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Resources

If you are living with aphasia, are a family member, a carer or a healthcare professional, we have a number of helpful resources and organisations (Australian & International) that can provide you with additional information and support.

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COMPARE Research Trial results have been published in the Journal of Neurology, Neurosurgery and Psychiatry. Link to the publication

We have created aphasia friendly information about the trial that you can find here:

For more information see  the COMPARE see the Compare Trial Webpages resources section below.

  • How to develop an aphasia-friendly video abstract - The aim of this guide is to help researchers to produce a video abstract for people with aphasia
  • Healthcare Communication Support Resources - including COVID-19 - A Repository developed by the Aphasia CRE for healthcare professionals working with people with aphasia providing resources that can be used to support conversations and communication with people with aphasia
  • ASK Therapist & Secondary Prevention Manuals
    See links below

Helpful links for people with aphasia, family & carers

I have aphasia. Where can I find support?

Aphasia CRE Videos -
  • Mental health and well-being for people with aphasia: Information with Dr Caroline Baker. Produced for the Aphasia CRE healthcare repository in response to COVID-19. Video: 7.26 minutes long: narrated PowerPoint, which uses short sentences, slowed rate of speech and pictorial support. Provides general information about COVID-19, tips to help mental health and wellbeing, some tips for getting through COVID-19, ideas for home activities and links to support groups for people with aphasia and reliable information.
  • Psychological care after aphasia  Dr Caroline Baker. Video produced for an initiative by Collaboration of Aphasia Triallists and Aphasia Recovery Connection to make research evidence communicatively accessible. The video is 9.41 minutes long: narrated PowerPoint using aphasia friendly format. Provides information about research evidence to address mood problems and depression after aphasia.

I am a carer. Where can I find support?

Helpful links

Frequently Asked Questions

Aphasia CRE Resources

Seminar Series Video Recordings

Aphasia CRE Seminar Series

We welcome you to view the recordings of our Seminars, held each month, we have Australian and International specialist guest presenters to share their expertise and research. The Aphasia CRE provides access to seminars free and welcome you to join our Community of Practice mailing list to receive invitations for upcoming seminars and events.

Professional Development - You are welcome to watch these seminars free of charge. To aid us in tracking the impact of these seminars, please click to email to let us know which seminar you are watching - how many people, profession/s, company, country and any feedback. 

2022 Seminars -

    • Seminar #34 -  TeleCHAT: Preliminary findings from the first ICAP to be delivered via telerehabilitation. Presented by Dr Annie Hill (Aug 2022)
    • Seminar #33 -  Driving quality improvement through Meaningful Evaluation of Aphasia SeRvicES (MEASuRES). Presentation By Dr Sarah J Wallace (July 2022)
    • Seminar #32 - Accessible healthcare for people with aphasia through trained staff. Presentation by Dr Jytte Isaksen (June 2022)
    • Seminar #30 - ‘Isn’t it obvious? You have to involve us in the design phase, because we will be the ones who end up using it’: Developing and testing ListenIn. Presented by Dr Sonia Brownsett (April 2022)
    • Seminar #29 - What does the ASK study tell us about preventing depression in aphasia? Presentation by: Professor Emerita Linda Worrall (Feb 2022)

    2021 Seminars -

  • Seminar #18 - The three variants of primary progressive aphasia: What are they and what helps?” - Dr Anna Volkmer, University College London, UK. (Feb 2021)
  • Seminar #19 - What is therapy? Treatment fidelity and aphasia. Presented by Dr Emily Brogan (March 2021) (apologies for the broken link, we are working on fixing it)
  • Seminar #20 - Language and Epilepsy: Reasons for Speech and Language Pathologist involvement. Presentation by Dr Sonia Brownsett & Dr Lisa Gillinder (April 2021)
  • Seminar  #21 - Management of communication disability in the first 90 days after stroke: a scoping review, Presentation by Dr Caroline Baker (May 2021)
  • Seminar #22 - Clinical Effectiveness of The Queen Square Intensive Comprehensive Aphasia Service for Patients with Post-Stroke Aphasia with Professor Alex Leff: Professor of Cognitive Neurology and Consultant Neurologist, University College London (June 2021) Presentation slides
  • Seminar #23 - Predicting and explaining speech and language outcome and recovery in adult stroke survivors. Presentation by Professor Cathy Price, University College London. No recording is available for this seminar **
  • Seminar #24 - Applying the clinical “crystal ball” to aphasia treatment outcome. Presentation by Professor Julius Fridriksson, University of South Carolina.
  • Seminar #25 - Constraint Induced Aphasia Therapy or Multi-Modality Aphasia Therapy: which is better and for whom? Results of the COMPARE RCT investigating CIAT Plus, M-MAT and usual care in people with chronic post-stroke aphasia presented by Prof Miranda Rose
  • Seminar #26 - Low-moderate intensity aphasia intervention – a pilot trial of Constraint Induced Aphasia Therapy and Multi-Modality Aphasia Therapy, presentation by Dr John Pierce, La Trobe University
  • Seminar #27 - Reporting on LUNA - a novel discourse intervention for people with mild to moderate aphasia. Presentation by Dr Madeline Cruice and Dr Lucy Dipper, University of London.
  • Seminar #28 -  Family-focused management of people with aphasia who have children. Presentation by Dr Brooke Ryan.

