Conferences
As part of our goal to effectively disseminate and translate research, we have collated (in one place) all relevant LIDS-produced resources for people with a disability, their families, carers and associated services.
Research Seminar Series
2023 Research Seminar Series
OCTOBER 11, 2023
Quality Hospital Care for People with Intellectual Disabilities (online resource launch)
In October 2023, Professor Teresa Iacono and Professor Christine Bigby launched the Living With Disability Research Centre's newest online resource.
The resource is for people involved in the hospital journey of adults with intellectual disabilities.
It presents a Framework for Quality Hospital Care based on evidence of practices in hospitals.
Using this framework will help hospital staff, disabiltiy support staff and families to support people with intellectual disabilities as they journey through a hospital.
The resource is here: https://www.hospitalinclusion.au/
Slides from the presentations:
Preamble - Iacono & Bigby
Hospital Project Launch - Iacono
OCTOBER 5, 2023
La Trobe University Ideas & Society Program | Disability and Australian Society: How Well Are We Doing?
In October 2023, Living with Disability Research Centre Director Professor Christine Bigby moderated a panel discussion on disability and Australian society as part of La Trobe University's Ideas & Society Program.
The panelists were Rhonda Galbally, the author of “Lifeboat”, the recent Quarterly Essay, Micheline Lee, and El Gibbs, the Director of Policy for the Disability Network Advocacy Australia.
SEPTEMBER 13, 2023
Two presentations about supporting participation of people with intellectual disabilities in community and their own lives
Our September 2023 online seminar featured two social scientists whose research focuses on the participation of people with intellectual disabilities.
Urban geographer Associate Professor Ilan Wiesel from the University of Melbourne presents on the experiences of people with intellectual disabilities in community libraries.
LiDs doctoral candidate Charity Sims-Jenkins presents on her PhD research, on the influence of client stories on the way disability staff support choice and control for people with intellectual disabilities.
Slides from the presentations:
Libraries as places of belonging and exclusion for people with intellectual disabilities - Wiesel
The influence of stories on disability staff’s support for choice and control - Sims-Jenkins
AUGUST 9, 2023
Our August 2023 seminar featured two presentations about new research on the experiences of people with disabilities in organisational governance structures.
Dr Alan Hough, director at Purpose at Work, presents the findings from a study that interviewed people with disabilities who were directors and were on the boards of a range of different organisations.
Dr Bernadette Curryer from Side By Side Advocacy NSW talks about findings from the Inclusive Governance Project, which has explored how people with intellectual disabilities can be included on the boards and committees of community organisations.
Slides from the presentations:
Inclusion of people with intellectual disability at a governance level - Curryer
The additional emotional effort of board directors with disabilities - Hough
JULY 12, 2023
Two studies: one on effective support coordination and the other on outcomes when people move to individual apartments.
Our July seminar features presentations from two of our colleagues from the Summer Foundation. The Summer Foundation aims to permanently stop young people with disability being forced into aged care and has a longstanding research partnership with LiDs.
Dr Sharyn McDonald presented the findings of recent research that investigated factors affecting the delivery of support coordination services to NDIS participants. Emeritus Professor Jacinta Douglas presented interim findings from a study about the experiences of people with disability and complex needs after two years in new, individualised specialist disability accommodation (SDA) apartments.
Slides from the presentations:
“Know Everything, Be Everything”: Skills, Attributes and Challenges for Effective Support Coordination in the National Disability Insurance Scheme - McDonald
“Having moved and being able to be quite independent.” Outcomes over two years for people with disability and complex needs after moving into new individualised apartments - Douglas
JUNE 14, 2023
The Legacy of the Kew Cottages + changing ideas of intellectual disabilities.
Our June 2023 Online Seminar featured Dr Lee-Ann Monk and Dr David Henderson, the co-authors of a new book, Failed Ambitions: Kew Cottages and Changing Ideas of Intellectual Disabilities. They were followed by LiDs Director Professor Christine Bigby who authored the book’s epilogue.
A gripping history, both topical and timely, this history of Melbourne’s Kew Children’s Cottages (1887–2008) is the challenging story of an institution that failed its residents – and it is vividly relevant to today, when the rights of people with disabilities are the subject of a royal commission.
Failed Ambitions was published on June 1 2023 through Monash University Press. This new website contains further information about the history of the Kew Cottages: https://www.kewcottageshistory-latrobe.com.au/
Failed Ambitions can be purchased here: https://publishing.monash.edu/product/failed-ambitions/
Slides from the presentations:
'A distinct advance on anything yet done for the feeble-minded children of Australia’? Kew Children’s Cottages, 1887-1907 - Monk
The boy tied to a stake - Henderson
Epilogue – Change and Continuity for People with Intellectual Disabilities - Bigby
APRIL 12, 2023
The experiences of LGBTQA+ people with disability.
