive Health Assessment of the Older Person (CHAOP) is being conducted in the workplace by past CHAOP workshop participants more than 6 months post workshop?
  • What type of CHAOP is undertaken – full, focused or both?
  • Are there any barriers to conducting CHAOP in the workplace?
  • Has the participant detected a health problem of an older person after conducting a CHAOP? If so, were they able to plan/implement any treatment or care?

Team members: Sandra Cowen, Deirdre Fetherstonhaugh, Jo Rayner, Kane Solly


AN-ACC training needs

LINCOLN

Australian Department of Health

March 2020 – July 2020

The Australian National Aged Care Classification (AN-ACC) has been developed as a possible way of funding residential aged care. The tool was trialled in residential aged care settings in 2019 and early 2020. The outputs and outcomes of this project were intended to inform the practical considerations required to train and credential an external assessor workforce nationwide. La Trobe University was contracted to:

  1. Conduct a training needs analysis.
  2. Develop a strategy for curriculum design and delivery options.
  3. Evaluate the training provided in the AN-ACC trial.
  4. Develop a credentialing/competency framework for assessors.
  5. Develop a clinical governance training framework for assessors and the assessment management organisations in which they work.

Team members: Internal: Yvonne Wells, Deirdre Fetherstonhaugh, Meg Morris, Andrew Robinson, Simon Haines. External: Melissa Crampton, Angus Algie (Department of Health)


The Consumer Experience Interview for Home Services: Data analysis

LINCOLN

Aged Care Quality and Safety Commission

March 2020 – June 2020

The aim of this project was to analyse data from Consumer Experience Interviews in Home Care (CEI-HS) to address the following questions:

  1. Does the mode of collection (in person, phone, online survey) have an effect on responses? Based on that result, can the Commission conduct the CEI-HS in any mode or is one or more modes preferred?
  2. What is the overall consumer sentiment (i.e., simple counts and proportions of responses by question)?
    2a. Are the questions fit for purpose (i.e., do they have reliability and validity considering the results)?
    2b. Does this apply across the different demographic groups?
  3. Are there differences in consumer sentiment for the different demographic subpopulations included in the survey (e.g., age, sex, state/territory, ATSI, CALD)?
  4. Does mobility have an effect on consumer responses?
  5. Are there differences in consumer sentiment for the different service characteristics (e.g., remoteness, ownership type and state/territory)?

It was clear that model of data collection affected responses, in terms of both level of missing data and positive response bias. However, overall consumer sentiment was highly positive. The area of greatest concern is that relatively few clients (76%) said their services were updated frequently. Given the limited means available of assessment validity of responses to the CEI, the results are encouraging, suggesting both high internal reliability and good inter-rater reliability.

Consumers responded more positively to the questions than their representatives (i.e., family members or friends). Responses to individual questions varied by gender, area, and CALD background.

Team members: Internal: Yvonne Wells, Kane Solly. External: Libby O’Toole (Aged Care Quality and Safety Commission)


Development of End of Life audit tool DHHS

ACEBAC

Victorian Department of Health and Human Services (DHHS)

2018 - 2020

This project involved:

  • The development of an audit tool from the End-of-Life standardised care process
  • Piloting of the audit tool in three residential aged care facilities
  • Evaluation of the pilot
  • Revision of the audit tool
  • Producing a report for DHHS

Publication

Fetherstonhaugh, D. (2020). Development and pilot of an audit tool for measuring end-of-life care practices in residential aged care. Final Report for the Victorian Department of Health and Human Services (DHHS).

Team members: Deirdre Fetherstonhaugh, Michael Bauer


Evaluation of the 'Little things' training intervention for Personal Care Attendants

LINCOLN

Meaningful Ageing Australia (Ilsa Hampton) and Farnham Street Neighbourhood Learning Centre (Pip Mackay)

June 2018 - June 2020

The Little Things intervention provides training in communication skills to Personal Care Attendants (PCAs) with English as an additional language (EAL) working, or undergoing training to work, in residential or community aged care.

The main purpose of the evaluation was to determine whether the training developed by Meaningful Ageing Australia and the Farnham Street Neighbourhood Learning Centre is effective in increasing participants’ communication skills. Our role before the project was to design the evaluation framework for the grant application. In later stages of the project, we analysed data provided by PCAs pre- and post-intervention and conducted a Most Significant Change process. The evaluation showed significant improvement in PCAs confidence to communicate with older residents in English. The stories elicited from training participants were grouped by workshop participants into five main themes: Increased confidence; Taking time; Building rapport and collaboration; Awareness of new skills; Seeing the whole person; and Positive impact on the resident. Secondary benefits are expected to include improved employment prospects for the PCAs and improved relationships between PCAs and residents/clients of aged care services.

Team members: Internal: Yvonne Wells and Kane Solly. External: Ilsa Hampton (Meaningful Ageing Australia), Pip Mackey (Farnham Street Neighbourhood Learning Centre)


Promoting Independence Through quality dementia Care at Home (PITCH)

ACEBAC

NHMRC National Institute for Dementia Research (NNIDR)

2017 - 2020

Led by the National Ageing Research Institute, PITCH will see the development and evaluation of an education program aimed at increasing the dementia knowledge of home care workers providing care to community dwelling people living with dementia.

Team members: Internal: Margaret Winbolt. External: Briony Dow, National Ageing Research Institute


ADVANCE Palliative Care and Advance Care Planning in general practice – a training package for Practice Nurses

CHSD

HammondCare Health and Hospitals

2016 - 2020

Advance is a national, federally funded program designed to introduce advance care planning into general practices in a sensitive and routine way. It also helps general practices to identify people who may benefit from a thorough assessment of their supportive care needs and consideration of early referral to palliative care. HammondCare invited Virginia Lewis to offer evaluation advice to the Advance project during its funding round (2016-2017). As an external evaluator, Virginia provided the project with:

  • Assistance with choosing an appropriate evaluation framework.
  • Advice and input regarding draft study design, draft evaluation protocol, draft ethics application documents, draft surveys, and draft qualitative interview questions.
  • Advice and input regarding the qualitative and quantitative analysis (to be conducted by the evaluation officer).
  • An independent review of the evaluation process.

Virginia joined the second phase of the project (Advance 2) as a CI (2017-2020). Advance 2 was delivered by HammondCare and other collaborators from the University of Sydney, Flinders University (CareSearch), Austin Health, University of Queensland, University of Technology Sydney, and University of Wollongong. It included:

  • Consultation with relevant health professional bodies to identify the highest priority groups of clinicians for the new program and to tailor the resources and training for their specific needs.
  • Development of online learning resources for the new groups of clinicians.
  • Individual tele-mentoring for participating clinicians from across Australia.
  • Grants and train-the-trainer support for champion networks to deliver face-to-face training and to support implementation of the model into clinical practice.

www.caresearch.com.au/advance

Team members: Virginia Lewis


Development of a consumer resource for carers in residential aged care about every-day decision-making and people with dementia

ACEBAC

Dementia Collaborative Research Centre (DCRC3) - Carers and Consumers

2015 - 2020

This project involved the development of a resource for direct care staff in residential aged care to guide them in ensuring that people with dementia are supported to make everyday decisions.

Publication

Rayner, J. Fetherstonhaugh, D. & Bauer, M. (2020)  How to support everyday decision-making for people living with dementia in residential aged care: A guide for care workers ISBN: 978-0-646-82126-9

https://dementiaresearch.org.au/resources_categories/health-professionals/

Team members: Jo Rayner, Deirdre Fetherstonhaugh, Michael Bauer


CareSearch Evaluation and Support

CHSD

CareSearch

2014 - 2020

CHSD has had an ongoing partnership with CareSearch since 2014.

In 2014, CareSearch commissioned CHSD to undertake a Review of CareSearch from release of the website in 2008 until 2014. The Review highlighted what has been done well and raised any issues relevant to future development.

Team members: Virginia Lewis, Geraldine Marsh

From 2015 to 2017, CareSearch commissioned CHSD to evaluate the effectiveness of the CareSearch project. This included developing a program logic map and designing and implementing evaluation activities and studies which addressed aspects of the program logic and informed the effectiveness of the CareSearch project. CHSD undertook a workshop to confirm the program logic and then supported a series of studies including interviews with key stakeholders, and surveys of website users.

Team members: Virginia Lewis, Geraldine Marsh, Kate Silburn, Michaela Willet

From 2017 to 2020, Virginia Lewis partnered with CareSearch as a Chief Investigator on the Engagement Activity element of the project funded by the Commonwealth under the National Palliative Care Projects Activity funding. This involved collaborating to develop the Engagement Activity Framework, developing and facilitating workshops, designing evaluation of the Framework, gathering and analysing data and producing reports, conference papers and journal articles.

Funder: Flinders University with Commonwealth Department of Health & Ageing funding

Team members: Virginia Lewis, Jenny Macmillan, Deepika Ratnaike


Sampling for the Consumer Experience Report for Home Care: Sampling strategy and sample size

LINCOLN

Aged Care Quality and Safety Commission

April 2019 – December 2019

The aim of the current project was to provide advice to the Aged Care Quality and Safety Commission ("the Commission”) on the design of the survey for the Consumer Experience Report in Home Care (CERHC), with a focus on sampling strategies and sample size. This project proceeded in three stages: consideration of sample sizes; consideration of sampling strategies; and a synthesis of the previous two stages.

The report concluded that, on balance, the best way to ensure comparability across providers is to ensure that all samples are as representative of the population as possible. While this may lead to samples with different characteristics in different aged care services, it is the most straight-forward way of interpreting comparisons between services. Issues of samples with unique or unusual characteristics likely to affect the results (e.g., a reliance on proxy respondents) may be acknowledged in reporting.

Team members: Internal: Yvonne Wells, Janette Collier, Virginia Lewis. External: Libby O’Toole (Aged Care Quality and Safety Commission)


Development of the Consumer Experience Report for Home Care (CERHC)

LINCOLN

Australian Aged Care Quality Agency - now the Aged Care Quality and Safety Commission

June 2018 - May 2019

The purpose of the project was to develop and assess a set of structured interview questions for piloting for use in home-based and community-based aged care services. The interview questions are intended to support the development of a report on consumer experience of the quality of care and services in home and community care.

The project also involved reviewing questions currently being used in the CER for residential care, especially three questions that had been identified as difficult to administer, and to include more emphasis on choice and control.

Methods included: a limited literature review; meeting with the Quality Agency Liaison Group; proposing questions to be piloted; data analysis; and writing a report on the pilot that included recommendations for implementation.

Team members: Yvonne Wells, Deirdre Fetherstonhaugh, Janette Collier


Evaluation of Hand-in-Hand© model of residential aged care

LINCOLN

Jewish Care

August 2017 - December 2019

This project is to evaluate Jewish Care’s new model of residential aged care, which relies on consistent staff assignment and access to kitchen facilities.

The methodology includes observations of staff-resident interactions (before, mid-implementation, and after), analysis of data (medication use and activities of daily living), and the Most Significant Change (analysis of post-implementation stories about the impacts of the change, from the perspectives of staff and residents).