Join our Community of Practice mailing list for notifications on future seminars, news, events and updates.

2020 Seminars-

  • Seminar #6 - Neurobiological principles and predictors of aphasia recovery - Presented by Professor David Copland, University of Queensland Aphasia CRE Chief Investigator (Jan 2020)
  • Seminar #7 - Psychological management of stroke. Presented by Professor Ian Kneebone, University of Technology Sydney Aphasia CRE Chief Investigator (Feb 2020)
  • Seminar #8 - Hospital care for people with aphasia: A long term perspective, Dr Robyn O'Halloran. La Trobe University.
  • Seminar #9 -Online aphasia group therapy: feasibility, outcomes, lessons learned.  Dr Rachelle Pitt, Director of Research and Innovation for West Moreton Health in Queensland.
  • Seminar #10 - Understanding and predicting outcomes in aphasia rehabilitation.  Prof Swathi Kiran Professor & Doctoral  Program Coordinator, Speech, Language and Hearing Sciences, Associate Dean for Research, Sargent College of Health and Rehabilitation Sciences, Boston University
  • Seminar #11 - Dementia: New ideas for an old problem. -Professor Richard I Lindley, The University of Sydney
  • Seminar #12 - The Australian Stroke Clinical Registry: Progress over 10 years and relevance to those with aphasia. Can we do more? Professor Dominique Cadilhac, Monash University
  • Seminar #13 - “Improving inclusion in stroke clinical trials and research” - Professor Julie Berhardt
  • Seminar #14 - “Supporting wellbeing through peer-befriending: Results from the SUPERB feasibility randomised controlled trial” - Professor Katerina Hilari, Professor of Acquired Communication Disorders, City University London
  • Seminar #15 - Preservation of singing skills and rehabilitative efficacy of music in stroke and aphasia - Associate Professor Teppo Särkämo. University of Helsinki. (Oct 2020)
  • Seminar #16 - Lessons learnt in implementation trials and how to improve implementation of high level evidence in health care settings. Professor Sandy Middleton (Nov 2020) - No recording available for this seminar **
  • Seminar #17 - Living Stroke Guidelines: how does this support best practice care to people with aphasia? - Kelvin Hill from the Stroke Foundation Australia. (Dec 2020)

    • 2019 Seminars-

  • Seminar # 1 - Technology Solutions to Healthcare Communication. Presented by Prof Leanne Togher, Aphasia CRE Chief Investigator (Jul 2019)
  • Seminar # 2 -  Improving the Quality of Life in Aphasia. The effectiveness of the biographical narrative approach in different settings. Presented by Prof Sabine Corsten. Catholic University of Applied Sciences, Mainz, Germany. (Aug 2019)
  • Seminar # 3 - Who benefits, and why? Person specific and practice-related predictors of naming treatment response in aphasia. Presented by Ass Prof Mike Dickey, Department of Communication Science and Disorders. University of Pittsburgh, USA. (Sept 2019)
  • Seminar #4 - Sexuality and intimacy after stroke: is it really any of our business? Presentation by Associate Professor Emma Power, University of Technology Sydney, Graduate School of Health on behalf of the Sydney Sexuality Group. Aphasia CRE Associate Investigator  (Oct 2019)
  • Seminar #5 - Very early aphasia management. Presented by Assoc Prof Erin Godecke  Senior Research Fellow at Edith Cowan University. Aphasia CRE Chief Investigator  (Nov 2019)

** Please note Seminars are recorded only when we receive permission to do so from the presenter.  There are many reasons why the presenter may not wish for these to be recorded and we are grateful to all of our presenters for their generous contributions to the Aphasia CRE seminar series.  There is also the possibility that technology will not be our friend on the day so we recommend registering and attending on the day.