Our April 2023 online seminar was concerned with the lives of LGBTQA+ people with disabilities and the barriers to inclusion and acceptance that they face.
Professor Adam Bourne and Dr Natalie Amos from the Australian Research Centre in Sex, Health and Society (ARCHS) present the findings of their research which was commissioned by the Disability Royal Commission. Co researcher and self-advocate Kathryn Bartlett and PhD candidate Tessa May-Zirnsak present findings from a study about self-determination and belonging for LGBTQ adults with intellectual disabilities who use disability services
Slides from the presentations:
Violence, abuse, neglect and exploitation of LGBTQA+ people with disability: a secondary analysis of data from two national surveys - Bourne
Factors associated with experiences of abuse among lesbian, gay, bisexual, trans, queer, and asexual (LGBTQA+) adults with disability in Australia - Amos
"Because it's who I am”: Self-determination and belonging for LGBTQ adults with intellectual disability - Zirnsak & Bartlett
MARCH 9, 2023
The conundrums of group homes: research evidence and evidence-based resources.
LiDs Director Professor Christine Bigby presents a summary of findings from a recent review of the evidence about best practice in group homes, prepared for the NDIS Quality and Safeguards Commission as part its Own Motion Inquiry. Dr Lincoln Humphreys previews new online training resources on Skills for Active Support.
Slides from the presentations:
The conundrums of group homes - Bigby
Previewing Skills for Active Support: new online training resource - Humphreys
2022 Research Seminar Series
DECEMBER 14, 2023
Engaging people with neurological disability: quality support and co-design
This seminar draws on the work of researchers from the Summer Foundation, a key partner of the Living with Disability Research Centre. PhD candidate Megan Topping presents a model of support for people with neurological disability based on her studies with people with disability, support workers and close others. Dr Kate D’Cruz reports on the design, implementation and evaluation of a co-design project aimed to empower people with disability living in aged care to make decisions about housing options.
Slides from the presentations:
“You’re supporting the whole person”: Model of quality support grounded in the experience of adults with neurological disability, disability support workers and close others - Topping
Strengthening opportunities for people with neurological disability to live independently: A co-design project - D'Cruz
NO NOVEMBER SEMINAR
OCTOBER 12, 2022
International perspectives on the impact of COVID 19 on people with intellectual disabilities and family carers
LiDs researcher Dr Tal Araten-Bergman and Dr Carmit-Noa Shpigelman from the University of Haifa, Israel, present on family members’ experiences supporting adults with intellectual disabilities in supported accommodation in Israel during the early stages of the pandemic in Israel. A/Professor Christine Linehan from University College, Dublin, presents the preliminary findings of a study that surveyed (in August-September 2020) the experiences of carers of people with developmental disabilities during the pandemic across 12 different countries.
Slides from the presentations:
"I kept telling him that we did not abandon him": family members’ experiences supporting adults in supported accommodation during the COVID‐19 pandemic - Araten-Bergman and Shpigelman
Caregivers’ perceptions of the global impact of COVID-19 - Linehan
SEPTEMBER 14, 2022
Fetal Alcohol Spectrum Disorder (FASD) awareness and practitioner views
LiDs research fellow Dr Kerryn Bagley and FASD parent advocate Ms Angelene Bruce speak about FASD awareness. Professor Anita Gibbs from the University of Otago, NZ, presents on practitioner views on understanding and helping youth living with FASD.
Slides from the presentations:
Fetal Alcohol Spectrum Disorder (FASD): Hidden in plain sight - Bagley & Bruce
Best Practices for Justice: Practitioner views on understanding and helping youth living with Fetal Alcohol Spectrum Disorder (FASD) - Gibbs
AUGUST 10, 2022
Better access to hospital and mental health services for people with intellectual disabilities
Our first presenter Professor Teresa Iacono presents on work in progress, which is translating prior research into a new online training resource about delivering quality hospital care for adults with cognitive disabilities. Our second presenter Dr Jo Spong speaks about the capacity of regional and rural mental health services to support people with intellectual disabilities.
Slides from the presentations:
Increasing Hospital Access and Quality of Care for People with Cognitive Disabilities - Iacono
Preparedness of a Regional Rural Mental Health Workforce to Support People with Intellectual Disabilities - Spong
JULY 13, 2022
Supported decision-making: measuring change
Our first presenter Emeritus Professor Jacinta Douglas reviews the development and features of the Decision Support Questionnaire (DSQ), which is a reliable measure of change in support practice. Our second presenter, LiDs director Professor Christine Bigby presents the findings from an evaluation of training and the adoption of a supported decision-making framework by the Public Trustee Queensland.
