If you are living with aphasia, are a family member, a carer or a healthcare professional, we have a number of helpful resources and organisations (Australian & International) that can provide you with additional information and support.
For more information see the COMPARE see the Compare Trial Webpages resources section below.
How to develop an aphasia-friendly video abstract - The aim of this guide is to help researchers to produce a video abstract for people with aphasia
Healthcare Communication Support Resources - including COVID-19 - A Repository developed by the Aphasia CRE for healthcare professionals working with people with aphasia providing resources that can be used to support conversations and communication with people with aphasia
ASK Therapist & Secondary Prevention Manuals See links below
Helpful links for people with aphasia, family & carers
I have aphasia. Where can I find support?
EnableMe Community [external link]: stroke information, videos, tools and conversation with other survivors and carers.
StrokeLine - 1800 787 653: contact us for information and advice on stroke prevention, treatment and recovery.
Aphasia CRE Videos -
Mental health and well-being for people with aphasia: Information with Dr Caroline Baker. Produced for the Aphasia CRE healthcare repository in response to COVID-19. Video: 7.26 minutes long: narrated PowerPoint, which uses short sentences, slowed rate of speech and pictorial support. Provides general information about COVID-19, tips to help mental health and wellbeing, some tips for getting through COVID-19, ideas for home activities and links to support groups for people with aphasia and reliable information.
Psychological care after aphasia Dr Caroline Baker. Video produced for an initiative by Collaboration of Aphasia Triallists and Aphasia Recovery Connection to make research evidence communicatively accessible. The video is 9.41 minutes long: narrated PowerPoint using aphasia friendly format. Provides information about research evidence to address mood problems and depression after aphasia.
I am a carer. Where can I find support?
EnableMe community [external link]: stroke information, videos, tools and conversation with other survivors and carers.
StrokeLine - 1800 787 653: contact us for information and advice on stroke prevention, treatment and recovery.
We welcome you to view the recordings of our Seminars, held each month, we have Australian and International specialist guest presenters to share their expertise and research. The Aphasia CRE provides access to seminars free and welcome you to join our Community of Practice mailing list to receive invitations for upcoming seminars and events.
Professional Development - You are welcome to watch these seminars free of charge. To aid us in tracking the impact of these seminars, please click to email to let us know which seminar you are watching - how many people, profession/s, company, country and any feedback.
Seminar #34 - TeleCHAT: Preliminary findings from the first ICAP to be delivered via telerehabilitation. Presented by Dr Annie Hill (Aug 2022)
Seminar #33 - Driving quality improvement through Meaningful Evaluation of Aphasia SeRvicES (MEASuRES). Presentation By Dr Sarah J Wallace (July 2022)
Seminar #32 - Accessible healthcare for people with aphasia through trained staff. Presentation by Dr Jytte Isaksen (June 2022)
Seminar #30 - ‘Isn’t it obvious? You have to involve us in the design phase, because we will be the ones who end up using it’: Developing and testing ListenIn. Presented by Dr Sonia Brownsett (April 2022)
Seminar #29 - What does the ASK study tell us about preventing depression in aphasia? Presentation by: Professor Emerita Linda Worrall (Feb 2022)
2021 Seminars -
Seminar #18 - The three variants of primary progressive aphasia: What are they and what helps?” - Dr Anna Volkmer, University College London, UK. (Feb 2021)
Seminar #19 - What is therapy? Treatment fidelity and aphasia. Presented by Dr Emily Brogan (March 2021) (apologies for the broken link, we are working on fixing it)
Seminar #20 - Language and Epilepsy: Reasons for Speech and Language Pathologist involvement. Presentation by Dr Sonia Brownsett & Dr Lisa Gillinder (April 2021)
Seminar #21 - Management of communication disability in the first 90 days after stroke: a scoping review, Presentation by Dr Caroline Baker (May 2021)
Seminar #22 - Clinical Effectiveness of The Queen Square Intensive Comprehensive Aphasia Service for Patients with Post-Stroke Aphasia with Professor Alex Leff: Professor of Cognitive Neurology and Consultant Neurologist, University College London (June 2021) Presentation slides
Seminar #23 - Predicting and explaining speech and language outcome and recovery in adult stroke survivors. Presentation by Professor Cathy Price, University College London. No recording is available for this seminar **
Seminar #24 - Applying the clinical “crystal ball” to aphasia treatment outcome. Presentation by Professor Julius Fridriksson, University of South Carolina.