Healthcare Communication Support Resources - including COVID-19

Repository developed by the Aphasia CRE for healthcare professionals working with people with aphasia. It provides resources that can be used to support conversations with people with aphasia or given to people with aphasia or family members to support them during this time. The aim of the repository is to disseminate resources widely and to reduce production time and resource duplication.

Resources for health professionals to assist you in working with people with aphasia, download a PDF or  Excel file
(Occasionally links time out, please try again)

  • Resources have been collected from aphasia professionals internationally, government sources and international health sites and we would like to thank all involved for their contributions
  • This repository includes resources in both English and other languages
  • The resource list is updated regularly
  • Questions should be directed to the source of the link listed
  • If you have additional unique resources to add, please email with original source information and links or PDF’s

Guidelines for Aphasia friendly documentation developed by the UK Stroke Association: accessible_information_guidelines.pdf1_.pdf (stroke.org.uk)

Video Abstract Resources (CATs)

Developing an aphasia-friendly video abstract

The aim of this guide is to help researchers to produce a video abstract for people with aphasia. It contains practical support in terms of technical tips, slide/video templates, software and technology suggestions, reflections on video production and examples of aphasia-friendly video abstracts.

This project was produced by the following researchers from the Centre of Research Excellence in Aphasia Recovery and Rehabilitation (Aphasia CRE), supported by funding from the Tavistock Trust for Aphasia and the Collaboration of Aphasia Trialists and the Aphasia CRE:

  • Caroline Baker
  • Marcella Carragher
  • Sam Harvey
  • John Pierce
  • Miranda Rose
  • Ciara Shiggins
  • Sarah Wallace

List of documents within this guide

  • Developing an Aphasia-friendly video abstract - The ‘why’ and ‘how’ of creating an abstract. Read first!
  • Video abstracts – PowerPoint tips - Tips and tricks for things like animations, images, etc., held within a PowerPoint document
  • Template for aphasia-friendly video abstracts - A template PowerPoint to get you started – edit as needed
  • Pierce et al. abstract - The original PowerPoint document of a completed video abstract – to show you how it comes together
  • Storyboard template -  A template table to make a storyboard

Download all files in this guide [Zip file]

COMPARE Resources - NEW!

The main results of the COMPARE research trial are now published in the Journal of Neurology, Neurosurgery and Psychiatry. The link to the publication is here:   http://dx.doi.org/10.1136/jnnp-2021-328422

We have created aphasia friendly information about the trial that you can find here:

Build your own Aphasia Talk for Community Awareness of Aphasia

Build Your own Aphasia Talk Increasing Community Awareness of Aphasia - PowerPoint template for presentations

ASK Therapist & Secondary Prevention Manuals

Tweetchat Transcripts - @aphasiacre

#AphasiaCREchat

Tweetchats are hosted by our Post Doctoral team at Aphasia CRE, if you are on twitter, use the hashtag #AphasiaCREchat to follow along or contribute to discussions. As there is a lot of discussion about resources, if you wish to  access resources from the discussions, please search  the  transcripts of the chats below.

Podcasts

    We welcome you to listen to podcasts about Aphasia Research from our Aphasia CRE Team.

  • Aphasia Access - Dr Robyn O'Halloran - Broadening the role of the SLP in acute care assessment 

      Dr. Katie Strong, Assistant Professor in the Department of Communication Sciences and Disorders at Central Michigan University talks with Robyn O’Halloran, a Senior Lecturer in the Discipline of Speech Pathology at La Trobe University. Robyn is the lead author of the Inpatient Functional Communication Interview: Screening, Assessment and Intervention (IFCI:SAI), published by Plural in November 2019. (Nov 2019)

      In this episode:

    • learn the importance of supporting your patients participate in their health care while they are in the hospital and how that might impact their overall health outcomes.
    • be challenged to imagine how your role as an SLP in acute care can broaden by addressing the barriers to communication in the hospital environment.
    • hear about a new tool, the Inpatient Functional Communication Interview (IFCI) for assessment in acute care.
    • listen to questions posed from SLPs working in acute care about IFCI -