Slides from the presentations:
Development and Preliminary Evaluation of the Decision Support Questionnaire (DSC) - Douglas
Evaluation of a Structured Decision-making Framework used by the Public Trustee Queensland - Bigby
JUNE 8, 2022
Including people with intellectual disabilities in the mainstream
Our first presenter Professor Ilan Wiesel speaks about how mainstream services understand and operationalize inclusive services for people with intellectual disabilities. Our second presenter Dr. Ellen van Holstein speaks about the impacts of the digitization of services on the lives of people with intellectual disabilities.
Slides from the presentations:
Mainstreaming, differentiation and individualisation: inclusion of people with intellectual disability in mainstream services - Wiesel
People with intellectual disabilities and the digitisation of services - van Holstein
MAY 11, 2022
Improving oral health for people with intellectual disabilities
Our first presenter Dr Nathan Wilson focuses on the roles caregivers can take in promoting oral health for people with developmental and intellectual disabilities. Our second presenter Dr Matthew Lim identifies some of the major systemic barriers to better oral health experienced by Australians with disability.
Slides from the presentations:
Beyond the dental chair: The role of caregivers in promoting oral health - Wilson
'Filling in the gaps': Where the problems lie in adresssing the oral health of Australians with disability - Lim
APRIL 13, 2022
Thinking about governance of disability services and the paradox of using behaviour interventions for emotional issues
Our first presentation from Dr Alan Hough reviews literature from other sectors to examine whether boards of directors of disability service providers can govern their organisations’ quality and safeguarding. Our second presentation by Adjunct Professor Jennifer Clegg provides an argument for the use of emotional interventions to manage distress among people with intellectual disabilities.
Slides from the presentations:
Governing for quality and safeguarding: A new arena for boards of directors of disability service providers? What can be learnt from other sectors? - Hough
Helping distressed people with intellectual disabilities to manage their chaotic emotions: The paradox - Clegg
MARCH 9, 2022
People with intellectual disabilities planning for the future and support for decision making
Our first seminar for 2022 focuses on two interconnected themes - support for decision making and futures planning. Both can have a lasting impact on the lives of people with intellectual disabilities.
Slides from the presentations:
Planning for the future among older parents of adults with intellectual disabilities - Walker
Making or supporting decisions? An analysis of the decision making practice of New South Wales guardians - Macnab
2021 Research Seminar Series
DECEMBER 8, 2021
Reflections on the NDIS and social inclusion
Our final seminar for the year will review two recently published books exploring the National Disability Insurance Scheme (NDIS). The presentations will look at the successes and failures of the NDIS and the ongoing issues around achieving the social inclusion of people with intellectual disabilities.
Slides from the presentations:
An overview of and reflections from the book The National Disability Insurance Scheme: An Australian Public Policy Experiment - Mhairi Cowden and Claire McCullagh
Still in the underground? Why the social inclusion of people with intellectual disabilities remains an elusive goal in neoliberal societies - Dr David Treanor (No slides were used for this presentation).
NOVEMBER 10, 2021
Skills for working with people with intellectual disabilities
Our first presentation focuses on workforce skills for working with people with intellectual disabilities who have mental illness. And our second presentation reviews the knowledge base about communication, and how that knowledge base informs good communication support.
Slides from the presentations:
He doesn't communicate, I just know what he wants: The complexity of communication for people with intellectual disabilities - Iacono
OCTOBER 13, 2021
Planning with and supporting people with acquired disabilities
This seminar features presentations by two researchers from our partner organisation, the Summer Foundation.
Slides from the presentations:
'They treat you like a person, they ask you what you want': Exploring factors that influence the quality of paid disability support - Topping
Hospital to home: Evaluating planning process for people with acquired disability and complex support needs - Cubis
SEPTEMBER 8, 2021
Histories of the Kew Cottages: The 1996 fire and the 2008 closure
Our September Seminar features two historians delving into the history of the Kew Cottages, the oldest institution for people with intellectual disabilities in Australia, which finally closed in 2008. The seminar will offer a snapshot of a wider, co-authored history of the Kew Cottages, which we hope to publish next year.
Slides from the presentations:
The Kew Cottages Fire in 1996 - Broome
'It's a lonely world out there': Deinstitutionalisation and the closure of the Kew Cottages - Henderson
AUGUST 11, 2021
Snapshots of research about improving the lives of people with cognitive disabilities
This seminar focuses on some of the outcomes of the collaborative partnership between the Living with Disability Research Centre, La Trobe University, and the Summer Foundation. It will provide an overview of the research program with examples of recently completed projects and preliminary findings from current projects.
Slides from the presentations:
Oliver
D'Cruz
JULY 14, 2021
Observing the quality of staff practice
This seminar explores the benefits of using observational methods to assess the quality of staff practice in services for people with intellectual disabilities.