Team members: Internal: Yvonne Wells. External: Emma Bould, Samuel Murray - Jewish Care


Older Person's Legal Service Evaluation

CHSD with cohealth and Justice Connect

Victorian Legal Service Board

2016 - 2019

The Older Persons’ Legal Service (OPLS) (or Seniors’ Law Service) was developed as a health justice partnership between cohealth and Justice Connect and funded by the Victorian Legal Services Board  to provide a new service for older people who may be experiencing legal problems but who have trouble accessing advice or help.

The evaluation conducted by CHSD through a partnership with cohealth and Justice Connect considered the extent to which the service met its intended reach (providing legal services to older clients) and achieved positive outcomes for clients. The evaluation helped cohealth and Justice Connect to determine the value of the service, and contributed evidence to support consideration of whether this model should be replicated more widely.

Evaluation of the OPLS was involved collection and analysis of data from a number of different sources, including regular surveys with cohealth staff, feedback following training sessions, focus groups with cohealth staff, online surveys of pro bono lawyers, routine data collection by the OPLS lawyer and (anonymous) consumer feedback.

Knowledge translation stemming from this consultancy included:

Publications

Lewis VJ, White V, Hawthorne F, Eastwood J, Mullins R. (2020). Addressing elder abuse through integrating law into health: What do allied health professionals at a Community Health Service in Melbourne, Australia, think? Australasian Journal on Ageing https://onlinelibrary.wiley.com/doi/full/10.1111/ajag.12720

Lewis V, Adamson L, Hawthorne F. (2019) Health justice partnerships: A promising model for increasing access to justice in health services. Australian Health Review. https://doi.org/10.1071/AH18101

Team members: Virginia Lewis, Jenny Macmillan, Vanessa White, Robyn Mullins


Victorian Residential In-Reach Services evaluation

ACEBAC

Victorian Department of Health and Human Services (DHHS)

2014 - 2019

An evaluation of two Victorian Residential In-Reach (RiR) programs from the perspective of residential aged care.

Residential in-reach staff from both in-reach services and staff from a sample of aged care services in the health service catchment were interviewed about the use of residential in-reach services. The aim of the evaluation was to fully explore and explain why some residential aged care facilities (RACFs) use the RiR service more frequently than others.

Publications

Rayner, J. Fetherstonhaugh, D. Rota-Bartelink, A. (2019). Second Report: Evaluation of Residential in Reach: The perspective of residential aged care. Final Report Victorian Department of Health and Human Services (DHHS).

Rayner, J. Fetherstonhaugh, D. McDonald, E. Bauer, M. (2017) Evaluation of Residential in Reach: the perspective of residential aged care. Final Report for Residential In-Reach Service A (Internal report DHHS)

Team members: Jo-Anne Rayner, Deirdre Fetherstonhaugh, Ewan McDonald, Michael Bauer, Alice Rota-Bartelink


Recognising and reporting changes in residents' health: An education and training package for aged care facility staff

ACEBAC

Internal ACEBAC funding

2015 - Ongoing

This education and training package is specifically aimed at residential aged care personal care workers (PCWs) and personal care assistants (PCAs). It was developed to support PCWs/PCAs to recognise changes in a resident’s health status and report these to the appropriate person in the facility. The package is interactive and engaging and was developed using principles of adult learning. The package comprises eight modules – communication; wellbeing; movement and mobility; skin condition; breathing; eating, drinking and elimination; mental awareness; and end of life and takes 10 hours to complete.

The package has been designed for delivery by a nurse in an aged care facility. The package contains:

  • One full set of presentation slides complete with text, case studies/vignettes, video clips and images (Windows and Mac compatible)
  • One hardcopy of the facilitator’s manual and one hardcopy of the presentation slides with explanatory notes for the facilitator
  • Hardcopies of the participants’ workbook plus PDF for self-print option
  • One hardcopy set of activity sheets, flash cards and templates, plus PDF for self-print options
  • One hardcopy of a summary sheet for each module, plus PDF for self-print option.

https://www.latrobe.edu.au/aipca/australian-centre-for-evidence-based-aged-care/workshops-and-training-packages/recognising-and-reporting-changes-in-residents-health

Team members: Michael Bauer, Deirdre Fetherstonhaugh, Chris While, Sandra Cowen, Jo-Anne Rayner, Rebecca Watson


Comprehensive Health Assessment of Older Person (CHAOP)

ACEBAC

Victorian Department of Health and Human Services (DHHS) 

2011 - Ongoing

2018 - 2019: DHHS commissioned ACEBAC with administrative support from the ANMF to deliver 40 CHAOP workshops to Victorian nurses.

2014 - ongoing: ACEBAC granted the licence by DHHS to run CHAOP workshops fee for service.

2012 - 2013: DHHS commissioned ACEBAC to deliver and evaluate 45 CHAOP workshops to health professionals working in Victorian Public Health Services (acute and sub-acute care, community care and residential aged care).

https://www2.health.vic.gov.au/ageing-and-aged-care/residential-aged-care/safety-and-quality/improving-resident-care/comprehensive-health-assessment

2011: DHHS commissioned ACEBAC to: develop 4-5 day education and training workshop on Comprehensive Health Assessment of the Older Person (CHAOP); and deliver and evaluate 20 of these workshops to health professionals working in Victorian Public Sector Residential Aged Care Services (PSRACS). 20 workshops delivered.

Publication

Bauer, M. Fetherstonhaugh, D. & Winbolt, M. (Dec 2018-Feb 2019) Perceived barriers and enablers to conducting comprehensive health assessments in residential aged care facilities in Victoria, Australia Australian Journal of Advanced Nursing 36(2) 14-22.

Team members: Past: Deirdre Fetherstonhaugh, Margaret Winbolt, Sandra Cowen, Michael Bauer, Joanna Lee, Pauline Vandenberg, Alison Beattie, Angela Casey, Edwin Pascoe. Current: Deirdre Fetherstonhaugh, Rebecca Watson, Pauline Vandenberg, Alison Beattie, Angela Casey, Edwin Pascoe


Development of evidence-based standardised care processes (SCPs) in areas of clinical risk for older people living in residential aged care

ACEBAC

Department of Health and Human Services (DHHS)

2010 - Ongoing

This project identified clinical risks for older people living in residential aged care and develops evidence-based standardised care processes (SCPs). New SCPs are developed every year and all SCPs are reviewed every 2-3 years for currency and any new evidence. Up until 2020 19 SCPs have been developed. The SCPs are:

  1. Antimicrobial stewardship
  2. Choking
  3. Constipation
  4. Dehydration
  5. Delirium
  6. Depression
  7. End of life care
  8. Falls
  9. Hypoglycaemia
  10. Infection Control
  11. Oral and dental hygiene
  12. Polypharmacy
  13. Pain
  14. Physical restraint
  15. Pressure injuries
  16. Responsive behaviours
  17. Skin tears
  18. Sleep
  19. Unplanned weight loss

SCP resources available at:

https://www2.health.vic.gov.au/ageing-and-aged-care/residential-aged-care/safety-and-quality/improving-resident-care/standardised-care-processes

Team members: Deirdre Fetherstonhaugh, Chris While, Margaret Winbolt, Angela Casey

2015 - 2018

Intimacy and ageing in residential aged care: What factors influence the views of senior staff?

ACEBAC

Internal ACEBAC funding

2018

This project aims to identify the factors that influence senior staff decisions to support or restrict the sexual expression of older adults living in Australian residential aged care facilities (RACFs). A postal survey has been sent to Directors of Nursing/Facility Managers of all Australian RACFs. Respondents were asked to read a vignette describing a hypothetical relationship between two residents and to rate to what extent they agree the relationship should continue when different aspects are changed (i.e. presence of dementia, involvement of family, type of sexual activity).

Team members: Internal: Linda McAuliffe, Deirdre Fetherstonhaugh. External: Maggie Syme (Kansas)


Feedback to the AACQA on Aged Care Guild use of Consumer Experience Report data

LINCOLN

Australian Aged Care Quality Agency

June 2018 - July 2018

AACQA wished to explore how the Guild had arrived at the numbers quoted in its reports. A series of questions were put by AACQA, focusing on use of any weighting of data. These questions were explored by analysing data published by the Guild.

Despite the content of the Guild reports, it appears that no weighting had been applied to the data reported.

Team members: Internal: Yvonne Wells. External: Shaun Hancock, Timothy Yap (AACQA)


Analysis of consumer experience report (CER) data

LINCOLN

Australian Aged Care Quality Agency

November 2018 - December 2018

This analysis was commissioned by the Australian Aged Care Quality Agency (AACQA) to explore variance in results.

The data set provided included ratings from interviews held between 9 May 2017 and 4 July 2018. This data set included data from: 1,159 homes and 17,194 cases.

Formal measures of spread proved not very useful. Instead, percentage agreement was compared across groups. Results were presented to the Agency on 21 November 2018. Further analyses then explored predictors of scores.

Team members: Internal: Yvonne Wells, Kane Solly. External: Libby O'Toole (AACQA)


Development of Performance Measures and a Guide to Excellence for Public Sector Residential Aged Care Services in Victoria

ACEBAC

Victorian Department of Health and Human Services

2017 - 2018

1. A draft suite of consensus, evidence-based performance measures for public sector residential aged care services (PSRACS) were developed to strengthen monitoring and accountability for the delivery of safe high quality person centred care to residents. This included a focus on measures designed to improve the capacity of public sector providers and the department to identify potential care system failure and resident harm.

2. The development of a guide to excellence in residential aged care to be used to articulate a high performing service. It is forward thinking and adaptable for different services and includes:

  • Key domains - Principles, Characteristics, Attributes of good/best practice
  • Definitions to provide shared understandings of key concepts
  • Illustrative examples of exemplary/innovative practise.

This guide has been designed as a stand alone resource, but it aligns with the key domains, definitions, etc. used within the PSRACS performance measures development project.

Publications

Ibrahim, J. Fetherstonhaugh, D. McAuliffe, L. Rayner, J & Bauer, M. (2020) Meeting the needs of older people living in Australian residential aged care: A new conceptual model. Australasian Journal on Ageing DOI: 10.1111/ajag.12796.

Fetherstonhaugh, D. Ibrahim, J. Rayner, J. McAuliffe, L. & Bauer, M. (2018) Public Sector Aged Care Performance Measures Development. Final Report (internal DHHS)

Rayner, J. Fetherstonhaugh, D. Ibrahim, J. McAuliffe, L. & Bauer, M. (2018) A guide to excellence in public sector residential aged care services. Final Report (internal DHHS)

Team members: Internal: Deirdre Fetherstonhaugh, Jo-Anne Rayner, Linda McAuliffe, Michael Bauer. External: Joseph Ibrahim


Literature review on drivers of choice and perceptions of quality in home and community-based services

LINCOLN

Australian Aged Care Quality Agency

December 2017 - February 2018

The purpose of this literature review was to inform the development of a Consumer Experience Report (CER) for home-based and community-based aged care services, similar to the one recently introduced by the Australian Aged Care Quality Agency (AACQA) in residential aged care.