    • Professor Miranda Rose,  Director of the Aphasia CRE talks about evidence based aphasia therapy across the continuum of care. (Nov 2019)

  • Aphasia Access - Mental Health Concerns in People with Aphasia In Conversation with  Prof Ian Kneebone - Ian Kneebone is head of discipline within the discipline of Clinical Psychology in the Graduate School of Health at the University of Technology – Sydney. In this episode, Jerry Hoepner speaks with Ian about our roles in addressing mental health concerns among individuals with aphasia.
  • Enable Me - Hidden Disability We speak to stroke survivor and StrokeSafe Ambassador Toni Arfaras, psychologist and researcher Professor Ian Kneebone, and social worker Siobhan McGinniss from StrokeLine.
    Many of the challenges that people face after stroke, including fatigue, memory loss, even speech difficulties, aren’t visible to those around them. In this podcast, we talk about the impact of invisible and hidden disabilities, how to make others understand and some things you can do to live well while dealing with them.

Videos

    Video clips below include interviews and resources from the Aphasia CRE Research Team.

  • Professor Miranda Rose: talks about why she is passionate about studying Aphasia - Interview for La Trobe Research Connect.
  • Mental health and well-being for people with aphasia: Information with Dr Caroline Baker. Produced for the Aphasia CRE healthcare repository in response to COVID-19. Video: 7.26 minutes long: narrated PowerPoint, which uses short sentences, slowed rate of speech and pictorial support. Provides general information about COVID-19, tips to help mental health and wellbeing, some tips for getting through COVID-19, ideas for home activities and links to support groups for people with aphasia and reliable information.
  • Psychological care after aphasia  Dr Caroline Baker. Video produced for an initiative by Collaboration of Aphasia Triallists and Aphasia Recovery Connection to make research evidence communicatively accessible. The video is 9.41 minutes long: narrated PowerPoint using aphasia friendly format. Provides information about research evidence to address mood problems and depression after aphasia.