Reviewing observational methods for measuring quality of support. Professor Christine Bigby, Director Living with Disability Research Centre, La Trobe University
Psychometric evalutation of the Active Support Measure. Dr Lincoln Humphreys, Research Fellow, Living with Disability Research Centre, La Trobe University
Developing the Observing Staff Support tool for regulators and managers. Dr Tal Araten-Bergman, Research Fellow, Living with Disability Research Centre, La Trobe University
Slides from these presentations: July_Seminar - 2021
JUNE 9, 2021
Revisiting issues of ageing with disability: Continuing challenges of bridging service systems
This seminar launched the Handbook on Ageing with Disability published by Routledge and edited by Michelle Putnam and Christine Bigby.
Knowledge-building in the field of ageing with disability: Where are we at? What else do we need to know. Professor Michelle Putnam - Simmons University (USA)
Slides from this presentation - Putnam
Supporting ageing people with intellectual disability in group homes: Past present and future. Dr Tal Araten-Bergman, Research Fellow, Living with Disability Research Centre, La Trobe University
Slides form this presentation - Araten-Bergman
MAY 19, 2021
Frontline Practice Leadership - why it's important and how to do it.
Professor Christine Bigby, Director Living with Disability Research Cente, La Trobe University and Dr Lincoln Humphreys, Research Fellow, Living with Disability Research Centre, La Trobe University.
Slides from this presentation - Bigby
Slides from this presentation - Humphreys
APRIL 14, 2021
Two presentations exploring risk and self-determination - two issues fundamental to support practice with people with intellectual disabilities.
Possibility and risk in encounters between people with and without intellectual disability. Dr Ilan Wiesel, Associate Professor Urban Geogrpahy, University of Melbourne.
Slides from this presentation - Wiesel [PDF: 8mb]
Staff perspectives and supporting people with intellectual disability to be self-determined. Charity Sims-Jenkins, PhD Candidate, Living with Disabiity Research Centre, La Trobe University.
Slides from this presentation - Smins-Jenkins [PDF: 1.1mb]
MARCH 10, 2021
Increasing the participation of people with intellectual disabilities in physical activity. Four presentations look at recent and upcoming research about people with intellectual and developmental disabilities participating in physical activity.
A new community-based study of exercise for people with Prader-WIlli syndrome. Professor Noral Shields, La Trobe University
Slides from this presentation - Shields [PDF:]
How can we support girls and women with Rett syndrome to engage in more light physical activities? Associate Professor Jenny Downs, Head, Child Disability Health and Wellbeing, Telethon Kids Institute
Slides from this presentation - Downs [PDF:]
What happens in a community gym setting when people with Prader-Willi syndrome are exercising? A focused ethnography study. Cara Schofield, PhD Candidate, Living with Disability Research Centre, La Trobe University
Slides from this presentation - Schofield [PDF:]
What are the barriers and facilitators to participating in community gym exercise for young adults with cerebral palsy? A qualitative study. Georgia McKenzie, PhD Candidate, La Trobe University
Slides from this presentation - McKenzie [PDF:]
FEBRUARY 10, 2021
Managing and coordinating individual support for people with intellectual disabilities
Putting people at the heart of social work – the named social worker project in England. Lyn Romeo, Chief Social Worker for Adults, England Uk
Slides from this presentation - Romeo
“I do it for nothing": Parents as case managers. Michelle King, PhD Candidate, Australian Centre for Health Law Research, Queensland University of Technology
Slides from this presentation - King [PDF:]
2020 Research Seminar Series
DECEMBER 9, 2020
Policy advice and research agendas for people with cognitive disabilities. Daniel Leighton, NDIS. Dr Janice Biggs, NDIS. Professor Bruce Bonyhady, NDRP. Associate Professor Di WInker, Summer Foundation. Professor Christine Bigby, Living with Disability Research Centre.
Slides from the presentations:
NDIA Research and Evaluation Branch - Biggs, J.
National Disability Research Partnership - Bonyhady, B
Summer Foundation: Research Program Overview - Winkler, D.
Watch the recording on our YouTube channel: December Seminar
NOVEMBER 11, 2020
Preliminary evaluation of the La Trobe Support for Decision Making Practice Framework. Professors Christine Bigby and Jacinta Douglas, Living with Disability Research Centre, La Trobe University.
Slides from this presentation - Bigby & Douglas [PDF: 4.7mb]
Watch the recording on our Youtube channel: November - Bigby & Douglas
OCTOBER 14, 2020
Living well with acquired neurological disability: The things that help, the things that get in the way. Emeritus Professor Jacinta Douglas, Living with Disability Research Centre, La Trobe University.
Perceptions of health and social service professionals of Fetal Alcohol Spectrum Disorder. Dr Kerryn Bagley, Lecturer Social Work, La Trobe Rural Health School.
SEPTEMBER 9, 2020
The NDIS Quality & Safeguarding Scheme in context. Dr Alan Hough, Director, Purpose at Work.
Slides from this presentation - Hough [PDF: 2.4mb]
Administrative compliance or personal outcomes? Exploring service quality from the perspectives of leaders and frontline staff within disability day service organisations. Jade McEwen, PhD Candidate, Living with Disability Research Centre, La Trobe University.