The scope of this work was a rapid review of available literature and expert opinion to assist in identifying: Key drivers of choice, in terms of expectations of the characteristics sought by consumers and potential customers when looking for a home or community-based aged care service; and key domains that capture consumer perceptions and, or experience, of the quality of services and care in home or community-based aged care.

Publication

The final report from this project has been published online: https://www.agedcarequality.gov.au/consumers/consumer-experience-reports-home-and-community-care

Team members: Yvonne Wells, Stav Hillel, Nikk Hunter, Sam Clune, Erica Johnstone, Beatriz Ayala Quintanilla


Feedback on Productivity Commission literature review on care support to prevent or delay entry of older people to residential care

LINCOLN

Productivity Commission

September 2017 - July 2018

The main purpose of this consultancy was to provide expert advice to support the PC’s review of what works to improve outcomes in government services. The subject of this review was: What types of support for carers of older people are effective in preventing or delaying older people’s entry to residential aged care?

Feedback was provided to the Productivity at various stages of the project, including the PICO framework and search terms, the evidence synthesis, and the final report.

Publication

The review has been published online: https://www.pc.gov.au/research/ongoing/report-on-government-services/what-works/dementia-support/dementia-support.pdf

Team members: Internal: Yvonne Wells, Deirdre Fetherstonhaugh. External: Catherine Andersson - Productivity Commission


Healthy and active ageing in the veteran population and factors and interventions that achieve positive effect; A rapid evidence assessment

LINCOLN

Department of Veteran's Affairs

October 2017 - June 2018

The purpose of the literature review was to inform the Department of Veterans’ Affairs (DVA) about: Whether veterans experience different challenges and issues as they age from those of the general population; and factors and interventions that positively affect health and wellbeing outcomes for older people (particularly those from military backgrounds).

The methodology included either literature reviews, conducted separately and then synthesised. Searches were restricted to the Medline database and supplemented with Australian grey literature on veterans’ health and wellbeing. Screening was managed in Covidence, and risk of bias assessments were completed. The number of articles included in final reports were; 62 on challenges to healthy ageing; 77 on determinants of healthy ageing, and 98 on interventions.

Publication

Final reports were published online: https://www.dva.gov.au/documents-and-publications/healthy-and-active-ageing-veteran-population-and-factors-or-interventions

Team members: Yvonne Wells, Stav Hillel, Richard Gray, Jenny Davis, Amal Al Ghareeb, Nikk Hunter, Sam Clune, Erica Johnstone, Beatriz Ayala Quintanilla


Chaplaincy and pastoral practice in Uniting

LINCOLN

Uniting NSW & ACT

June 2017 - 2018

This project aimed to scope issues and recent research on pastoral care and chaplaincy in aged care settings, and provide information on current issues and practices in Uniting’s pastoral care and chaplaincy services. The overarching research question was: What is the role of pastoral care and chaplaincy in aged care settings now and in the future?

The project had three broad stages. Stage 1 comprised a literature review, scoping focus groups, and interviews with an expert panel. Stage 2 was a survey of Uniting chaplains and pastoral practitioners. Stage 3 comprised follow up focus groups and telephone interviews.

Despite the challenges of pastoral care work, participants spoke passionately about its importance in residential aged care.

Team members: Yvonne Wells, Deirdre Fetherstonhaugh, Angela Herd, Deepika Ratnaika, Barbara Parker, Karen Teshuv


Data analysis for DOORS (Detection of Overall Risk Screen)

LINCOLN

Relationships Australia

2015 - 2018

Two waves of data collection were analysed to determine psychometric properties and fitness-for-purpose of the DOORS (Detection of Overall Risk Screen), using criterion measures such as the K-10, the Brief Infant and Toddler Social and Emotional Assessment (BITSEA) and the Strengths and Difficulties Questionnaire - Parent Report (SDQ).

Publication

Wells, Y., Lee, J., Li, X., Tan, E. S., & McIntosh, J. E. (2018). Re-Examination of the Family Law Detection of Overall Risk Screen (FL-DOORS): Establishing fitness for purpose. Psychological Assessment. doi:10.1037/pas0000581

Team members: Yvonne Wells, Jennifer McIntosh - Deakin University and La Trobe University, Jamie Lee - Relationship Australia


Developing and piloting the Consumer Experience Report: Pilot Study

LINCOLN

Australian Aged Care Quality Agency

December 2016 - October 2017

The aim of this project was to develop a set of core structured interview questions for use by the Australian Aged Care Quality Agency (AACQA) as part of each accreditation site audit of residential aged care services. The interview questions were intended to support the development of a standard report on consumer experience of the quality of care and services in residential aged care and be implemented within the context of existing audit practice.

This project had three stages. The development stage involved developing options for the core structured interview questions and consulting with the Project Reference Group to narrow the choice of questions to be piloted. The second stage (March 2017) was a pilot study to test the questions during reaccreditation site audits in the field. The final stage involves finalising the tool and developing training materials for use by the AACQA in implementing the Consumer Experience Report (CER).

Publication

The final report on the project has been published online: https://www.agedcarequality.gov.au/consumers/consumer-experience-reports-residential-aged-care-services/research-reports

Team members: Yvonne Wells, Deirdre Fetherstonhaugh, Angela Herd


Advancing practice in the care of people with dementia: the Dementia Training Study Centres' (DTSC) National Practice Improvement Program

ACEBAC

Australian Department of Social Services

2015 - 2017

Funded under the Australian Government's Aged Care Service Improvement and Healthy Ageing Grants the DTSC National Practice Improvement Program delivered a program of education and support to aged care providers to facilitate knowledge translation and practice improvement in the care of people with dementia in four critical care areas: environmental design; sexuality and dementia; medication management; responding to behavioural and psychological symptoms of dementia.

Team members: Internal: Margaret Winbolt. External: Richard Fleming, Elizabeth Beattie, Andrew Stafford, Katherine Cunningham


Systematic review - The effectiveness of non-pharmacological interventions to support the functional activities/ADLs/personal care (bathing/showering, hygiene/toileting; feeding/eating/dining/meal times) of people living with dementia in residential aged care

ACEBAC

Dementia Collaborative Research Centre (DCRC3) - Carers and Consumers

2015 - 2017

The research literature was searched and reviewed (2000 - 2015) using the following parameters:

Participants:

  • people with dementia (Alzheimer’s disease, multi-infarct, Lewy body, young onset,….) living in RACFs (nursing home, hostel, low care, assisted living, long-term care, care homes)
  • nurses, (LPNs/ RNs) personal care workers, personal care assistants, personal carers/assistants in nursing/nurses aides, health (care) professionals, GPs, allied health, occupational therapy/therapist, physiotherapist, diversional therapist, lifestyle therapist, dietician/dietitian, speech pathologist/therapist

Interventions of interest:

  • individualised care plan/approaches to care
  • bathing method/approaches/techniques
  • technology/assistive technology/assistive devices (equipment)
  • environmental adaptations
  • seating/postural care
  • education
  • training
  • music
  • complementary medicine i.e. aromatherapy
  • exercise
  • rehabilitation/geriatric rehabilitation/rehabilitation care
  • reablement

Types of outcome measures:

  • performance in ADLs, functional abilities (i.e. the functional abilities checklist FAC, Barthel score)
  • BPSD - aggression, agitation, wandering, social and sexual dis-inhibition, verbal outbursts, delusions, hallucinations, and anxiety
  • wellbeing
  • compliance/co-operation
  • independence
  • quality of life
  • restiveness to care
  • pain
  • withdrawal

Types of studies:

  • quantitative studies incl. RCTs, CTs, quasi- experimental, cohort, case studies
  • qualitative studies- descriptive, observational, expert opinion?

Publications

Fetherstonhaugh, D. Haesler, E & Bauer, M. (2019) Promoting mealtime function in people with dementia: a systematic review of studies undertaken in residential aged care. International Journal of Nursing Studies DOI:10.1016/j.ijnurstu.2019.04.005

Fetherstonhaugh, D. Haesler, E. Beattie, E. Hill, K & Poulos, C. (2018) The impact of nurse and care staff education on the functional ability and quality of life of people living with dementia: A systematic review Nurse Education Today 67: 27-45.

Team members: Deirdre Fetherstonhaugh, Michael Bauer, Emily Haesler


The development of an evidence-based intervention tool to improve hospital discharge practices for people with dementia and their family

ACEBAC

Nurses Board of Victoria Legacy

2014 - 2017

A Carer Controlled Health Record (to be used by the carer of an older person) was developed following: a literature review; interviews and focus groups with health service staff; drafting of the tool and then several Delphi rounds with experts until consensus was reached and finalisation of the tool.

Publication

https://www.latrobe.edu.au/aipca/australian-centre-for-evidence-based-aged-care/resources

Team members: Michael Bauer, Lesley Fitzgerald, Deirdre Fetherstonhaugh


Sexual Health: What factors promote or inhibit the recognition of sexuality as a component of health care for older people? A systematic review of the literature

ACEBAC

Faculty of Health Sciences Grant

2014 - 2017

Sexuality is increasingly being recognised as a key component of health and wellbeing. For older people, however, including those with dementia, sexual expression, sexual health, and sexual identity are often excluded by health professionals in their care delivery and practice. It is important to understand how and why this oversight occurs, and what can be done to improve practice. To date, no solid evidence base exists around what factors promote or inhibit the inclusion of sexuality into the care of older people, and this project will attempt to address this important knowledge gap through a systematic review of the literature.

Publications

Bauer, M. Haesler, E. & Fetherstonhaugh, D. (2019) Organisational enablers and barriers to the recognition of sexuality in aged care: A systematic review Journal of Nursing Management 10.1111/jonm.12743

Haesler, E. Bauer, M. & Fetherstonhaugh, D. (2016) ‘Sexuality, sexual health and older people: A systematic review of research on the knowledge and attitudes of health professionals'. Heath and Social Care in the Community. 40 (May) 57-71.

Bauer, M. Haesler, E. Fetherstonhaugh, D. (2015) ‘Let’s talk about sex: Older people’s views on the recognition of sexuality and sexual health in the healthcare setting’. Health Expectations. DOI 10.1111/hex.12418.

Team members: Michael Bauer, Deirdre Fetherstonhaugh, Emily Haesler


Supporting GPs and Practice Nurses in the Timely Diagnosis of Dementia

ACEBAC

Australian Department of Social Services

2015 - 2016

Funded under the Australian Government's Aged Care Service Improvement and Healthy Ageing Grants this project responded to the Australian Government's priority on improving timely diagnosis of dementia by delivering accredited continuing professional development training on dementia assessment, diagnosis and management to GPs and practice nurses throughout Australia. ACEBAC delivered the GP training component of the project.

Team members: Internal: Margaret Winbolt. External: Allan Shell, Henry Brodaty


Identifying support needs to improve rural dementia services: A Delphi consultation study

ACEBAC

La Trobe University 'Building Health Communities' grant

2014 - 2016

This project identified the priority support and service needs for:

  1. People living with dementia
  2. Carers of people living with dementia
  3. Health service providers

This project was conducted in a rural area of Victoria and involved interviews and focus groups.