Annual Report

Newsletters

Publications 2022

Program 1 - Neurobiological predictors and social determinants
  • *Cheng, B. B. Y., Ryan, B. J., Copland, D. A. and Wallace, S.J. (2022). Prognostication in post-stroke aphasia: perspectives of people with aphasia on receiving information about recovery. Neuropsychological Rehabilitation, 1-32. doi: 10.1080/09602011.2022.2051565
  • *Cheng, B., Ryan, B., Copland, D and Wallace, S (2022). Prognostication in poststroke aphasia: perspectives of significant others of people with aphasia on receiving information about recovery. American Journal of Speech-Language Pathology, 31 (2), 1-16Lowe, J., Wallace, S., Sam, S and Young, A (2021). Minimum data and core outcomes for subacute rehabilitation: A scoping review. Clinical Rehabilitation, 36 (3), 1-19.
  • *Young, Adrienne., Chung, H, Chaplain, A, Lowe, J., STARS Rehabilitation Dataset Development Group and Wallace, Sarah J. (2022). Development of a minimum dataset for subacute rehabilitation: a three-round e-Delphi consensus study. BMJ Open, 12 (3) e058725, e058725.
Program 2 - Treatment Effectiveness
  • Baker, C., Foster, A., D’Souza, S., Godecke, E., Shiggins, C., Lamborn, E., Lanyon, K., Kneebone, I., & Rose, M. (2021). Management of communication disability in the first 90 days after stroke: A scoping review. Disability and Rehabilitation
  • Larkman, C.S., Mellahn, K., Han, W. & Rose, M.L. (2022) Aphasia rehabilitation when speech pathologists and clients do not share the same language: a scoping review, Aphasiology, DOI: 10.1080/02687038.2022.2035672
  • Mellahn, K., Larkman, C., Lakhani, A., Siyambalapitiya, S., & Rose, M. L. (2021). The nature of inpatient rehabilitation for people with aphasia from culturally and linguistically diverse backgrounds: a scoping review. Topics in stroke rehabilitation, 1-11.doi:10.1080/10749357.2021.2008599
  • Brady, M., Ali, M, VandenBerg, K., Williams …Rose, M, Godecke E.  et al (In press, accepted March 15 2022). Precision rehabilitation for aphasia by patient age, sex, aphasia severity, and time since stroke? A prespecified, systematic review based, individual participant data, network, subgroup meta-analysis. International Journal of Stroke.
  • Brady, M., Ali, M, VandenBerg, K., Williams …Rose, M, Godecke E.  et al (2021). Dosage, intensity and frequency of language therapy for aphasia: an individual participant data network meta-analysis. Stroke, early online
  • Brady, M., Ali, M., VandenBerg, K., Williams,…Rose, M Godecke E, ..Wright, H.(2021). Utilising a systematic review-based approach to create a database of individual participant data for meta- and network meta-analyses: the RELEASE database of aphasia after stroke, Aphasiology
  • Ali, M., Brady, M., Vandenburg, K., Williams, L., .….Rose, M Godecke E,….Wright, H.(2021). Predictors of post-stroke aphasia recovery: a systematic review informed individual participant data (IPD) meta-analysis. Stroke
  • Brady, M., Ali, M., VandenBerg, K., Williams,…Rose, M., Godecke E, ..Wright, H.(2020). Communicating simply, but not too simply- reporting of participants language interventions for aphasia after stroke. International Journal of Speech Language Pathology,22(3), 302-312.
  • Brady, M., Ali, M., VandenBerg, K., Williams,…Rose, M Godecke E, ..Wright, H.(2020). RELEASE: a protocol for a systematic review based, individual participant data, meta- and network meta-analysis, of complex speech-language therapy interventions for stroke-related aphasia. Aphasiology, 34(2), 137-157.
  • Rose ML, Nickels L, Copland D, Godecke E, et al Results of the COMPARE trial of Constraint-induced or Multimodality Aphasia Therapy compared with usual care in chronic post-stroke aphasia Journal of Neurology, Neurosurgery & Psychiatry Published Online First: 08 April 2022. doi: 10.1136/jnnp-2021-328422
  • Breitenstein, C., Hilari, K., Menahemi-Falkov, M., Rose, M., Wallace, S., Brady, M., Hillis, A., Kiran, S., Szaflarski, J., Tippett, D., Visch-Brink, E., and Willmes, K. (2022). Operationalising treatment success in aphasia rehabilitation, Aphasiology
  • Behn, N., Harrison, M., Brady, M., Breitenstein, C., Carragher, M., Fridriksson, J., Godecke, E., Hillis, A., Kelly, H., Palmer, R., Rose, M., Thomas, S., Tippett D., Hilari, K. (2022). Developing, monitoring and reporting of fidelity in aphasia trials: Core recommendations from the Collaboration of Aphasia Trialists (CATs) Trial for Aphasia Panel. Aphasiology
  • Cuperus, P., de Kok, D., de Aguiar, V., & Nickels, L. (2022). Understanding User Needs for Digital Aphasia Therapy: Experiences and Preferences of Speech and Language Therapists. Aphasiology, 1-23
  • Godecke E, Brogan E, Ciccone N, Rose M, Armstrong E, Whitworth A, Ellery F, Holland A, Middleton S, Rai T, Hankey GJ, Cadilhac DA, Bernhardt J. Treatment fidelity monitoring, reporting and findings in a complex aphasia intervention trial: A substudy of the Very Early Rehabilitation for SpEech (VERSE) trial. Trials; 2022 (in press)
