If you are living with aphasia, are a family member, a carer or a healthcare professional, we have a number of helpful resources and organisations (Australian & International) that can provide you with additional information and support.
Healthcare Communication Support Resources - including COVID-19
Repository developed by the Aphasia CRE for healthcare professionals working with people with aphasia. It provides resources that can be used to support conversations with people with aphasia or given to people with aphasia or family members to support them during this time. The aim of the repository is to disseminate resources widely and to reduce production time and resource duplication.
Resources have been collected from aphasia professionals internationally, government sources and international health sites and we would like to thank all involved for their contributions
This repository includes resources in both English and other languages
The resource list is updated regularly
Questions should be directed to the source of the link listed
If you have additional unique resources to add, please email with original source information and links or PDF’s
Helpful links for people with aphasia, family & carers
I have aphasia. Where can I find support?
EnableMe Community [external link]: stroke information, videos, tools and conversation with other survivors and carers.
StrokeLine - 1800 787 653: contact us for information and advice on stroke prevention, treatment and recovery.
Aphasia CRE Videos -
Mental health and well-being for people with aphasia: Information with Dr Caroline Baker. Produced for the Aphasia CRE healthcare repository in response to COVID-19. Video: 7.26 minutes long: narrated PowerPoint, which uses short sentences, slowed rate of speech and pictorial support. Provides general information about COVID-19, tips to help mental health and wellbeing, some tips for getting through COVID-19, ideas for home activities and links to support groups for people with aphasia and reliable information.
Psychological care after aphasia Dr Caroline Baker. Video produced for an initiative by Collaboration of Aphasia Triallists and Aphasia Recovery Connection to make research evidence communicatively accessible. The video is 9.41 minutes long: narrated PowerPoint using aphasia friendly format. Provides information about research evidence to address mood problems and depression after aphasia.
I am a carer. Where can I find support?
EnableMe community [external link]: stroke information, videos, tools and conversation with other survivors and carers.
StrokeLine - 1800 787 653: contact us for information and advice on stroke prevention, treatment and recovery.
We welcome you to view the recordings of our Seminars, held each month, we have Australian and International specialist guest presenters to share their expertise and research. The Aphasia CRE provides access to seminars free and welcome you to join our Community of Practice mailing list to receive invitations for upcoming seminars and events.
Seminar # 1 - Technology Solutions to Healthcare Communication. Presented by Prof Leanne Togher, Aphasia CRE Chief Investigator (Jul 2019)
Seminar # 2 - Improving the Quality of Life in Aphasia. The effectiveness of the biographical narrative approach in different settings. Presented by Prof Sabine Corsten. Catholic University of Applied Sciences, Mainz, Germany. (Aug 2019)
Seminar # 3 - Who benefits, and why? Person specific and practice-related predictors of naming treatment response in aphasia. Presented by Ass Prof Mike Dickey, Department of Communication Science and Disorders. University of Pittsburgh, USA. (Sept 2019)
Seminar #4 - Sexuality and intimacy after stroke: is it really any of our business? Presentation by Associate Professor Emma Power, University of Technology Sydney, Graduate School of Health on behalf of the Sydney Sexuality Group. Aphasia CRE Associate Investigator (Oct 2019)
Seminar #5 - Very early aphasia management. Presented by Assoc Prof Erin Godecke Senior Research Fellow at Edith Cowan University. Aphasia CRE Chief Investigator (Nov 2019)
2020 -
Seminar #6 - Neurobiological principles and predictors of aphasia recovery - Presented by Professor David Copland, University of Queensland Aphasia CRE Chief Investigator (Jan 2020)
Seminar #7 - Psychological management of stroke. Presented by Professor Ian Kneebone, University of Technology Sydney Aphasia CRE Chief Investigator (Feb 2020)
Seminar #8 - Hospital care for people with aphasia: A long term perspective, Dr Robyn O'Halloran. La Trobe University.
Seminar #9 -Online aphasia group therapy: feasibility, outcomes, lessons learned. Dr Rachelle Pitt, Director of Research and Innovation for West Moreton Health in Queensland.