Publication

Bauer, M. Fetherstonhaugh, D. Blackberry, I. Farmer, J & Wilding, C (2018) Identifying support needs to improve rural dementia services for people with dementia and their carers: A consultation study in Victoria, Australian Journal of Rural Health (in press)

Team members: Internal: Michael Bauer, Deirdre Fetherstonhaugh, Irene Blackberry. External: Jane Farmer


HACC Active Service Model client and carer outcomes framework and measurement tools project

LINCOLN

Department of Health and Human Services Victoria

2014 - 2016

A project to identify a suite of validated measures that can demonstrate change in client and carer status in a range of domains resulting from Victoria's ASM approach and test the measures on a sample of clients and carers, both before and after service delivery episodes of care.

Conference presentations

Teshuva, K., & Wells, Y. (July, 2016). Measuring the Impacts of the Active Service Approach in Home Care and Community Services. Paper presented to the 2016 LTU Early career Researcher Network meeting, Melbourne.

Teshuva, K., Wells, Y., Russell, H., & Payne, K. (Nov, 2015). Measuring the impacts of the Victorian HACC Active Service Model. Poster presented at the AAG Annual conference, Alice Springs.

Team members: Karen Teshuva, Yvonne Wells


Health and wellbeing aged 50 and over: Data stories for Banyule, Darebin and Nillumbik

LINCOLN

North East Primary Care Partnership

October 2014 - March 2016

The conduct of workshops and collection of information, and analysis of HACC and ACAP MDS data across three local government areas – Banyule, Darebin and Nillumbik.

Reports have been published online: https://www.nehc.org.au/resources/

Team members: Yvonne Wells, Karen Teshuva


Victoria and Tasmania Dementia Training Study Centre

ACEBAC

Australian Department of Health

2009 - 2016

Funded by the Australian Government and hosted by ACEBAC, the Victoria and Tasmania Dementia Training Study Centre was one of five Dementia Training Study Centres nationally which aimed to improve the quality of care and support provided to people living with dementia and their families through providing development opportunities for existing and future dementia care health professionals. This was achieved through a dedicated range of courses, workshops, seminars, scholarships, support, and curriculum development that translates contemporary knowledge into practical, effective approaches to helping people living with dementia and their families. DTSC’s goal was to enhance the knowledge and skills base of the current and future dementia care workforce, creating a nationally cohesive approach to dementia care.

Team members: Rhonda Nay, Margaret Winbolt


Literature review: Outcomes of Case Management

LINCOLN

Baptcare

2015

A review of the literature to identify key outcomes of case management as a component of home care packages with older people, and potential measurement approaches.

Team members: Janette Collier, Yvonne Wells


Literature review: Practice Approaches in Dementia Care

LINCOLN

Baptcare

2015

A review of the literature on practice approaches in organisation, client/resident assessment, carer, family and friends, care provision, environment and staff education.

Team members: Yvonne Wells, Chris While


Banyule Aged Friendly cities indicators project

LINCOLN

Banyule City Council

January 2015 - March 2015

This project was to assist Banyule City Council compile and report on indicators of age-friendliness to the WHO.

Team members: Internal: Yvonne Wells. External: Catherine Simcox and Hariklia Kessaris (Banyule City Council)


Using the Montessori Approach

ACEBAC

Alzheimer’s Australia Victoria

2014 - 2015

Researchers from ACEBAC undertook an evaluation of the impact of Montessori-based activities on the engagement of people with dementia attending two planned activity groups in Melbourne. The project aimed to improve the engagement of people with dementia in purposeful activity. The intervention was a Montessori education workshop for staff and family carers. Findings showed that using Montessori principles to inform activities statistically improved constructive engagement, pleasure and helping among the people with dementia; and that the Montessori education may improve staff satisfaction and attitudes to people with dementia.

Team members: Jo-Anne Rayner, Chris While


Managing Memory in Older Age in Regional and Remote Communities

LINCOLN

Building Healthy Communities Research Focus Area, La Trobe University

2014 - 2015

A project to: 1. Provide proof of concept about a memory management program adapted for older adults living in regional and remote communities in Victoria and designed to assist maintenance of cognitive health and independence in daily activities. 2. Evaluate the customisation and implementation of this program on a blended learning platform. 3. Establish a cross-disciplinary team of researchers from La Trobe and partners from Alzheimer's Australia VIC, Caulfield Hospital & Adult Learning Australia, with skills and expertise in interventions for maintaining cognitive health in older adults, especially in rural communities.

Team members: Glynda Kinsella (School of Psychology, project lead), Kerryn Pike (School of Psychology), Yvonne Wells


A family carer and consumer guide to intimacy and sexuality in residential aged care

ACEBAC

Dementia Collaborative Research Centre (DCRC) - Carers and Consumers

2013 - 2015

This project involved the development of consumer resource - family carer and consumer guide to intimacy and sexuality in residential aged care and involved a literature review, drafting the guide and then receiving feedback from people with dementia and carers of people with dementia before finalising the resource.

Publication

Bauer, M & Fetherstonhaugh, D. (2015) Sexuality and people in residential aged care facilities: A guide for partners and families https://www.latrobe.edu.au/aipca/australian-centre-for-evidence-based-aged-care/resources

Team members: Michael Bauer, Deirdre Fetherstonhaugh


Proxy decision-making on behalf of people with dementia - how do surrogates decide?

ACEBAC

Dementia Collaborative Research Centre (DCRC3) - Carers and Consumers

2013 - 2015

This study explored how proxy/surrogate decision-making on behalf of people with dementia. Specifically, the aims of this project were:

  • To explore how proxy/surrogate decision makers make decisions on behalf of a person with dementia.
  • To explore whether proxy/surrogate decision makers feel they need support in making decisions on behalf of a person with dementia.
  • If determined that proxy/surrogate decision makers need support what type of support do they require?
  • If determined that proxy/surrogate decision makers need support in making decisions on behalf of a person with dementia how could this support be provided.

Semi-structured interviews were conducted with people who were proxy/surrogate decision makers for people with dementia and who have already made decisions on their behalf.

Publications

Fetherstonhaugh, D. McAuliffe, L. Shanley, C. Bauer, M. & Beattie, E. (2017). “Did I make the right decision?”: The difficult and unpredictable journey of being a surrogate decision maker for a person living with dementia. Dementia. DOI: https://doi.org/10.1177/1471301217721862

Shanley, C. Fetherstonhaugh, D. McAuliffe, L. Bauer, M & Beattie, E. (2017) Providing support to surrogate decision-makers for people living with dementia: healthcare provider, organisational and community responsibilities. Health and Social Care in the Community 10.1111/hsc.12456

Fetherstonhaugh, D. McAuliffe, L. Bauer, M. & Shanley, C. (2016) ‘Decision-making on behalf of people living with dementia: How do surrogate decision-makers decide? Journal of Medical Ethics doi;10.1136/medethics-2015-103301.

Team members: Internal: Deirdre Fetherstonhaugh, Linda McAuliffe, Michael Bauer. External: Chris Shanley, Elizabeth Beattie


Evaluation of Wyndham City community support worker program

LINCOLN

Wyndham City Council

2013 - 2015

The main aim of the evaluation was to assist Wyndham City Council to evaluate its Community Support Worker project. The project was to develop and evaluate a service model that provides client-centred Home and Community Care-funded services to support clients to remain at home, with Community Support Workers (CSWs) empowered to engage with the client daily to determine the activities undertaken. Supports range from the Home and Community Care activity suite that the CSW is qualified to provide, and staff work toward goals previously agreed to within the care plan.

Team members: Yvonne Wells, Barbara Parker


Staff-family relationships for people with dementia living in residential aged care -
Evidence-based online resource package

ACEBAC - University of Tasmania and Griffith University

Alzheimer’s Australia

2012 - 2015

This project aimed to translate the available evidence, into a nationally-applicable 'Staff-family relationships' online resource package and education program to facilitate the implementation of an evidence-based clinical guideline to improve an support collaborative staff-family relationships, and, by extension, improve the wellbeing of family carers of people with dementia living in RACFs. These resources are available to RACFs around Australia, including in rural and remote areas.

In particular, the evidence translated into practice is derived from a systematic review of the literature, which identified a number of key factors known to influence the promotion and maintenance of collaborative staff-family relationships: - information sharing and the promotion of residents' uniqueness; - clear communication processes, expectations, goals and responsibilities in relation to resident care and decision making; - educational support for staff and families about developing constructive staff-family relationship; - staff working cooperatively and in partnership with families and a reciprocated recognition of roles, that is, shared understanding of each other's roles and contributions to care (Haesler, Bauer & Nay, 2010).

Published resource

http://qualitydementiacare.org.au/project/improving-staff-family-relationships-for-people-with-dementia-living-in-residential-aged-care/

Team members: Internal: Michael Bauer, Deirdre Fetherstonhaugh, Laura Tarzia. External: Wendy Moyle (Griffith University), Andrew Robinson (University of Tasmania)

2011 - 2014

“What Works” to promote emotional wellbeing in older people

LINCOLN

beyondblue

2013 - 2014

Development of a 'What Works' booklet: psychosocial interventions for older people for the prevention and treatment of depression and anxiety in older people.

The booklet has been published online: https://www.beyondblue.org.au/about-us/about-our-work/older-adults-program/what-works-to-promote-emotional-wellbeing-in-older-people-useful-links

Team members: Yvonne Wells, Barbara Parker, Monika Merkes, Glynda Kinsella (Department of Psychology), Sunil Bhar (Swinburne University), Alison Padgett (Uniting AgeWell)


Assistance with ILC bid

LINCOLN

Benetas

2013 - 2014

The main aim of this project was to assist a range of Australian stakeholders to form a consortium and develop a bid to become the International Longevity Centre- Australia. This bid proved successful.

Team members: Yvonne Wells, Barbara Parker, Richard Huysmans (Raven Consulting)


Factors influencing residential aged care staff decision-making when a resident's health deteriorates

ACEBAC

Department of Health Victoria

2012 - 2014

This PhD project explored RACF staff decision-making regarding the transfer of residents to hospital.

Publications

Laging, B., R. Ford, M. Bauer and R. Nay (2015). "A meta-synthesis of factors influencing nursing home staff decisions to transfer residents to hospital." Journal of Advanced Nursing 71(10): 2224-2236.

Laging, B., M. Bauer, R. Ford and R. Nay (2014). "A systematic review on the experiences of Residential Aged Care Facility staff decision making regarding the transfer of residents to Emergency Departments. ." JBI Database of Systematic Reviews 12(2): 263-388.

Team members: Brigid Laging (PhD student), Michael Bauer, Rhonda Nay


My Place for Life

LINCOLN

Australian Research Council Linkage Grant

2011 - 2014

The My Place for Life research project sought to address the question of how different living environments affect quality of life and outcomes of older people. The main outcome measures are quality of life and social participation. With Uniting Aged Care.