  • Barnden R, Cadilhac D, Lannin N, Kneebone I, Hersh D, Godecke E, Stolwyk R, Purvis T, Nicks R, Farquhar M, Gleeson S, Gore C, Andrew NE. Development and field testing of a standardised goal setting package for person-centered discharge care planning in stroke. PEC Innovation, 2022; https://doi.org/10.1016/j.pecinn.2021.100008
Program 3 -  Technology for Healthcare Communication
  • Miao, M., Power, E., Rietdijk, R., Debono, D., Brunner, M., Salomon, A., Mcculloch, B., Wright, M.R., Welsh, M., Tremblay, B., Rixon, C., Williams, L., Morrow, R., Evain, J., & Togher, L. (2022). Coproducing knowledge of the implementation of complex digital health interventions for adults with acquired brain injury and their communication partners: Protocol for a mixed methods study. JMIR Research Protocols, 11(1), e35080. https://doi.org/10.2196/35080
  • Nichol, L., Pitt, R., Wallace, S. J., Rodriguez, A. D., & Hill, A. J. (2022). “There are endless areas that they can use it for”: speech-language pathologist perspectives of technology support for aphasia self-management. Disability and Rehabilitation: Assistive Technology, 1–16. https://doi.org/10.1080/17483107.2022.2037758/SUPPL_FILE/IIDT_A_2037758_SM7545.DOC
  • Marshall S, Welch-West P, Ferri C, Faltynek P, Janzen S, Togher L, Teasell R. (2021). Interventions for Cognition and Cognitive-Communication Post Acquired Brain Injury. In Teasell R, Cullen N, Marshall S, Janzen S, Faltynek P, Bayley M, editors. Evidence-Based Review of Moderate to Severe Acquired Brain Injury. Version 13.0: p1-175
  • Behn, N., Francis, J., Togher, L., Hatch, E., Moss, B., Hilari, K. (2021). Description and effectiveness of communication partner training in TBI: A systematic review. Journal of Head Trauma Rehabilitation, 36 (1), 56-71, Publish ahead of print DOI: 10.1097/HTR.0000000000000580.
  • Brassel, S., Power, E., Campbell, A., Brunner, M., & Togher, L. (2021). Recommendations for the design and implementation of virtual reality for acquired brain injury rehabilitation: Systematic Review. Journal of Medical Internet Research, 23, (7), doi: 10.2196/26344
  • Brunner, M., Hemsley, B., Togher, L., Dann, S., & Palmer, S. (2021). Social media and people with traumatic brain injury (TBI): A meta-synthesis of research informing a framework for rehabilitation clinical practice, policy, and training, American Journal of Speech Language Pathology, 30 (1), 19-33, doi: 10.1080/09638288.2019.1685604
  • Brunner, M., Togher, L., Palmer, S., Dann, S. & Hemsley, H. (2021). Rehabilitation professionals’ views on social media use in traumatic brain injury rehabilitation. Disability and Rehabilitation, 43 (14), 1955-1964.
  • Keegan, L. & Togher, L. (2021). Discourse analysis of humor after traumatic brain injury. American Journal of Speech Language Pathology, 30 (2), 949-961, doi: 10.1044/2020_AJSLP-20-00059.
  • Miao M, Power E, Rietdijk R, Debono D, Brunner M, Salomon A, McCulloch B, Wright MR, Welsh M, Tremblay B, Rixon C, Williams L, Morrow R, Evain J, Togher L (in press). Co-producing knowledge of the implementation of complex digital health interventions for adults with acquired brain injury and their communication partners: A mixed-methods study protocol. JMIR Research Protocols.
  • Miao, M., Power, E., Rietdijk, R., Brunner, M., Debono, D., & Togher, L. (2021). A Web-Based Service Delivery Model for Communication Training After Brain Injury: Protocol for a Mixed Methods, Prospective, Hybrid Type 2 Implementation-Effectiveness Study. JMIR Research Protocols, 10(12), e31995.
  • Miao, M., Power, E., Rietdijk, R., Togher, L., Brunner, M. (2021). Implementation of online psychosocial interventions for people with neurological conditions and their caregivers: A systematic review protocol. Digital Health.
  • Miao, M., Power, E., Rietdijk, R., Brunner, M., Togher, L., Debono, D. (2021). The Social Brain Toolkit: Implementation considerations from the development of a suite of novel online social communication training programs for adults with acquired brain injury and their communication partners. Journal of Clinical Practice in Speech-Language Pathology, 23(2), 75-80.
  • Nichol, L., Wallace, S.J., Pitt, R., Rodriguez, A.D., & Hill, A.J. (in press). Communication partner perspectives of aphasia self-management and the role of technology: an in-depth qualitative exploration. Disability and Rehabilitation. DOI: 10.1080/09638288.2021.1988153
  • Steel, J., Elbourn, E. & Togher, L. (2021). Narrative discourse intervention after traumatic brain injury: A systematic review of the literature. Topics in Language Disorders, January/March 2021 - Volume 41 - Issue 1 - p 47-72, doi: 10.1097/TLD.0000000000000241