Slides from this presentation - McEwen [PDF: 912kb]
Watch the recording on our Youtube channel: September Seminar
AUGUST 12, 2020
Understanding the transformative potential of sharing personal stories: A process model of narrative storytelling. Dr Kate D'Cruz, Lecturer, Occupational Therapy, La Trobe University
Slides from this presentation - D'Cruz [PDF: 3.4mb]
Stories from the Wild West frontier: The NDIS experiences of people with severe and profound intellectual disabilities. Dr David Henderson, Research Fellow, Living with Disability Research Centre, La Trobe University
Slides from this presentation - Henderson [PDF: 2.5mb]
JULY 8, 2020
Factors that influence the quality of staff support for people with intellectual disabilities in supported accommodation services – messages for people with disabilities, funders, regulators and service providers. Professor Christine Bigby, Director Living with Disability Research Centre, La Trobe University.
Slides from this presentation - Bigby [PDF: 8.2mb]
Understanding the factors that influence the quality of paid disability support for adults with acquired neurological disability and complex needs: a scoping review and thematic synthesis. Megan Topping, PhD Candidate, Living with Disability Research Centre, La Trobe University.
Slides from this presentation - Topping [PDF: 2.4mb]
JUNE 10, 2020
Development of the La Trobe Reasonable Adjustments for Inclusive Education rating scale. Professor Teresa Iacono, La Trobe Rural Health School and Living with Disability Research Centre, La Trobe University.
Slides from this presentation - Iacono [PDF:3.9mb]
A randomised control trial of shifting perceptions to enhance inclusive school education of students with disability through reasonable adjustments. Dr Jo Spong, Lecturer, La Trobe Rural Health School, La Trobe University.
Slides from this presentation - Spong [PDF:5.8mb]
MAY 13, 2020
Glossing over issues in the rush to have everybody under the disability banner: Dedifferentiation and people with intellectual disability in the NDIS. Professor Christine Bigby, Director Living with Disability Research Centre, La Trobe University.
To view videos of these two presentations, please click here: May Seminar - 2020. Alternatively, click on the links below to see the slides from each presentation.
Slides from this presentation - Bigby [PDF:3.8mb]
Group homes, concerns about 'risk', and the use of restrictive practices. Dr Claire Spivakovsky, University of Melbourne
(NO APRIL SEMINAR)
MARCH 11, 2020
Twitter versus the 'so-called professionals': Social media responses to evidence presented by researchers to the Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability. Dr Sian Anderson, Lecturer, Living with Disability Research Centre, La Trobe University
Slides from this presentation - Anderson [PDF:3.5mb]
Do warm feelings, rather than negative feelings, obstruct support for self-determination from support workers? A literature review. Charity Sims-Jenkins, PhD Candidate, Living with Disability Research Centre, La Trobe University
Slides from this presentation - Sims-Jenkins [PDF:1.1mb]
FEBRUARY 12, 2020
Frontline Practice Leadership: What it is and how to do it. Dr Lincoln Humphreys, Research Fellow, Living with Disability Research Centre, La Trobe University
Slides from this presentation - Humphreys [PDF:4.4mb]
Implementing Frontline Practice in community setting: Examples from Malmo, Sweden. Per Arvidsson, Visting Scholar and Phd Candidate, Malmo University, Sweden.
2019 Research Seminar Series
MAKING CLAIMS THAT MATTER - A WORK SHOP WITH PROFESSOR JENNIFER CLEGG
Sides from this workshop - Clegg [PDF:2.3mb]
OCTOBER SEMINAR
Using e-mental health resources together: A qualitative study of consumer and worker experiences in community mental health practice. Ann Williams, PhD Candidate, School of Allied Health, Human Services & Sport, La Trobe University
Slids from this presentation - Williams [PDF:3.7mb]
SEPTEMBER SEMINAR
Developing an evidence-based practice framework to guide support for decision making. Professor Christine Bigby, Living with Disability Research Centre, La Trobe University
Slides from this presentation - Bigby [PDF:10.6mb]
Support for decision making: reviewing values and being committed to the rights of people with cognitive disability to decision making support. Dr Elizabeth Smith, Research Fellow, Living with Disability Research Centre, La Trobe University
Slides from this presentation - Smith [PDF:1.5mb]
AUGUST SEMINAR
Recovering through everyday life activities: findings from a Participatory photovoice study with people experiencing mental health issues. Dr Nastaran Doroud, Lecturer Occupational Therapy, La Trobe Rural Health School
Slides from this presentation - Doroud [PDF:13.5mb]
Communication impairment and the working alliance in stroke rehabilitation. Kellie Stagg, Lecturer Speech Pathology, La Trobe Rural Health School and PhD candidate, Living with Disability Research Centre
Conferences
2022
Anderson, S. (2022, November). Digital inclusion? people with intellectual disability as users of social media: a review of the literature. Annual conference of the Australasian Society for Intellectual Disability (ASID).
