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Resources
If you are living with aphasia, are a family member, a carer or a healthcare professional, we have a number of helpful resources and organisations (Australian & International) that can provide you with additional information and support.
Helpful links for people with aphasia, family & carers
Aphasia CRE Resources
Seminar Series Video Recordings
The Aphasia CRE Seminar Series is available on our YouTube channel- youtube.com/@aphasiacre
Australian and international specialist guest presenters share their expertise and research.
Access to seminars is free and we welcome you to join our Community of Practice or subscribe to our News Blog to receive invitations for upcoming seminars and events.
All past seminars can be viewed on our YouTube channel.
Professional Development - Health Professionals are welcome to watch these seminars free of charge to aid in your professional development.
Education - Disemination and use of our Seminar Videos are free for non commercial use, please credit the Aphaisa CRE if you are sharing our resources.
Visit our YouTube channel - youtube.com/@aphasiacre
Healthcare Communication Support Resources - including COVID-19
Repository developed by the Aphasia CRE for healthcare professionals working with people with aphasia. It provides resources that can be used to support conversations with people with aphasia or given to people with aphasia or family members to support them during this time. The aim of the repository is to disseminate resources widely and to reduce production time and resource duplication.
Resources for health professionals to assist you in working with people with aphasia, download a PDF or Excel file
(Occasionally links time out, please try again)
- Resources have been collected from aphasia professionals internationally, government sources and international health sites and we would like to thank all involved for their contributions
- This repository includes resources in both English and other languages
- The resource list is updated regularly
- Questions should be directed to the source of the link listed
- If you have additional unique resources to add, please email with original source information and links or PDF’s
Guidelines for Aphasia friendly documentation developed by the UK Stroke Association: accessible_information_guidelines.pdf1_.pdf (stroke.org.uk)
Video Abstract Resources (CATs)
Developing an aphasia-friendly video abstract
The aim of this guide is to help researchers to produce a video abstract for people with aphasia. It contains practical support in terms of technical tips, slide/video templates, software and technology suggestions, reflections on video production and examples of aphasia-friendly video abstracts.
This project was produced by the following researchers from the Centre of Research Excellence in Aphasia Recovery and Rehabilitation (Aphasia CRE), supported by funding from the Tavistock Trust for Aphasia and the Collaboration of Aphasia Trialists and the Aphasia CRE:
- Caroline Baker
- Marcella Carragher
- Sam Harvey
- John Pierce
- Miranda Rose
- Ciara Shiggins
- Sarah Wallace
List of documents within this guide
- Developing an Aphasia-friendly video abstract - The ‘why’ and ‘how’ of creating an abstract. Read first!
- Video abstracts – PowerPoint tips - Tips and tricks for things like animations, images, etc., held within a PowerPoint document
- Template for aphasia-friendly video abstracts - A template PowerPoint to get you started – edit as needed
- Pierce et al. abstract - The original PowerPoint document of a completed video abstract – to show you how it comes together
- Storyboard template - A template table to make a storyboard
Download the Aphasia-friendly video abstract guide here
COMPARE Resources
The main results of the COMPARE research trial are now published in the Journal of Neurology, Neurosurgery and Psychiatry. The link to the publication is here: http://dx.doi.org/10.1136/jnnp-2021-328422
We have created aphasia friendly information about the trial that you can find here:
More detailed information on COMPARE is available on the Compare Trial Webpage .
Build your own Aphasia Talk for Community Awareness of Aphasia
Build Your own Aphasia Talk Increasing Community Awareness of Aphasia - PowerPoint template for presentations
ASK Therapist & Secondary Prevention Manuals
- Before we Begin
- Setting Your Goals
- Choose Your Topics
- Goal Development Handout
- Finding the Positive
- Staying Connected
- Your Story
- Living the Learning
- Not Just Words
- Summing Up
- Before We Begin
- Setting Your Goals
- Choose Your Topics
- Stroke - What is it?
- Medications to Prevent Stroke
- Lifestyle Changes for Stroke Prevention
- Stroke Prevention Planning
- Stroke - What are the Risk Factors?
- Summing Up
- Medicine List
Intervention programs
ASK intervention program
Secondary Stroke Intervention program
Training manuals
ASK therapist manual
Secondary Stroke Prevention therapist manual
Accessible goal setting for rehabilitation professionals
Access G-AP (v2021)
Resources for Rehabilitation staff (speech pathologists, physiotherapists, occupational therapists, clinical or neuropsychologists, rehabilitation assistants, nurses, and dieticians who set goals with people with aphasia often lack confidence and receive inadequate training and support to set goals with people with aphasia. These resources can be used to frame the discussion and record the goals.
This co-developed accessible set of resources (manual, log book, and single page action plan for the person with aphasia) helps rehabilitation professionals set goals with people with aphasia. A full description of how it was developed is here
Authors: Eleanor Brown, Lesley Scobbie, Linda Worrall, Ruth McMeniman, Marian Brady.
Title: Access G-AP.
Date developed: 2021
Rehabilitation staff (speech pathologists, physiotherapists, occupational therapists, clinical or neuropsychologists, rehabilitation assistants, nurses, and dieticians who set goals with people with aphasia often lack confidence and receive inadequate training and support to set goals with people with aphasia. These resources can be used to frame the discussion and record the goals.
Tweetchat Transcripts - @aphasiacre
#AphasiaCREchat
Tweetchats are hosted by our Post Doctoral team at Aphasia CRE, if you are on twitter, use the hashtag #AphasiaCREchat to follow along or contribute to discussions. As there is a lot of discussion about resources, if you wish to access resources from the discussions, please search the transcripts of the chats below.