Conference presentations

Wells, Y., & Herd, A. (Nov, 2013). Congregate housing: Impacts on quality of life and social participation. Paper presented at the 46th National Conference of the Australian Association of Gerontology, Sydney.

Herd, A., Street, A., & Wells, Y. (Nov, 2015). Hearing older people’s voices: What matters in housing design? Paper presented at the AAG Annual conference, Alice Springs.

Herd, A., & Wells, Y. (June 2016). Design of retirement communities. Paper presented at the International Federation on Ageing, Brisbane.

Herd, A., Wells, Y., & Street, A. (Feb, 2016). Home is best – or is it? Presentation to the La Trobe University Healthy Ageing Research Group (HARG) Industry forum

Team members: Yvonne Wells, Angela Herd, Annette Street


Review of meal services under the Home and Community Care (HACC) Program

LINCOLN

Australian Government Department of Health

2013

A project to develop an evidence base and identify subsequent service delivery implications to ensure meal services under the new Commonwealth Home Support Program contribute to the objectives of the Program.

Team members: Yvonne Wells, Angela Herd, Barbara Parker, Karen Teshuva, John van Holsteyn


Expanded Settings for Clinical Placements Project

LINCOLN

Department of Health Victoria

2012 - 2013

Implementation of an expanded settings program for clinical placements in Uniting Aged Care

Team members: Karen Teshuva (project lead), Yvonne Wells, with Uniting Aged Care


Evaluation of Short-term Case management in the HACC Program

LINCOLN

Department of Health Victoria

2012 - 2013

A project to evaluate the HACC short-term case management pilot.

Six short-term case management pilots were funded by the Victorian Department of Health. The pilots tested the propositions that: short-term intensive case management in the Home and Community Care (HACC) Program would support Active Service Model objectives (that is, capacity building and maintaining an individual’s independence); and that such a service could potentially prevent the need for higher levels of care. Evaluation methods included analyses of HACC and case management data, de-identified case studies, project reports, and care plan documents. These were supplemented with interviews with case managers, service managers and assessment officers, and with Most Significant Change stories from clients and staff.

Team members: Yvonne Wells, Barbara Parker, Karen Teshuva, Katrina Lavender


Everyday decision-making: the experience of people living with dementia and their carers

ACEBAC

Dementia Collaborative Research Centre (DCRC3) - Carers and Consumers

2011 - 2013

Stage 1. This project informed by Van Manen’s approach to phenomenology (1997) explored the essence of decision making when a person has a diagnosis of dementia. People with early stage dementia were interviewed.

Stage 2. Carers of people living with dementia were interviewed to explore how they facilitated remained involvement in decision-making for the person living with dementia.

Publications

Fetherstonhaugh, D. Rayner, J & Tarzia, L. (2016) ‘Hanging on to some autonomy in decision-making: How do spouse carers support this?’ Dementia DOI:10.1177/1471301216678104 dem.sagepub.com.

Fetherstonhaugh, D. Tarzia, L & Nay, R. (2013) ‘Being central to decision making means I am still here!: The essence of decision making for people with dementia’. Journal of Aging Studies (27) 143-150.

Team members: Deirdre Fetherstonhaugh, Laura Tarzia, Jo-Anne Rayner, Rhonda Nay


The experiences and processes for decision-making by direct care staff in residential aged care facilities (RACFs) when the person about whom the decisions are to be made has a diagnosis of dementia

ACEBAC

Dementia Collaborative Research Centre (DCRC3) - Carers and Consumers

2011 - 2013

This project used grounded theory methodology to explore the experiences and processes of direct care staff in residential aged care facilities (RACFs) in enabling/preventing people with dementia to make decisions. A literature review was undertaken and direct care staff (nurses and personal care workers) (N=80) from residential aged care services in two Australian states were recruited and took part in interviews or focus groups. Interview data was analysed.

Publications

Cameron, N. Fetherstonhaugh, D. Bauer, M & Tarzia, L. It’s a matter of knowing your resident’. How residential care staff conceptualise identity and its relevance for decision-making with regard to residents with dementia. Journal of Applied Gerontology (in press)

Cameron, N. Fetherstonhaugh, D & Bauer, M. (2020) Challenges faced by residential aged care staff in supporting the decisions of, and making decisions on behalf of, residents with dementia: moving from broad principles to specific instances Dementia. doi.org/10.1177/1471301220929154

Cameron, N. Fetherstonhaugh, D. Bauer, M & Tarzia, L. (2018) How do care staff in residential aged care facilities conceptualise their non-verbal interactions with residents with dementia and what relevance has this for how residents’ preferences and capacity for decision making are understood? Dementia DOI:10.1177/1471301218798422

Tarzia, L. Fetherstonhaugh, D. Bauer, M. Beattie, E & Nay, R. (2015) ‘We have to work within the system!: Staff perceptions of organizational barriers to decision making for older adults with dementia in Australian aged care facilities’ Research in Gerontological Nursing. DOI: 10.3928/19404921-20150413-01.

Fetherstonhaugh, D. Tarzia, L. Bauer, M. Nay, R. & Beattie, E. (2014).'The red dress or the blue?: How do staff perceive that they support decision making for people with dementia living in residential aged care facilities? Journal of Applied Gerontology.35(2), 209-226. DOI: 10.1177/0733464814531089.

Team members: Internal: Deirdre Fetherstonhaugh, Laura Tarzia, Michael Bauer, Rhonda Nay, Nadine Cameron. External: Elizabeth Beattie (QUT)


The social participation of carers of people with dementia

ACEBAC

Dementia Collaborative Research Centre (DCRC3) - Carers and Consumers

2011 - 2013

This project explored the meaning, barriers and enablers of social participation for carers of older people with dementia. The concept of social participation has not been well defined, used inconsistently in the literature, and been used interchangeably with a range of other terms but it remains an important notion because it is an indicator of both the quality of life experienced by individuals and the extent to which communities are functioning successfully.  The meaning of social participation for carers of older people with dementia and the enablers and barriers that can facilitate or diminish that social participation had not been previously explored. Thirty three carers of older people with dementia from across Victoria and Queensland participated in a conversational semi-structured interview.

Publications

Nay, R. Bauer, M. Fetherstonhaugh, D. Moyle, W. Tarzia, L. & McAuliffe, L. (2014) ‘“Surviving”: Social participation and family carers of people living with dementia. Health and Social Care in the Community DOI: 10.1111/hsc.12163.

Nay, R. Fetherstonhaugh, D. Bauer, M. Moyle, W. McAullife, L. & Hart, C. The social participation of carers of people with dementia. Dementia Collaborative Research Centre 3 Carers and Consumers http://www.dementia.unsw.edu.au/images/dcrc/output-files/707-dcrc_social_participation_report_october_2013.pdf

Team members: Internal: Deirdre Fetherstonhaugh, Michael Bauer, Rhonda Nay, Carol Hart. External: Wendy Moyle


Data analysis: Survey of HACC Active Service Model providers

LINCOLN

Municipal Association of Victoria (MAV)

2012

This project involved a simple descriptive analysis of data from a MAV Survey of HACC home care providers (N = 48: 22 metropolitan and 26 regional/rural). Data were mostly numeric, but open-ended responded were analysed. The analyses contributed to a report compiled by the MAV. The objectives of the project were to: identify the range of tasks being undertaken by HSW and how they link broadly to the ASM objectives, client goals and care plans; describe the range and frequency of tasks being provided within the current domestic assistance and personal care service categories in response to individual needs, and any barriers to proving the flexibility needed to meet goals; document examples of the practices and system changes which effectively support the role of HSW in implementing care plans, and recommend on further training needs for HSWs.

Team members: Yvonne Wells


Best Care for Older People evaluation framework

LINCOLN

North Health

2012

Evaluation framework and data analysis for Northern Health's Best Care for Older People program.

Team members: Yvonne Wells, Barbara Parker


Personalised MP3

ACEBAC with the Centre for Health Systems Development

Southern Cross Care

2011 - 2012

The aim of this project was to determine if, and when, an MP3 player is provided to informal caregivers of people with dementia, the use of the device by the person with dementia enables their caregivers to undertake activities that give them brief respite from the high level of vigilance often needed in caring for their family member, both at home and in public spaces. This project was conducted in collaboration with Southern Cross Care (Vic.) who funded the project. Findings from the study were launched in September 2013.

Publication

Lewis, V., Bauer, M., Winbolt, M., Chenco, C. & Hanley, G. (2014) A study of effectiveness of MP3 players to support family carers of people with dementia at home. International Psychogeriatrics 27(3): 471-479

Team members: Margaret Winbolt, Virginia Lewis, Michael Bauer, Carol Chenco, Francine Hanley


EN-ABLE

ACEBAC

Australian Department of Health and Ageing

2011 - 2012

The EN-ABLE Project addressed the target area 'Behaviour Management' in residential aged/dementia care. It supported a key national health priority, 'Promoting and Maintaining Good Health' and the Department of Health and Ageing reform agenda 'Encouraging Best Practices in Residential Aged Care'. The aim of this project was to skill residential care staff to respond in person-centred, evidence-based ways to need-driven behaviours (NDBs), variously referred to as behavioural and psychological symptoms of dementia (BPSDs) and Unmet Need Behaviours (UNBs) in the literature. The central project goal was to implement and evaluate the EN-ABLE education and training in residential aged/dementia care through an empowering staff support process.

Team members: Internal: Rhonda Nay, Margaret Winbolt, Carol Chenco. External: Lynn Chenoweth, Elizabeth Beattie, Elaine Fielding


SCTT Revision Pilot Project

LINCOLN

Department of Health Victoria

2011 - 2012

Pilot of the Service Coordination Tool Templates (SCTT) – a suite of templates developed to facilitate and support service coordination, SCTT support the collection and recording of initial contact, initial needs identification, referral and coordinated care planning information in a standardised way. The project was to ensure the SCTT suite of tools have the utility, usability, and practicality necessary to enable appropriate referrals. Revision activities included clinician benchmarking workshops, and a report including recommendations for revising the SCTT.

Team members: Yvonne Wells, Barbara Parker, Karen Teshuva


Evaluation of CACP for Dementia (CACPD)

LINCOLN

Baptcare

2011 - 2012

Evaluation of Baptcare’s CACPD packages. An intervention group (N = 9) and a control group (N = 8) were recruited to the evaluation. Participants were interviewed in their homes and followed up after 2-3 months. Analyses indicated that there were some benefits to carers on the CACPD package, in comparison to those on the standard CACP, in terms of more services such as respite and home maintenance, and reduced burden and increased quality of life over time.

Team members: Yvonne Wells, Judy Tang


Transforming the Experiences of Ageing: The ABCD of Building Socially Inclusive Communities

LINCOLN

Australian Research Council Linkage Grant

2010 - 2011

This project addressed the national goal, 'ageing well, ageing productively'. Serious problems with community and residential aged care services for older Australians are well-documented. This project will determine the best way to find out what older people want now and for the future, in terms of housing, supports and services.