Seminar #10 - Understanding and predicting outcomes in aphasia rehabilitation. Prof Swathi Kiran Professor & Doctoral Program Coordinator, Speech, Language and Hearing Sciences, Associate Dean for Research, Sargent College of Health and Rehabilitation Sciences, Boston University
Seminar #11 - Dementia: New ideas for an old problem. -Professor Richard I Lindley, The University of Sydney
Seminar #12- The Australian Stroke Clinical Registry: Progress over 10 years and relevance to those with aphasia. Can we do more? Professor Dominique Cadilhac, Monash University
Seminar #13 - “Improving inclusion in stroke clinical trials and research” - Professor Julie Berhardt
Seminar #14- “Supporting wellbeing through peer-befriending: Results from the SUPERB feasibility randomised controlled trial” - Professor Katerina Hilari, Professor of Acquired Communication Disorders, City University London
Seminar #15 - Preservation of singing skills and rehabilitative efficacy of music in stroke and aphasia - Associate Professor Teppo Särkämo. University of Helsinki. (Oct 2020)
Seminar #16 -Lessons learnt in implementation trials and how to improve implementation of high level evidence in health care settings. Professor Sandy Middleton (Nov 2020) - No recording available for this seminar
Seminar #17 -Living Stroke Guidelines: how does this support best practice care to people with aphasia? - Kelvin Hill from the Stroke Foundation Australia. (Dec 2020)
2021 -
Seminar #18 - The three variants of primary progressive aphasia: What are they and what helps?” - Dr Anna Volkme, University College London, UK. (Feb 2021)
Join our Community of practice for notifications on future seminars, news, events and updates.
Tweetchats are hosted by our Post Doctoral team at Aphasia CRE, if you are on twitter, use the hashtag #AphasiaCREchat to follow along or contribute to discussions. As there is a lot of discussion about resources, if you wish to access resources from the discussions, please search the transcripts of the chats below.
Dr. Katie Strong, Assistant Professor in the Department of Communication Sciences and Disorders at Central Michigan University talks with Robyn O’Halloran, a Senior Lecturer in the Discipline of Speech Pathology at La Trobe University. Robyn is the lead author of the Inpatient Functional Communication Interview: Screening, Assessment and Intervention (IFCI:SAI), published by Plural in November 2019. (Nov 2019)
In this episode:
learn the importance of supporting your patients participate in their health care while they are in the hospital and how that might impact their overall health outcomes.
be challenged to imagine how your role as an SLP in acute care can broaden by addressing the barriers to communication in the hospital environment.
hear about a new tool, the Inpatient Functional Communication Interview (IFCI) for assessment in acute care.
listen to questions posed from SLPs working in acute care about IFCI -
Professor Miranda Rose, Director of the Aphasia CRE talks about evidence based aphasia therapy across the continuum of care. (Nov 2019)
Enable Me - Hidden Disability We speak to stroke survivor and StrokeSafe Ambassador Toni Arfaras, psychologist and researcher Professor Ian Kneebone, and social worker Siobhan McGinniss from StrokeLine. Many of the challenges that people face after stroke, including fatigue, memory loss, even speech difficulties, aren’t visible to those around them. In this podcast, we talk about the impact of invisible and hidden disabilities, how to make others understand and some things you can do to live well while dealing with them.
Video clips below include interviews and resources from the Aphasia CRE Research Team.
Professor Miranda Rose: talks about why she is passionate about studying Aphasia - Interview for La Trobe Research Connect.
Mental health and well-being for people with aphasia: Information with Dr Caroline Baker. Produced for the Aphasia CRE healthcare repository in response to COVID-19. Video: 7.26 minutes long: narrated PowerPoint, which uses short sentences, slowed rate of speech and pictorial support. Provides general information about COVID-19, tips to help mental health and wellbeing, some tips for getting through COVID-19, ideas for home activities and links to support groups for people with aphasia and reliable information.
Psychological care after aphasia Dr Caroline Baker. Video produced for an initiative by Collaboration of Aphasia Triallists and Aphasia Recovery Connection to make research evidence communicatively accessible. The video is 9.41 minutes long: narrated PowerPoint using aphasia friendly format. Provides information about research evidence to address mood problems and depression after aphasia.
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