Bagley, K. (2022, November). Building the capacity of educators to support students with intellectual disability in their most inclusive learning environment. Annual conference of the Australasian Society for Intellectual Disability (ASID).
Bigby, C. (2022, September). Implementing the La Trobe Support for Decision Making Practice Framework in different settings. International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) Virtual Conference 2022 – September
Bigby, C. (2022, November). Unsettling neoliberal imaginaries of ‘mainstreaming’ and ‘choice and control’. Annual conference of the Australasian Society for Intellectual Disability (ASID).
Bigby, C. (2022, November). Evaluation of a structured decision-making framework in the Public Trustee Queensland. Annual conference of the Australasian Society for Intellectual Disability (ASID).
Bigby, C. (2022, November). Publishing in Research and Practice in Intellectual and Developmental Disabilities. Annual conference of the Australasian Society for Intellectual Disability (ASID).
Clegg, J. (2022, November). Helping distressed people with intellectual disabilities to manage their chaotic emotions. Annual conference of the Australasian Society for Intellectual Disability (ASID). Slides.
Cubis, L., McDonald, S., Davis, E., Loy, C., Winkler, D., Douglas, J. (2022, October). One Size Does Not Fit All: A qualitative investigation into the housing needs and preferences of people with Huntington’s Disease. 19th Conference of the Neuropsychological Rehabilitation Special Interest Group of the World Federation for NeuroRehabilitation (NR-SIG-WFNR).
D‘Cruz, K. (2022, May). Support in colocated apartments for people with neurological conditions: Co-design of potential solutions. Australasian Society for the Study of Brain Impairment (ASSBI) 45th Annual Conference.
D‘Cruz, K., Douglas, J., Winkler, D. (2022, May). “This is better but not fully there": Experiences of participating in a co-design project from the perspective of adults with neurological disability and facilitators. Australasian Society for the Study of Brain Impairment (ASSBI) 45th Annual Conference.
Douglas, J. (2022, May). Building skills, connecting, belonging and developing confidence: Qualitative evaluation of a Multi-component Community Connection program (M-ComConnect) for people with severe traumatic brain injury (TBI). Australasian Society for the Study of Brain Impairment (ASSBI) 45th Annual Conference.
Douglas, J. (2022, May). Evaluation of outcomes for people with neurological disability and complex needs after moving into new individualised apartments: Preliminary results. Australasian Society for the Study of Brain Impairment (ASSBI) 45th Annual Conference.
Douglas, J., Leeson, R., Collins, M. (2022, October). Outcomes of a Multi-component Community Connection program (M-ComConnect) for people with severe traumatic brain injury (TBI). 19th Conference of the Neuropsychological Rehabilitation Special Interest Group of the World Federation for NeuroRehabilitation (NR-SIG-WFNR).
Iacono, T. (2022, November). Increasing quality hospital care for people with intellectual disabilities: a research translation project. Annual conference of the Australasian Society for Intellectual Disability (ASID). Slides.
Roseingrave, E., Cubis, L. Minter, E., Winkler, D., Douglas, J. (2022, May). Living in Limbo: Navigating the Hospital and Discharge Process for People with Disability and Complex Needs. Australasian Society for the Study of Brain Impairment (ASSBI) 45th Annual Conference.
Shpigelman, C., Araten-Bergman, T. (2022, November). "I kept telling him that we did not abandon him": the family caregivers' experiences during the first lockdown of COVID-19. Annual conference of the Australasian Society for Intellectual Disability (ASID).
Spong, J., Iacono, T., Garcia-Melgar, A., Bagley, K., McKinstry, C., Hyett, N., Arthur-Kelly, M. (2022, November). Supporting students with disabilities in mainstream schools: an expert panel consensus on elements of reasonable adjustments. Annual conference of the Australasian Society for Intellectual Disability (ASID). Slides.
Topping, M., Douglas, J., Winkler, D. (2022, May). “They treat you like a person, they ask you what you want”: Exploring Factors that Influence the Quality of Paid Disability Support for Adults with Acquired Neurological Disability. Australasian Society for the Study of Brain Impairment (ASSBI) 45th Annual Conference.
Topping, M., Douglas, J., Winkler, D. (2022, October). Recommendations for allied health professionals helping disability support workers to deliver best practice from the perspective of adults with acquired neurological disability. 19th Conference of the Neuropsychological Rehabilitation Special Interest Group of the World Federation for NeuroRehabilitation (NR-SIG-WFNR).
Winkler, D. (2022, May). Younger people in aged care: Will we achieve the 2022 and 2025 government targets? Australasian Society for the Study of Brain Impairment (ASSBI) 45th Annual Conference.