Seminar #25 - Constraint Induced Aphasia Therapy or Multi-Modality Aphasia Therapy: which is better and for whom? Results of the COMPARE RCT investigating CIAT Plus, M-MAT and usual care in people with chronic post-stroke aphasia presented by Prof Miranda Rose
Seminar #26 - Low-moderate intensity aphasia intervention – a pilot trial of Constraint Induced Aphasia Therapy and Multi-Modality Aphasia Therapy, presentation by Dr John Pierce, La Trobe University
Seminar #27 - Reporting on LUNA - a novel discourse intervention for people with mild to moderate aphasia. Presentation by Dr Madeline Cruice and Dr Lucy Dipper, University of London.
Seminar #28 - Family-focused management of people with aphasia who have children. Presentation by Dr Brooke Ryan.
Join our Community of Practice mailing list for notifications on future seminars, news, events and updates.
2020 Seminars-
Seminar #6 - Neurobiological principles and predictors of aphasia recovery - Presented by Professor David Copland, University of Queensland Aphasia CRE Chief Investigator (Jan 2020)
Seminar #7 - Psychological management of stroke. Presented by Professor Ian Kneebone, University of Technology Sydney Aphasia CRE Chief Investigator (Feb 2020)
Seminar #8 - Hospital care for people with aphasia: A long term perspective, Dr Robyn O'Halloran. La Trobe University.
Seminar #9 -Online aphasia group therapy: feasibility, outcomes, lessons learned. Dr Rachelle Pitt, Director of Research and Innovation for West Moreton Health in Queensland.
Seminar #10 - Understanding and predicting outcomes in aphasia rehabilitation. Prof Swathi Kiran Professor & Doctoral Program Coordinator, Speech, Language and Hearing Sciences, Associate Dean for Research, Sargent College of Health and Rehabilitation Sciences, Boston University
Seminar #11 - Dementia: New ideas for an old problem. -Professor Richard I Lindley, The University of Sydney
Seminar #12- The Australian Stroke Clinical Registry: Progress over 10 years and relevance to those with aphasia. Can we do more? Professor Dominique Cadilhac, Monash University
Seminar #13 - “Improving inclusion in stroke clinical trials and research” - Professor Julie Berhardt
Seminar #14- “Supporting wellbeing through peer-befriending: Results from the SUPERB feasibility randomised controlled trial” - Professor Katerina Hilari, Professor of Acquired Communication Disorders, City University London
Seminar #15 - Preservation of singing skills and rehabilitative efficacy of music in stroke and aphasia - Associate Professor Teppo Särkämo. University of Helsinki. (Oct 2020)
Seminar #16 -Lessons learnt in implementation trials and how to improve implementation of high level evidence in health care settings. Professor Sandy Middleton (Nov 2020) - No recording available for this seminar **
Seminar #17 -Living Stroke Guidelines: how does this support best practice care to people with aphasia? - Kelvin Hill from the Stroke Foundation Australia. (Dec 2020)
2019 Seminars-
Seminar # 1 - Technology Solutions to Healthcare Communication. Presented by Prof Leanne Togher, Aphasia CRE Chief Investigator (Jul 2019)
Seminar # 2 - Improving the Quality of Life in Aphasia. The effectiveness of the biographical narrative approach in different settings. Presented by Prof Sabine Corsten. Catholic University of Applied Sciences, Mainz, Germany. (Aug 2019)
Seminar # 3 - Who benefits, and why? Person specific and practice-related predictors of naming treatment response in aphasia. Presented by Ass Prof Mike Dickey, Department of Communication Science and Disorders. University of Pittsburgh, USA. (Sept 2019)
Seminar #4 - Sexuality and intimacy after stroke: is it really any of our business? Presentation by Associate Professor Emma Power, University of Technology Sydney, Graduate School of Health on behalf of the Sydney Sexuality Group. Aphasia CRE Associate Investigator (Oct 2019)
Seminar #5 - Very early aphasia management. Presented by Assoc Prof Erin Godecke Senior Research Fellow at Edith Cowan University. Aphasia CRE Chief Investigator (Nov 2019)
** Please note Seminars are recorded only when we receive permission to do so from the presenter. There are many reasons why the presenter may not wish for these to be recorded and we are grateful to all of our presenters for their generous contributions to the Aphasia CRE seminar series. There is also the possibility that technology will not be our friend on the day so we recommend registering and attending on the day.