Team members: Yvonne Wells, Carmel Laragy (RMIT), Elizabeth Ozanne (University of Melbourne)


ACAS Evaluation Unit

LINCOLN

Victorian Department of Health

1983 - 2014

As the Victorian state Evaluation Unit for the Aged Care Assessment Program (ACAP) since 1983, the Lincoln Centre oversaw the collection of the Minimum Data Set (MDS) on the approximately 70,000 assessments carried out each year by Victoria's 18 Aged Care Assessment Services (ACAS). Reporting had particular focus on waiting times for assessment, numbers of assessments, and outcomes (recommendations) of assessment.

Team members: Yvonne Wells, Karen Teshuva, Judy Tang, Janette Collier, Ian Gardner, and many others

e-Health

2019 - 2020

Aged Care Assessment Program

e-Health Unit

Department of Health Victoria

Support for the Aged Care Assessment Program in Victoria, providing technical and system support for all assessment services/health services in Victoria in relation to My Aged Care.

Team members: Janette Collier, Sharon Gibson


2015 - 2018

ACE HACC Software

e-Health Unit

Department of Health Victoria

2012 - 2015

Maintenance, upgrading and further development services in relation to ACE Home and Community Care software.

Team members: Janette Collier, Sharon Gibson

2011 - 2014

Broadband Enabled Innovation Program

CHSD, with e-Health Unit

Royal District Nursing Service

2011 - 2014

Healthy, Happy and at Home: NBN-enabled medication management from older adults living independently.

Team members: Virginia Lewis, Janette Collier

Evaluation

2019 - 2020

Evaluation of the Haven Homes Accommodation Program

CHSD

Mind Australia

2020 - 2024

Haven Homes provide long term residential support for people with severe and persisting mental illness. Mind currently operates two Haven homes in Melbourne with an additional five to commence by 2022. Involvement of carers and the development of independent living skills are key elements of the Haven Home model.

CHSD has been engaged to deliver an outcomes evaluation of the program including an economic evaluation and Scope of Practice. Our methods will include contextual analysis by region, analysis of quantitative service activity data, social network analysis, and consultation with residents, carers, staff and management. The final report will provide an evaluation framework that will enable ongoing evaluation of the Haven homes.

Team members: Internal: Deepika Ratnaike, Virginia Lewis, Geraldine Marsh, Vanessa White. External: Lisa Brophy and Catherine Minshall (La Trobe Social Work)


Men’s Risky Drinking Evaluation

CHSD

The Victorian Health Promotion Foundation (VicHealth)

2019 - 2022

VicHealth funded three organisations through their Men’s Risky Drinking grants to develop and deliver interventions to alter the social and physical environments of men’s risky drinking social worlds to support low-risk drinking.  Interventions are aligned with VicHealth Alcohol Cultures Framework.

The evaluation aims to measure whether the following project impact objectives have been achieved:

  • changes in the social environment
  • the number and strength of changes in the physical environment that are identified as influencing the way people drink and
  • the impact the projects had on groups facing the greatest health inequities.

Alcohol culture change indicators developed as part of the broader Alcohol Culture Change Initiative will be incorporated in data collection. The evaluation will be based on program logic representations developed for each project which link to the program logic developed for the overarching evaluation of the Alcohol Culture Change Initiative. Evaluation activities will include engagement with VicHealth and projects through regular meetings, evaluation support and Community of Practice meetings, provision of advice to projects about data collection, including survey design and data collection methods and provision of regular and timely progress reports as well as a final report.

Team members: Virginia Lewis, Geraldine Marsh, Vanessa White


VicHealth Indicators

CHSD

VicHealth

2020

VicHealth provides health promotion material for a wide range of audiences. CHSD was engaged to update the evidence contained in VicHealth’s existing fact sheets in five strategic imperative areas: physical activity, tobacco, mental wellbeing, alcohol and health eating. We conducted a literature review to update the existing fact sheets and compiled Endnote reference libraries for the key imperative areas.

Team members: Virginia Lewis, Robyn Mullins, Deepika Ratnaike


Developmental Evaluation of the Inner Melbourne Connections Program

CHSD

North Western Melbourne Primary Health Network

2019 - 2020

North Western Melbourne Primary Health Network (NWMHPN) funded a pilot program to provide psychosocial support to people who were experiencing homelessness and had a severe mental illness. The Inner Melbourne Connections (IMC) program was developed solely for this purpose and provided by Melbourne City Mission and cohealth. CHSD was engaged to provide a developmental evaluation of this program. This involved support with defining the service offering and its implementation.

Methods used included: reflective practice, workshops, analysis of service activity data, audits, case reviews, service footprint analysis and interviews with key stakeholders.

The final report will offer insight into key issues in the delivery of psychosocial support to this target group with recommendations at the funder, provider and consumer level. The original service model will also be reviewed to identify scope for improvements or alternative models.

Team members: Deepika Ratnaike, Virginia Lewis, Vanessa White


Evaluation of the SVHNS Health Justice Partnership elder abuse legal service

CHSD

St Vincent’s Hospital Sydney Limited

2018 - 2020

This research consultancy provided support to design, implement and report an evaluation of the Seniors Law service being delivered at two sites by St Vincent’s Health Sydney and Justice Connect. Services included the development of evaluation tools and templates in the form of an online Annual Staff Survey and a Post-training Evaluation Survey to support data collection, provision of summaries of data analyses from surveys which were collected and provided by SVHNS, and the provision of written and verbal contributions to Internal Reports for SVHNS and other reports and forms of knowledge as required.

Team members: Virginia Lewis, Vanessa White


Alcohol Culture Change Initiative Evaluation

CHSD

The Victorian Health Promotion Foundation (VicHealth)

2017 - 2020

VicHealth’s Alcohol Culture Change Initiative (the Initiative) intended to influence and help transform drinking norms, expectations and practices within social worlds to encourage low-risk drinking and was underpinned by the VicHealth Alcohol Cultures Framework. Nine projects were funded to trial tailored strategies targeted to improve the drinking culture/s of specific groups, subpopulations and setting where risky drinking and exposure to alcohol-related harm is greatest.

The purpose of this project was to design and implement an overarching evaluation for the Initiative and build the evidence base about what works and what does not work in influencing alcohol culture change. The evaluation was based on an overarching program logic into which the work of VicHealth and each of the funded projects can be incorporated. AIPCA planned, designed and delivered the overarching Initiative process, impact and outcome evaluation, including identification of relevant indicators to measure alcohol culture change, provided ongoing project evaluation support for funded projects, co-established and supported an Alcohol Culture Change Community of Practice, monitored and reported on delivery progress and reported on final outcomes.

Team members: Internal: Virginia Lewis, Geraldine Marsh, Vanessa White, Jenny Macmillan, Kate Silburn, Ross Borland. External: Michael Livingston, Robin Room (Centre for Alcohol Policy Research, LTU) Sarah MacLean (School of Allied Health, LTU)


CareSearch Evaluation and Support

CHSD

CareSearch

2014 - 2020

CHSD has had an ongoing partnership with CareSearch since 2014.

In 2014, CareSearch commissioned CHSD to undertake a Review of CareSearch from release of the website in 2008 until 2014. The Review highlighted what has been done well and raised any issues relevant to future development.

Team members: Virginia Lewis, Geraldine Marsh

From 2015 to 2017, CareSearch commissioned CHSD to evaluate the effectiveness of the CareSearch project. This included developing a program logic map and designing and implementing evaluation activities and studies which addressed aspects of the program logic and informed the effectiveness of the CareSearch project. CHSD undertook a workshop to confirm the program logic and then supported a series of studies including interviews with key stakeholders, and surveys of website users.

Team members: Virginia Lewis, Geraldine Marsh, Kate Silburn, Michaela Willet

From 2017 to 2020, Virginia Lewis partnered with CareSearch as a Chief Investigator on the Engagement Activity element of the project funded by the Commonwealth under the National Palliative Care Projects Activity funding. This involved collaborating to develop the Engagement Activity Framework, developing and facilitating workshops, designing evaluation of the Framework, gathering and analysing data and producing reports, conference papers and journal articles.

Funder: Flinders University with Commonwealth Department of Health & Ageing funding

Team members: Virginia Lewis, Jenny Macmillan, Deepika Ratnaike


Evaluation Support for Seniors Law Health Justice Partnership - Justice Connect and St Vincent’s Hospital Melbourne

CHSD

St Vincent’s Hospital (Melbourne) Ltd

2018 - 2019

Justice Connect and St Vincent’s Health (SVH) Melbourne implemented an innovative service called the Legal Service for Vulnerable Older People (LSVOP). The service is intended for people who are experiencing elder abuse of all kinds. The service model (described as a “Justice-Health Partnership”) involves staff in different departments within St Vincent’s identifying clients who may benefit from legal advice. In addition to their casework load, the lawyer developed and delivered training sessions to educate and upskill health professionals in SVH to identify and refer patients with unmet legal need to the clinic.

This research consultancy involved the development of an evaluation framework for the LSVOP at SVH, development of data collection tools and templates, analysis of survey data provided by SVH, assistance with data analysis undertaken by Justice Connect and SVH, contribution to report writing incorporating information, evidence and data from the full range of sources available.

Two important elements of data collection included the Annual Staff survey and the Post-Training Survey. The Annual Staff Survey established point-in-time views about the perceived level of need for legal services in SVH patients/clients; belief in a link between health and potential legal issues; confidence of staff to identify and refer patients/clients; and perceptions of the potential benefits to clients. The Post-Training Survey was administered immediately after training/information sessions provided to SVH staff. The survey included questions about staff knowledge, attitudes and beliefs relevant to the content of the training session. Self-rated confidence to recognise and refer clients appropriately was also assessed, along with intentions to implement what is learnt.

Team members: Virginia Lewis, Vanessa White


Trial of an Evaluation Framework for Step Up Step Down services in Queensland

CHSD

Mind Australia, Neami National and Queensland Health

2018 - 2019

Step Up Step Down services (SUSDs) provide short term care and support that matches the need of the consumer, by providing subacute care to people with severe mental illness who can be supported in a residential setting or those who are needing additional support following discharge from an acute unit. They are not intended to provide acute and crisis care. These services have an important role in developing and maintaining the mental health of consumers living in the community through building life skills, identifying strengths and goals, managing mental illness, and preventing avoidable acute admissions and readmissions. SUSDs are commissioned by Queensland Health, Mental Health and Alcohol and Other Drugs Branch (MHAOD).

The purpose of the project was to develop and trial an evaluation framework for the Queensland based SUSDs run by Mind Australia and Neami National. CHSD worked with Mind Australia, Neami National and Queensland Health to identify the program logic model and to gather data to inform how the SUSDs could be evaluated. This involved analysis of quantitative service activity data, audits, workshops with staff, interviews with managers, staff and consumers. In addition, we analysed factors in the five geographical regions, the organisation’s culture and approach and the elements of psychosocial support that could be delivered within the SUSD environment. The trial resulted in refinements to the evaluation framework.