Podcasts
- Kathryn Pettigrove. Making Aphasia Groups Work Podcast. Aphasia Access Podcast Episode #86
- Understand the range of roles speech-language pathologists can play within community aphasia groups.
- Learn about the skills required to successfully facilitate aphasia groups.
- Identify different models for community aphasia group facilitation.
- Aoife Reardon. Collaboration with Epilepsy Queensland produced video about our research as part of their education and engagement.
Epilepsy Queensland was invited to participate in a research study looking into Presurgical Language Mapping for people with epilepsy. The study aims to investigate how MRI can be best used to assess language function in people with epilepsy when planning for surgery in order to improve treatment outcomes and lead to clearer information on the risks and benefits of surgery. - Jas Sekhon. Counselling education to enable SLPs to support psychological wellbeing in people with post-stroke aphasia. Podcast. Aphasia Access Podcast Episode #95
- Learn about the stepped model for psychological care.
- Understand how speech-language pathologists can support psychological well-being for people with post-stroke aphasia.
- Identify the role of speech-language pathologists within an interdisciplinary team providing psychological care for people with post-stroke aphasia.
- Jas Sekhon. Enabling Counselling Practice in Aphasia Rehabilitation Podcast. Speech Pathology Aust. Podcast S04 E39
- Jasvinder explores her current research into counselling training for speech pathologist to support the psychological wellbeing of people with post-stroke aphasia.
- Dana Wong. Neuropsychological Rehabilitation After Acquired Brain Injury. Navigating Neuropsychology Podcast
- This episode is a conversation about neuropsychological interventions for adult patients with acquired brain injuries such as TBI, stroke, or hypoxia. We define and differentiate different terms for neuropsychological interventions, we list and describe specific cognitive interventions, we discuss the importance of emotional symptoms following brain injuries, and we explain characteristics of intervention effectiveness.
- Bonnie Cheng. Podcast on ABC Radio National Ockham’s Razor Podcast presentation and episode at ABC radio. Listen here
- Brooke Ryan. Podcast on Episode #75: Family Impacts on Children When a Parent has Aphasia: A Conversation with Brooke Ryan. Listen Here
- Caroline Baker. Podcast on Optimising mental health and wellbeing after aphasia. at Speech Pathology Australia podcast series. Listen Here
- David Copland. Podcast on Neuroplasticity and Aphasia Recovery. Little Girl Dreams (Spotify), by Chelsea Reid, a person with aphasia who completed our TeleCHAT program. Listen Here
- Aphasia Access - Dr Robyn O'Halloran - Broadening the role of the SLP in acute care assessment
- learn the importance of supporting your patients participate in their health care while they are in the hospital and how that might impact their overall health outcomes.
- be challenged to imagine how your role as an SLP in acute care can broaden by addressing the barriers to communication in the hospital environment.
- hear about a new tool, the Inpatient Functional Communication Interview (IFCI) for assessment in acute care.
- listen to questions posed from SLPs working in acute care about IFCI -
Dr. Katie Strong, Assistant Professor in the Department of Communication Sciences and Disorders at Central Michigan University talks with Robyn O’Halloran, a Senior Lecturer in the Discipline of Speech Pathology at La Trobe University. Robyn is the lead author of the Inpatient Functional Communication Interview: Screening, Assessment and Intervention (IFCI:SAI), published by Plural in November 2019. (Nov 2019)
In this episode:
- Aphasia Access - Mental Health Concerns in People with Aphasia In Conversation with Prof Ian Kneebone - Ian Kneebone is head of discipline within the discipline of Clinical Psychology in the Graduate School of Health at the University of Technology – Sydney. In this episode, Jerry Hoepner speaks with Ian about our roles in addressing mental health concerns among individuals with aphasia.
- Enable Me - Hidden Disability We speak to stroke survivor and StrokeSafe Ambassador Toni Arfaras, psychologist and researcher Professor Ian Kneebone, and social worker Siobhan McGinniss from StrokeLine.
Many of the challenges that people face after stroke, including fatigue, memory loss, even speech difficulties, aren’t visible to those around them. In this podcast, we talk about the impact of invisible and hidden disabilities, how to make others understand and some things you can do to live well while dealing with them.
We welcome you to listen to podcasts about Aphasia Research from our Aphasia CRE Team.
Professor Miranda Rose, Director of the Aphasia CRE talks about evidence based aphasia therapy across the continuum of care. (Nov 2019)
Videos
- Professor Miranda Rose: talks about why she is passionate about studying Aphasia - Interview for La Trobe Research Connect.
- Mental health and well-being for people with aphasia: Information with Dr Caroline Baker. Produced for the Aphasia CRE healthcare repository in response to COVID-19. Video: 7.26 minutes long: narrated PowerPoint, which uses short sentences, slowed rate of speech and pictorial support. Provides general information about COVID-19, tips to help mental health and wellbeing, some tips for getting through COVID-19, ideas for home activities and links to support groups for people with aphasia and reliable information.
- Psychological care after aphasia Dr Caroline Baker. Video produced for an initiative by Collaboration of Aphasia Triallists and Aphasia Recovery Connection to make research evidence communicatively accessible. The video is 9.41 minutes long: narrated PowerPoint using aphasia friendly format. Provides information about research evidence to address mood problems and depression after aphasia.
Video clips below include interviews and resources from the Aphasia CRE Research Team.
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