2021
Bigby, C. (2021, November) Frontline practice leadership in supported accommodation services: reviewing the evidence. Annual conference of the Australasian Society for Intellectual Disability (ASID).
Bigby, C. (2021, November) Reflections of parents about value of training and mentoring for supported decision-making practice. Annual conference of the Australasian Society for Intellectual Disability (ASID).
Bigby, C., et al. (2021, July). Reviewing observational methods for measuring the quality of support. International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) Europe Conference.
Bigby, C., et al. (2021, July). Reflections of parents about the value of training and mentoring for supported decision making practice. International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) Europe Conference.
Bigby, C., et al. (2021, July). Grappling with uncertainty: Parental strategies for supporting decision making. International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) Europe Conference.
Cubis, L., Roseingrave, E., Winkler, D., Topping, M., Minter, E., Douglas, J. (2021, June) Hospital to home: Evaluating the discharge planning process for people with acquired disability and complex support needs. Pacific Rim Conference on Disability and Diversity (joint conference of the International Neuropsychological Society (INS), the Australasian Society for the Study of Brain Impairment (ASSBI), and the Australian Psychological Society’s College of Clinical Neuropsychologists (CCN).
D’Cruz, K., Douglas, J., Serry, T. (2021, July) A grounded theory study of narrative storytelling: Conceptualising the relationship between storytelling and identity re-construction following acquired brain injury. World Federation of Neurorehabilitation and Neuropsychological Rehabilitation (WFNR) SIG.
D’Cruz, K., Douglas, J., Winkler, D. (2021, June) "I have always wanted to do work like this but felt it was out of reach": Hopes and expectations of participating in a co-design storytelling project. Pacific Rim Conference on Disability and Diversity (joint conference of the International Neuropsychological Society (INS), the Australasian Society for the Study of Brain Impairment (ASSBI), and the Australian Psychological Society’s College of Clinical Neuropsychologists (CCN).
Douglas, J. (2021, April) Finding the missing shoe: a mixed method evaluation of a multicomponent community connection program (M-Com connect) for people with acquired brain injury. 2nd Academic and Clinical Symposium in Cognitive-Communication Disorders (CCDs).
Douglas, J. (2021, June) Finding Focus: the process of deriving person-centred goals in a multi-component connection program (M-Com Connect). Australasian Society for the Study of Brain Impairment (ASSBI) 44th Annual Conference.
Douglas, J., Bigby, C. (2021, July). Building capability of health professionals to support the participation of adults with acquired brain injury (ABI) in decision making. World Federation of Neurorehabilitation and Neuropsychological Rehabilitation (WFNR) SIG.
Douglas, J., Leeson, R., Collins, M. (2021, June). Evaluation of a Multi-component Community Connection program (M-ComConnect) for people with severe traumatic brain injury: Preliminary results. Pacific Rim Conference on Disabiltiy and Diversity (joint conference of the International Neuropsychological Society (INS), the Australasian Society for the Study of Brain Impairment (ASSBI), and the Australian Psychological Society’s College of Clinical Neuropsychologists (CCN).
Douglas, J. (2021, November) Development and preliminary evaluation of the Decision Support Questionnaire. Annual conference of the Australasian Society for Intellectual Disability (ASID).
Humphreys, L. (2021, November) An evidence based frontline practice leadership training resource. Annual conference of the Australasian Society for Intellectual Disability (ASID).
Humphreys, L. (2021, November) Psychometric evaluation of the Active Support Measure. Annual conference of the Australasian Society for Intellectual Disability (ASID).
McEwen, J. (2021, November) Administrative compliance or personal outcomes? Exploring staff perspectives about service quality in day services for people with intellectual disabilities. Annual conference of the Australasian Society for Intellectual Disability (ASID).
Oliver, S., D’Cruz, K., Minter, E., Naismithm, J., Douglas, J., Winkler, D. (2021, June) Being a pioneer: A qualitative study of the experience of moving into SDA accommodation from the perspective of adults with neurological disability. Pacific Rim Conference on Disability and Diversity (joint conference of the International Neuropsychological Society (INS), the Australasian Society for the Study of Brain Impairment (ASSBI), and the Australian Psychological Society’s College of Clinical Neuropsychologists (CCN).
Shorland, J., Douglas, J., O’Halloran, R. (2021, June) Older adult admissions to subacute rehabilitation following traumatic brain injury: A comparison of characteristics, speech pathology input and outcome indices across the adult age-span. Pacific Rim Conference on Disability and Diversity (joint conference of the International Neuropsychological Society (INS), the Australasian Society for the Study of Brain Impairment (ASSBI), and the Australian Psychological Society’s College of Clinical Neuropsychologists (CCN).
Sims-Jenkins, C. (2021, November) Building on support staff’s warm feelings to enhance their support for self-determination. Annual conference of the Australasian Society for Intellectual Disability (ASID).