Team members: Deepika Ratnaike, Virginia Lewis, Vanessa White


Older Person's Legal Service Evaluation

CHSD with cohealth and Justice Connect

Victorian Legal Service Board

2016 - 2019

The Older Persons’ Legal Service (OPLS) (or Seniors’ Law Service) was developed as a health justice partnership between cohealth and Justice Connect and funded by the Victorian Legal Services Board  to provide a new service for older people who may be experiencing legal problems but who have trouble accessing advice or help.

The evaluation conducted by CHSD through a partnership with cohealth and Justice Connect considered the extent to which the service met its intended reach (providing legal services to older clients) and achieved positive outcomes for clients. The evaluation helped cohealth and Justice Connect to determine the value of the service, and contributed evidence to support consideration of whether this model should be replicated more widely.

Evaluation of the OPLS was involved collection and analysis of data from a number of different sources, including regular surveys with cohealth staff, feedback following training sessions, focus groups with cohealth staff, online surveys of pro bono lawyers, routine data collection by the OPLS lawyer and (anonymous) consumer feedback.

Knowledge translation stemming from this consultancy included:

Publications

Lewis VJ, White V, Hawthorne F, Eastwood J, Mullins R. (2020). Addressing elder abuse through integrating law into health: What do allied health professionals at a Community Health Service in Melbourne, Australia, think? Australasian Journal on Ageing https://onlinelibrary.wiley.com/doi/full/10.1111/ajag.12720

Lewis V, Adamson L, Hawthorne F. (2019) Health justice partnerships: A promising model for increasing access to justice in health services. Australian Health Review. https://doi.org/10.1071/AH18101

Team members: Virginia Lewis, Jenny Macmillan, Vanessa White, Robyn Mullins

2015 - 2018

Evaluation of the Department of Veterans’ Affairs (DVA) Goal Attainment Scaling Tool

CHSD

Department of Veterans’ Affairs, Canberra, Australia

2017 - 2018

Goal Attainment Scaling is used within a Department of Veterans’ Affairs (DVA) client’s Rehabilitation Plan to determine appropriate goals for the client, measure those goals against a standardised scale, and measure change and progress in the client’s functioning, employment, social and wellbeing outcomes.

DVA commissioned the Australian Institute for Primary Care & Ageing (AIPCA) to undertake an evaluation of the DVA Goal Attainment Scaling (GAS) Tool. The overarching evaluation research question was: Is GAS a helpful tool in helping clients achieve their rehabilitation goals?

The evaluation comprised:

  • A qualitative component that included semi-structured interviews with 18 rehabilitation providers and 18 clients, and three focus groups with DVA rehabilitation coordinators—one in each of the states coordinating the program—about their experiences with GAS.
  • A review of program documents on the DVA website and a review of a sample of redacted sets of client files.
  • A quantitative component, which to the extent possible analysed DVA-collated GAS data on client outcomes.
  • Investigation of the feasibility of an economic analysis component with a focus on cost-effectiveness.
  • An overarching analysis of themes generated from the findings and their implications for policy and program delivery.

https://www.dva.gov.au/

Team members: Jenny Macmillan, Yvonne Wells, Vanessa White, Deepika Ratnaike and Lynda Matthews with expert advice from Greg Murphy, Virginia Lewis and Allan Shiell


Melton Brimbank Legal Service and Djerriwarrh Community Health Service’s Health Justice Partnership: Mortgage Wellbeing Service

CHSD

Melton Brimbank Legal Service and Djerriwarrh Community Health Centre

2015 - 2017

The Mortgage Wellbeing Service is a Health Justice Partnership (HJP) between Brimbank Melton Community Legal Centre and Djerriwarrh Community Health Service. It has been providing a holistic service delivery model for people with mortgage stress in the Melton area since early 2015, implementing a joint intake model of a lawyer, social worker and financial counsellor. AIPCA was contracted to conduct key stakeholder interviews and analyse data to support the evaluation of the HJP.

Report

https://www.comm-unityplus.org.au/legal-services/our-projects/71-mortgage-wellbeing-service

Team members: Virginia Lewis, Vanessa White, Jenny Macmillan


Evaluation of a Pilot of Models for Requesting Donation

CHSD

Commonwealth of Australia through the Australian Organ and Tissue Donation and Transplantation Authority

2012 - 2017

The Organ Tissue Authority (OTA) commissioned CHSD to develop an Evaluation Framework and tools to evaluate the effectiveness and impact of the Collaborative Requesting Model for organ and tissue donation in Australia.

Based on the Framework, a number of data collection tools including audits and surveys were developed and implemented at 15 hospitals around Australia. The evaluation considered the way the model was implemented and its impact on consent rates.

Conference presentations

Lewis V., White, V., Bell, A., Mehakovic, E. (2015). Impact of a Collaborative Requesting Model (CRM) on practice and consent rates where the patient’s wishes are known and not known. International 2015 Organ Donation Congress, Seoul, South Korea, October 17-20, 2015. (Oral)

Lewis, V., White, V., Bell, A., Mehakovic, E. (2015). Understanding OTD requesting practice: evaluation of flexible practice in a complex environment. International 2015 Organ Donation Congress, Seoul, South Korea, October 17-20, 2015. (Oral)

Lewis, V., White, V., Bell, A., Mehakovic, E. (2015). A collaborative approach to requesting supports good practice and increases consent rates: results of a national pilot of organ donation requesting models in Australia. International 2015 Organ Donation Congress, Seoul, South Korea, October 17-20, 2015. (Oral)

Lewis, V., White, V., Bell, A., Mehakovic, E. (2015). Family knowledge of patients’ organ and tissue donation wishes affects consent rate. International 2015 Organ Donation Congress, Seoul, South Korea, October 17-20, 2015. (Oral)

Lewis, V., White, V., Bell, A., Mehakovic, E. (2015). Impact of professional education on hospital staff knowledge & beliefs. International 2015 Organ Donation Congress, Seoul, South Korea, October 17-20, 2015. (Oral)

Publications

Lewis, V., White., V., Bell, A., Mehakovic, E., (2015) Towards a national model for organ donation requests in Australia: evaluation of a pilot model. Critical Care and Resuscitation, 17:4.

Team members: Virginia Lewis, Vanessa White, Ross Borland


Healthier.Happier.Workplaces Initiative Evaluation

CHSD

Queensland Health

2013 - 2015

Healthier.Happier.Workplaces was initiated as “Workplaces for Wellness” under the National Partnership Agreement on Preventive Health (NPAPH) with the aim of reducing the risk of chronic disease by addressing the prevalence of overweight and obesity, improving nutrition and increasing levels of physical activities in adults, children and young people through the implementation of programs in various settings.

In addition to the analysis and synthesis of existing sources of data, additional data and information were collected using a range of methods, including interviews and online surveys to answer the key evaluation questions, and, most importantly, to assist DH and its partners to consider the future of a state-wide approach to promoting and supporting workplace health and wellbeing.

Report (not publicly available): Lewis, V., Marsh, G., Macmillan, J., Silburn, K., Borland, R., & White, V., (2015). Queensland Healthier.Happier.Workplaces Initiative: State-Wide Evaluation. Final Report, October 2015. (AIPCA, La Trobe University. Report commissioned by Queensland Department of Health)

Team members: Virginia Lewis, Geraldine Marsh, Jenny Macmillan, Vanessa White, Kate Silburn, Ross Borland

2011 - 2014

Review of the Victorian Responsible Gambling Foundation Local Community Education and Prevention Model

CHSD

The Victorian Responsible Gambling Foundation

2013 - 2014

The Victorian Responsible Gambling Foundation (VRGF) commissioned the Centre for Health Systems Development (CHSD) at Australian Institute for Primary Care & Ageing (AIPCA) to review the Local Community Education and Prevention (CE&P) model as it was being implemented, and to provide recommendations, if appropriate, regarding future delivery of activity in this area.

Following this project, the VRGF commissioned CHSD to support the development and implementation of the Victorian Responsible Gambling Foundation’s prevention and community education programs, services and strategies.

Report not publicly available.

Team members: Virginia Lewis, Geraldine Marsh, Vanessa White, Jenny Macmillan, Francine Hanley


Connecting Healthcare in Communities (CHIC). Statewide Evaluation

CHSD

Queensland Health

2008 - 2011

The Connecting Healthcare in Communities (CHIC) Initiative was developed by Queensland Health as a ‘proactive approach to establishing partnerships to minimise duplication, improve integration and service coordination and potentially increase the capacity of the health system, to improve the health of Queenslanders.’ The CHIC evaluation was based on an agreed program logic framework that represents the Initiative as it was articulated and understood by Queensland Health and key stakeholders. The evaluation was designed to contribute to a process of reflection and learning about partnership development.

Report not available.

https://www.health.qld.gov.au/

Team members: Kate Silburn, Virginia Lewis, Geraldine Marsh, Jenny Macmillan, Vanessa White, David Williams, Monika Merkes, Hal Swerissen

Mental health

2019 - 2020

.

2015 - 2018

Evaluation of the Department of Veterans’ Affairs (DVA) Goal Attainment Scaling Tool

CHSD

Department of Veterans’ Affairs, Canberra, Australia

2017 - 2018

Goal Attainment Scaling is used within a Department of Veterans’ Affairs (DVA) client’s Rehabilitation Plan to determine appropriate goals for the client, measure those goals against a standardised scale, and measure change and progress in the client’s functioning, employment, social and wellbeing outcomes.

DVA commissioned the Australian Institute for Primary Care & Ageing (AIPCA) to undertake an evaluation of the DVA Goal Attainment Scaling (GAS) Tool. The overarching evaluation research question was: Is GAS a helpful tool in helping clients achieve their rehabilitation goals?

The evaluation comprised:

  • A qualitative component that included semi-structured interviews with 18 rehabilitation providers and 18 clients, and three focus groups with DVA rehabilitation coordinators—one in each of the states coordinating the program—about their experiences with GAS.
  • A review of program documents on the DVA website and a review of a sample of redacted sets of client files.
  • A quantitative component, which to the extent possible analysed DVA-collated GAS data on client outcomes.
  • Investigation of the feasibility of an economic analysis component with a focus on cost-effectiveness.
  • An overarching analysis of themes generated from the findings and their implications for policy and program delivery.

https://www.dva.gov.au/

Team members: Jenny Macmillan, Yvonne Wells, Vanessa White, Deepika Ratnaike and Lynda Matthews with expert advice from Greg Murphy, Virginia Lewis and Allan Shiell


Evaluation of Mental Health Service System Community Partnerships Program

CHSD

St Vincent's Hospital Melbourne

2013 - 2015

Advice and Support to Evaluation of Mental Health Services System Community Partnerships Program for Victorian Transcultural Mental Health.

Team members: Virginia Lewis

2011 - 2014

.

Primary healthcare

2019 - 2020

OPTIMISE: Collaborative improvement of primary health care delivery to the Australian refugee community

CHSD

National Health & Medical Research Council

2016 - 2020

OPTIMISE is a four year (2016-2020) National Health and Medical Research Council (NHMRC) funded Partnership Project to improve primary health care delivery to refugees living in Australia. The Project focuses on three Australian regions with high refugee resettlement: North and West Melbourne (NWM), South East Melbourne (SEM), and South West Sydney (SWS). The OPTIMISE Project brings together 11 national, state and local organisations committed to improving primary health care delivery to refugees and an international team of academics led by Grant Russell and I-Hao Cheng at Monash University (SEM), Virginia Lewis at La Trobe University (NWM), and Mark Harris at UNSW (SWS).