Healthcare Communication Support Resources - including COVID-19
Repository developed by the Aphasia CRE for healthcare professionals working with people with aphasia. It provides resources that can be used to support conversations with people with aphasia or given to people with aphasia or family members to support them during this time. The aim of the repository is to disseminate resources widely and to reduce production time and resource duplication.
Resources have been collected from aphasia professionals internationally, government sources and international health sites and we would like to thank all involved for their contributions
This repository includes resources in both English and other languages
The resource list is updated regularly
Questions should be directed to the source of the link listed
If you have additional unique resources to add, please email with original source information and links or PDF’s
The aim of this guide is to help researchers to produce a video abstract for people with aphasia. It contains practical support in terms of technical tips, slide/video templates, software and technology suggestions, reflections on video production and examples of aphasia-friendly video abstracts.
The main results of the COMPARE research trial are now published in the Journal of Neurology, Neurosurgery and Psychiatry. The link to the publication is here: http://dx.doi.org/10.1136/jnnp-2021-328422
We have created aphasia friendly information about the trial that you can find here:
Accessible goal setting for rehabilitation professionals
Access G-AP (v2021)
Resources for Rehabilitation staff (speech pathologists, physiotherapists, occupational therapists, clinical or neuropsychologists, rehabilitation assistants, nurses, and dieticians who set goals with people with aphasia often lack confidence and receive inadequate training and support to set goals with people with aphasia. These resources can be used to frame the discussion and record the goals.
This co-developed accessible set of resources (manual, log book, and single page action plan for the person with aphasia) helps rehabilitation professionals set goals with people with aphasia. A full description of how it was developed is here
Authors: Eleanor Brown, Lesley Scobbie, Linda Worrall, Ruth McMeniman, Marian Brady.
Title: Access G-AP.
Date developed: 2021
Rehabilitation staff (speech pathologists, physiotherapists, occupational therapists, clinical or neuropsychologists, rehabilitation assistants, nurses, and dieticians who set goals with people with aphasia often lack confidence and receive inadequate training and support to set goals with people with aphasia. These resources can be used to frame the discussion and record the goals.
Tweetchats are hosted by our Post Doctoral team at Aphasia CRE, if you are on twitter, use the hashtag #AphasiaCREchat to follow along or contribute to discussions. As there is a lot of discussion about resources, if you wish to access resources from the discussions, please search the transcripts of the chats below.
Understand the range of roles speech-language pathologists can play within community aphasia groups.
Learn about the skills required to successfully facilitate aphasia groups.
Identify different models for community aphasia group facilitation.
Aoife Reardon. Collaboration with Epilepsy Queensland produced video about our research as part of their education and engagement. Epilepsy Queensland was invited to participate in a research study looking into Presurgical Language Mapping for people with epilepsy. The study aims to investigate how MRI can be best used to assess language function in people with epilepsy when planning for surgery in order to improve treatment outcomes and lead to clearer information on the risks and benefits of surgery.