Book Chapters

  • Togher, L., Elbourn, E. & Keegan, L (2021). Assessment and treatment of speech and language disorders following traumatic brain injury. (Chapter 67, 1026-1039). In Brain Injury Medicine, Third Edition, Nathan Zasler, Douglas Katz, Ross Zafonte (Eds), New York: Demos Medical.
  • Hoepner, J. & Togher, L. (2022). Living with cognitive communication disorders, (Chapter 22, 543-580). Aphasia and related neurogenic communication disorders, 3rd Edition. Papathanasiou, I. & Coppens, P. (Eds). Burlington, MA: Jones & Bartlett.
Program 4 - Optimising Mental Health and Wellbeing
  • Kneebone, I. I., Munday, I., Van Zanden, B., Thomas, S., & Newton-John, T., (in press). Psychological interventions for post stroke pain: A systematic review. Neuropsychological Rehabilitation. Advance online publication.  https://doi.org/10.1080/09602011.2022.2070506
  • El-Helou, R., Ryan, B., & Kneebone, I. (2022). Development of the “Kalmer” relaxation intervention: Co-design with stroke survivors with aphasia. [Advance online publication]  Disability and Rehabilitation, [Advance online publication] https://doi.org/10.1080/09638288.2022.2069294
  • Pettigrove, K., Lanyon, L. E., Attard, M. C., Vuong, G., & Rose, M. L. (2021). Characteristics and impacts of community aphasia group facilitation: a systematic scoping review. Disability and Rehabilitation. Advance online publication. https://doi.org/10.1080/09638288.2021.1971307
Program 5 -  Aphasia Inclusion Hub
  • Lamborn, E., Carragher, M., O’Halloran, R. and Rose, M. (submitted) Optimising healthcare communication for people with aphasia in hospital: Key directions for future research.
  • Shiggins, C., Ryan, B., O’Halloran, R., Power, E., Bernhardt, J., Lindley, R.I., McGurk, G., Hankey, G.J., & Rose, M.L. (submitted). Towards the consistent inclusion of people with aphasia in stroke research irrespective of discipline: position paper and recommendations.
  • Bunning, Karen, Jimoh, Oluseyi Florence, Heywood, Rob, Killett, Anne, Ryan, Hayley, Shiggins, Ciara and Langdon, Peter E. (2022). How are adults with capacity-affecting conditions and associated communication difficulties included in ethically sound research? A documentary-based survey of ethical review and recruitment processes under the research provisions of the Mental Capacity Act (2005) for England and Wales. BMJ Open, 12 (3) e059036, e059036. doi: 10.1136/bmjopen-2021-059036
  • Shiggins, Ciara, Coe, Donna, Gilbert, Louise, Research Collaboration, Aphasia and Mares, Kathryn (2022). Development of an “Aphasia-Accessible Participant in Research Experience Survey” through co-production. Aphasiology, 1-34. doi: 10.1080/02687038.2021.1996532
  • Jimoh, Oluseyi Florence, Ryan, Hayley, Killett, Anne, Shiggins, Ciara, Langdon, Peter E., Heywood, Rob and Bunning, Karen (2021). A systematic review and narrative synthesis of the research provisions under the Mental Capacity Act (2005) in England and Wales: recruitment of adults with capacity and communication difficulties. PLoS One, 16 (9), e0256697. doi: 10.1371/journal.pone.0256697
  • Hersh, Deborah, Israel, Mark and Shiggins, Ciara (2021). The ethics of patient and public involvement across the research process: towards partnership with people with aphasia. Aphasiology, 1-27. doi: 10.1080/02687038.2021.1896870
  • Ryan, Hayley, Heywood, Rob, Jimoh, Oluseyi, Killett, Anne, Langdon, Peter E., Shiggins, Ciara and Bunning, Karen (2021). Inclusion under the Mental Capacity Act (2005): A review of research policy guidance and governance structures in England and Wales. Health Expectations, 24 (1), 152-164. doi: 10.1111/hex.13165

Book Chapters

  • McMenamin, R., Shiggins, C. & Isaksen, J. What is PPI – a guide for researchers (title TBC). In Lyons, R and McAllister, L.

Accessible goal setting for rehabilitation professionals

Access G-AP (v2021)

Resources for Rehabilitation staff (speech pathologists, physiotherapists, occupational therapists, clinical or neuropsychologists, rehabilitation assistants, nurses, and dieticians who set goals with people with aphasia often lack confidence and receive inadequate training and support to set goals with people with aphasia. These resources can be used to frame the discussion and record the goals.

This co-developed accessible set of resources (manual, log book, and single page action plan for the person with aphasia)  helps rehabilitation professionals set goals with people with aphasia. A full description of how it was developed is here

Authors: Eleanor Brown, Lesley Scobbie, Linda Worrall, Ruth McMeniman, Marian Brady.

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