Using an outreach practice facilitation approach, the OPTIMISE Project worked with mainstream general practice to support practice-based quality improvements to systems of care for people with refugee like experiences. Four core areas for practice improvement were addressed, namely a) Identification of patients with refugee experiences, b) Use of Translation and Interpreting Services (TIS), c) Conducting comprehensive health assessment and d) Referral paths. The intervention was completed in September 2019, with results published and disseminated via multiple channels in 2020.

Partners in our region (North Western Melbourne): North Western Melbourne PHN, cohealth (a large community health centre), AMES (Settlement Services), Department of Health & Human Services Victoria, and the Victorian Refugee Health Network.

Publication

Russell, G., Gunatillaka, N., Lewis, V. et al. (2019). The OPTIMISE project: protocol for a mixed methods, pragmatic, quasi-experimental trial to improve primary care delivery to refugees in Australia. BMC Health Services Research 19, 396 (2019). https://doi.org/10.1186/s12913-019-4235-6

Funding: $5 million

Team members: Internal: Virginia Lewis, Geraldine Marsh. External Chief Investigators: Russell, G., Harris, M., Teede, H., Pottie, K., Hogg, W., Meadows, G., Enticott, J., Advocat, J., Cheng, I-Hao


Hepatitis Victoria Evaluation

CHSD

Hepatitis Victoria

2017 - 2019

Hepatitis Victoria is the peak not for profit community organisation in Victoria for people affected by or at risk of viral hepatitis.

Hepatitis Victoria commissioned the Australian Institute for Primary Care & Ageing (AIPCA) to develop an overarching organisation evaluation framework and evaluate several key programs: Love your Liver, Regional HEPReady, Hep B Community Mobilisation, Responding to Stigma and HEPReady AOD Workforce Training.

Hepatitis Victoria was seeking to build a strong evidence base about the quality and effectiveness of the work they undertake to support ongoing work, future funding, and to share knowledge more widely.

Link to page with four evaluation reports: https://www.hepvic.org.au/page/1341/evaluation

Team members: Virginia Lewis, Geraldine Marsh, Vanessa White

2015 - 2018

Innovative Models Promoting Access and Coverage Team (IMPACT). Australian Canadian Joint Centre of Research Excellence

CHSD

Australian Primary Health Care Research Institute (APHCRI) and the Canadian Institutes of Health Research (CIHR)

2013 - 2018

The IMPACT study was a five-year research program that aimed to develop and evaluate models of care that enhance access and reduce unmet need, avoidable emergency department visits and avoidable hospitalisations for vulnerable populations. For more information including publications https://www.impactresearchprogram.com/

It had four main objectives:

  1. To develop a network of partnerships between decision makers, researchers, clinicians and members of the vulnerable communities to support the improvement of access to primary health care for vulnerable populations;
  2. To identify organisational, system level community based primary healthcare interventions designed to improve access to appropriate care for vulnerable populations, and establish the effectiveness and scalability of the most promising organisational innovations;
  3. To support the selection, adaptation and implementation of organisational innovations that align with local populations’ needs and priorities; and
  4. To evaluate the effectiveness and efficiency and further scalability of these organisational innovations.

The interventions were developed and implemented by Local Innovation Partnerships (LIPs) set up in regions of 3 Australian states (New South Wales, South Australia and Victoria) and 3 Canadian provinces (Alberta, Ontario and Québec).

Publications

Russell, G., Kunin, M., Harris, M., Levesque, J. F., Descôteaux, S., Scott, C., Virginia Lewis, Émilie Dionne, Jenny Advocat, Simone Dahrouge, Nigel Stocks, Catherine Spooner, Haggerty, J. (2019). Improving access to primary healthcare for vulnerable populations in Australia and Canada: protocol for a mixed-method evaluation of six complex interventions. BMJ Open, 9(7), 12 pages. doi:10.1136/bmjopen-2018-027869 https://bmjopen.bmj.com/content/bmjopen/9/7/e027869.full.pdf

Funding: $2.5 million each over 5 years

Team members: Internal: Virginia Lewis (Chief Investigator), Kate Silburn, Michaela Willis. External Chief Investigators: Jeannie Haggerty (McGill University and St. Mary’s Hospital Centre), Grant Russell (Monash University), Jean-Frederic Levesque (Agency for Clinical Innovation)  Mark Harris (UNSW), Simone Dahrouge (Bruyère Research Institute, University of Ottawa), Cathie Scott (PolicyWise, University of Calgary), Nigel Stocks (University of Adelaide)


Supporting GPs and Practice Nurses in the Timely Diagnosis of Dementia

ACEBAC

Australian Department of Social Services

2015 - 2016

Funded under the Australian Government's Aged Care Service Improvement and Healthy Ageing Grants this project responded to the Australian Government's priority on improving timely diagnosis of dementia by delivering accredited continuing professional development training on dementia assessment, diagnosis and management to GPs and practice nurses throughout Australia, ACEBAC delivered the GP training component of the project.

Team members: Internal: Margaret Winbolt. External: Allan Shell, Henry Brodaty


Understanding vulnerability in primary health care: Overcoming barriers to consumer transitions through the primary health system

CHSD

Australian Primary Health Care Research Institute

2013 - 2015

This partnership grant funded by the Australian Primary Health Care Research Institute aimed to:

  • Identify potential strategies that can support, smooth transitions for consumers from “specialist” or “targeted” services—which aim to be accessible, clinically and culturally appropriate, timely and affordable when consumers are most vulnerable to poor health and least able to negotiate relationships with mainstream services—to “mainstream” services that can provide effective patient-centred care over the longer term (in particular private GPs).
  • Develop a framework for exploring factors based on theories of access – recognising barriers and facilitators at all levels:
    • Consumers
    • Health professionals
    • Health services/organisations
    • Health systems

This project considered the refugee health response of a large inner suburban community health service in Victoria as a case study to investigate ways to improve the management and coordination of primary health care service delivery to vulnerable consumers over the long term.

Report

Lewis, V., Marsh, G., Hanley, F., Macmillan, J., Morgain, L., Silburn, K., Kalucy, E., Dwyer, J., Rostant, J., Mead, C. (2013). Understanding vulnerability in primary health care: Overcoming barriers to consumer transitions through the primary health system. APHCRI, Australian National University, Canberra, Australia. http://hdl.handle.net/1885/140081

Funding: $150,000

Team members: Internal: Virginia Lewis, Geraldine Marsh, Francine Hanley, Jenny Macmillan, Kate Silburn. External: Lyn Morgain, Libby Kalucy, Judith Dwyer, Jason Rostant, Cathy Mead


2011 - 2014

Connecting Healthcare in Communities (CHIC). Statewide Evaluation

CHSD

Queensland Health

2008 - 2011

The Connecting Healthcare in Communities (CHIC) Initiative was developed by Queensland Health as a ‘proactive approach to establishing partnerships to minimise duplication, improve integration and service coordination and potentially increase the capacity of the health system, to improve the health of Queenslanders.’ The CHIC evaluation was based on an agreed program logic framework that represents the Initiative as it was articulated and understood by Queensland Health and key stakeholders. The evaluation was designed to contribute to a process of reflection and learning about partnership development.

Report not available.

https://www.health.qld.gov.au/

Team members: Kate Silburn, Virginia Lewis, Geraldine Marsh, Jenny Macmillan, Vanessa White, David Williams, Monika Merkes, Hal Swerissen

Strategic

2019 - 2020

Health Equity Guide

CHSD

VicHealth

2020

VicHealth commissioned the Centre for Health Systems Development at AIPCA to support development of resources to guide organisations interested in developing primary prevention projects for people on a low income or people with moderate to severe mental illness.

Team members: Geraldine Marsh, Jenny Macmillan, Virginia Lewis


VicHealth Local Planners’ Consultation

CHSD

VicHealth

2019

The purpose of this project was to inform VicHealth’s future work in providing support to Victorian health planners working on local level health plans.

The consultation aimed to clarify information on data/products currently available, including the VicHealth Indicators, as well as determining the perceived value and current practice of collecting information on community attitudes. The consultation collected information on local planners’ current application of health equity and determinants of health approaches to inform how VicHealth can support local level planners to address the determinants of health inequalities, including the form, timing and audience for capacity building. Feedback on VicHealth funding and communications was captured to guide VicHealth to make decisions about how to structure funding and engagement to better support local government to deliver on their plans.

Local level health planners include local government officers responsible for health, social or community planning, staff working in Primary Care Partnerships (PCPs), and health promotion staff working in Community Health Services (CHS), including Women’s Health Services.

Team members: Geraldine Marsh, Jenny Macmillan, Vanessa White, Virginia Lewis

2015 - 2018

VicHealth Research Grants Investment Review: Stakeholder interviews

CHSD

VicHealth

2018

The project involved interviews with researchers who had applied for VicHealth Research Grants in 2018, including those who were funded and those who were not. The aim was to provide additional information to the VicHealth review of this grants program.

Report not publicly available.

Team members: Jenny Macmillan, Virginia Lewis


Ballarat Community Health: Service Plan and Model of Care (2016 to 2023)

CHSD

Ballarat Community Health Services

2015 - 2016

The project developed a Service Plan and Model of Care for Ballarat Community Health (https://bchc.org.au/) for the period spanning 2016 to 2023.

Elements of the service planning process included:

  1. Consultation with key stakeholders.
  2. A review of existing service provision as well as identifying any unmet areas of need.
  3. Identification of current emerging health and wellbeing needs for Ballarat and the Grampians region, and future development needs for BCH.
  4. A framework for change for the organisation from the base of existing services in order to achieve agreed objectives, changes in services to clients, service structure and profile.
  5. Development of a Service Plan designed to guide sustainable future organisational development in order to respond to community needs and relevant government policy directions.

Report not publicly available.

Team members: Hal Swerissen, Jenny Macmillan


Best practice in Spinal Cord Injury

CHSD

National Trauma Research Institute

2014 - 2015

Facilitation of workshops to develop and implement clinical best practice in spinal cord injury.

Reports arising

Team members: Virginia Lewis

2011 - 2014

Development of Competency Standards in Orthoptics

CHSD

Australian Orthoptic Board

2013 - 2014

CHSD was commissioned to develop professional competency standards for the Australian Orthoptics Board.

Report not available.

Team members: Jenny Macmillan


Clinical Placement Assessment Instruments Harmonisation Project

CHSD

Health Workforce Australia through James Cook University

2012 - 2013

CHSD was commissioned to undertake research and develop a strategy for future harmonisation of Competency Based Clinical Placement Assessment Instruments across tertiary sector allied health training nationally. Key stakeholders were interviewed and a strategy developed.

Report not available.

Team members: Jenny Macmillan, Francine Hanley, Virginia Lewis