Stagg, K., Douglas, J., Iacono, T. (2021, July) “Some [health professionals] … actually make you into people” The role of relational experiences with health professionals in navigating recovery from stroke and supporting positive self-perceptions. World Federation of Neurorehabilitation and Neuropsychological Rehabilitation (WFNR) SIG.
Topping, M., Douglas, J., Winkler, D. (2021, June). Factors that Influence the Quality of Paid Support for Adults with Acquired Neurological Disability: Scoping Review and In-Depth Interviews. Pacific Rim Conference on Disability and Diversity (joint conference of the International Neuropsychological Society (INS), the Australasian Society for the Study of Brain Impairment (ASSBI), and the Australian Psychological Society’s College of Clinical Neuropsychologists (CCN).
Topping, M., Douglas, J., Winkler, D. (2021, July). Considerations for Conducting Online Qualitative Research and Practice Implications for Interviewing People with Acquired Brain Injury. World Federation of Neurorehabilitation and Neuropsychological Rehabilitation (WFNR) SIG.
Vassalo, S., Douglas, J. (2021, June). Clinical indicators of visual deficits following chronic severe traumatic brain injury. Pacific Rim Conference on Disability and Diversity.
Winkler, D., Douglas, J. (2021, June). No choices and nothing to do: Changing policy, practice and systems through programmatic research to prevent young people with acquired brain injury from being forced to live in aged care. Pacific Rim Conference on Disability and Diversity (joint conference of the International Neuropsychological Society (INS), the Australasian Society for the Study of Brain Impairment (ASSBI), and the Australian Psychological Society’s College of Clinical Neuropsychologists (CCN).
2020
Bigby, C. (2020, February). Convivial encounter as a means of social inclusion for all ages. Invited presentation, Deakin University Seminar, Australia.
Bigby, C. (2020, July). What makes a difference to quality of life and quality of services: Some evidence from research. Queensland Disability Network, Australia.
Bigby, C. (2020, September). Enabling hospitals to be more inclusive and responsive to people with intellectual disabilities. Australasian Society for Intellectual Disability (ASID) Webinar.
Bigby, C. (2020, October). An evidence-based support for decision making practice framework. Invited presentation, Disability Summit.
Bigby, C. (2020, October). Dedifferentiation and people with intellectual disabilities in the NDIS. Invited presentation, Possability, Australia.
Bigby, C. (2020, October). Identifying difference in culture between poor performing and better group homes. Tizard Centre, seminar in conjunction with CQC, UK.
Humphreys, L. (2020, October). The Group Home Culture Scale: Development and findings. Tizard Centre, seminar in conjunction with CQC, UK.
Submissions
Bigby. C. 2020. Submission: Joint Standing Committee on the National Disability Insurance Scheme - Quality and Safeguards
Bigby. C. 2020. Submission: Joint Standing Committee on the National Disability Insurance Scheme - Workforce
McEwen. J. 2020. Submission: Joint Standing Committee on the National Disability Insurance Scheme - Quality and Safeguards
2019
Bigby, C. (2019). What is necessary to embed active support in supported living services. Birmingham, British Learning Disabilities Conference.
Bigby, C. (2019). 'Glossing overs issues in the rush to have everybody under the disability banner': A case study of a dedifferentiated reform in the Australian National Disability Insurance Scheme. Glasgow, IASSIDD World Congress.
Bigby, C., Bould, E., Iacono, T., & Beadle-Brown, J. (2019). Identifying factors that predict good active support in group homes for people with intellectual disabilities using multi-level modelling. Glasgow, IASSIDD World Congress.
Bigby, C., Bould, E., Iacono, T., & Beadle-Brown, J. (2019). Organisational structures and process associated with good active support. Glasgow, IASSIDD World Congress.
Bigby, C., Douglas, J. (2019). Developing an evidence-based support for decision making practice framework. Canberra. Australian Guardianship and Administration Council Conference.
Bigby, C., Douglas, J., & Smith, E. (2019). The La Trobe support of decision making practice framework: Preliminary analysis. Canberra. Australian Guardianship and Administration Council Conference.
Bigby, C., & Humphreys, L. (2019). Patterns of staff culture in Australian group homes. Glasgow, IASSIDD World Congress.
Bigby, C., Douglas, J., Iacono, T. (2019). Enabling hospitals to be more inclusive and responsive to people with intellectual disabilities. Glasgow, IASSIDD World Congress.
Humpfreys, L., Bigby, C., & Iacono, T. (2019). The group home culture scale: Validation and use in predicting quality of staff support in group homes. Glasgow, IASSIDD World Congress.
Iacono, T., Bigby, C., Douglas, J., & Spong, J. (2019). A prospective study of hospital encounters by people with intellectual and developmental disability and a comparison group. Glasgow, IASSIDD World Congress.