Jas Sekhon. Counselling education to enable SLPs to support psychological wellbeing in people with post-stroke aphasia. Podcast.Aphasia Access Podcast Episode #95
Learn about the stepped model for psychological care.
Understand how speech-language pathologists can support psychological well-being for people with post-stroke aphasia.
Identify the role of speech-language pathologists within an interdisciplinary team providing psychological care for people with post-stroke aphasia.
Jasvinder explores her current research into counselling training for speech pathologist to support the psychological wellbeing of people with post-stroke aphasia.
This episode is a conversation about neuropsychological interventions for adult patients with acquired brain injuries such as TBI, stroke, or hypoxia. We define and differentiate different terms for neuropsychological interventions, we list and describe specific cognitive interventions, we discuss the importance of emotional symptoms following brain injuries, and we explain characteristics of intervention effectiveness.
Bonnie Cheng. Podcast on ABC Radio National Ockham’s Razor Podcast presentation and episode at ABC radio. Listen here
Brooke Ryan. Podcast on Episode #75: Family Impacts on Children When a Parent has Aphasia: A Conversation with Brooke Ryan. Listen Here
Caroline Baker. Podcast on Optimising mental health and wellbeing after aphasia. at Speech Pathology Australia podcast series. Listen Here
David Copland. Podcast on Neuroplasticity and Aphasia Recovery. Little Girl Dreams (Spotify), by Chelsea Reid, a person with aphasia who completed our TeleCHAT program. Listen Here
Dr. Katie Strong, Assistant Professor in the Department of Communication Sciences and Disorders at Central Michigan University talks with Robyn O’Halloran, a Senior Lecturer in the Discipline of Speech Pathology at La Trobe University. Robyn is the lead author of the Inpatient Functional Communication Interview: Screening, Assessment and Intervention (IFCI:SAI), published by Plural in November 2019. (Nov 2019)
In this episode:
learn the importance of supporting your patients participate in their health care while they are in the hospital and how that might impact their overall health outcomes.
be challenged to imagine how your role as an SLP in acute care can broaden by addressing the barriers to communication in the hospital environment.
hear about a new tool, the Inpatient Functional Communication Interview (IFCI) for assessment in acute care.
listen to questions posed from SLPs working in acute care about IFCI -
Professor Miranda Rose, Director of the Aphasia CRE talks about evidence based aphasia therapy across the continuum of care. (Nov 2019)
Enable Me - Hidden Disability We speak to stroke survivor and StrokeSafe Ambassador Toni Arfaras, psychologist and researcher Professor Ian Kneebone, and social worker Siobhan McGinniss from StrokeLine. Many of the challenges that people face after stroke, including fatigue, memory loss, even speech difficulties, aren’t visible to those around them. In this podcast, we talk about the impact of invisible and hidden disabilities, how to make others understand and some things you can do to live well while dealing with them.
Videos
Video clips below include interviews and resources from the Aphasia CRE Research Team.
Professor Miranda Rose: talks about why she is passionate about studying Aphasia - Interview for La Trobe Research Connect.
Mental health and well-being for people with aphasia: Information with Dr Caroline Baker. Produced for the Aphasia CRE healthcare repository in response to COVID-19. Video: 7.26 minutes long: narrated PowerPoint, which uses short sentences, slowed rate of speech and pictorial support. Provides general information about COVID-19, tips to help mental health and wellbeing, some tips for getting through COVID-19, ideas for home activities and links to support groups for people with aphasia and reliable information.
Psychological care after aphasia Dr Caroline Baker. Video produced for an initiative by Collaboration of Aphasia Triallists and Aphasia Recovery Connection to make research evidence communicatively accessible. The video is 9.41 minutes long: narrated PowerPoint using aphasia friendly format. Provides information about research evidence to address mood problems and depression after aphasia.
