Interconnect health research

Developing co-designed, integrated, person-centred models of care to improve the health of people with innate variations of sex characteristics (intersex variations/differences of sex development)

2025

The Interconnect Health Research project is being conducted by a national consortium of researchers, community groups and clinicians, led by researchers with lived experiences of innate variations of sex characteristics (IVSCs).

With more than 40 researchers, staff, and advisory members with multidisciplinary expertise involved across Australia and internationally, including ARCSHS director Professor Adam Bourne, Interconnect is working to help create a safer and better future for people with IVSCs, aiming to:

  • Transform models of care from narrow biomedical approaches centred on early surgical and endocrinological “management” of IVSCs, to practical multidisciplinary approaches that centre psychosocial support, to address stigma and misconceptions, support families, and help individuals to determine and express their own values and preferences regarding all forms of non-urgent medical treatment.
  • Undertake research - led by ARCSHS - that addresses community priorities and expectations, and that is community-based, participatory, and human rights-affirming.
  • Improve understanding of the health and well-being needs (including unmet needs) and experiences of adolescents and adults with IVSCs, including those that are hard to reach due to negative experiences of healthcare, and those with intersectional disadvantages.
  • Build the capacity and capability of the research community to undertake research and translational work relevant to the health needs of people with innate variations of sex characteristics.

Health experiences survey

A major component of the project will be a survey, led by ARCSHS and conducted in partnership with academics and the project team Australia-wide, aiming to gain a comprehensive understanding of the health, wellbeing and health service experiences of adolescents and adults with IVSCs.

This research will seek to understand:

  • Their perspectives of their health and wellbeing experiences and needs
  • What risk and protective factors are associated with their health and wellbeing outcomes?
  • How do health service experiences, preferences and utilisation vary by biographic and psychosocial factors?
  • What are the health and wellbeing needs of family members?
  • What are the experiences of their family members in accessing health care?

This will be done primarily by:

  • Conducting interviews with people with IVSCs and their families to better understand their health and wellbeing needs and experiences.
  • Co-designing a new population survey with people with IVSCs to establish a national understanding of the health and wellbeing of people with IVSCs.
  • Exploring the acceptability of linking people’s administrative health records to their survey data to examine people’s health service use.
  • Developing new methodologies to inform a longitudinal population study

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PhD Scholarship: The health and wellbeing of people with Innate Variations of Sex Characteristics (also known as Intersex variations) in Australia

We are seeking a highly motivated PhD student to join our research team on a project that aims to develop new knowledge about the health and wellbeing of people with Innate Variations of Sex Characteristics (IVSC) in Australia.

People with IVSCs are a diverse population who share experiences of having innate sex characteristics (such as chromosomes, gonads or hormones) that differ from medical norms for female or male bodies. People with IVSCs have health needs that must be addressed in a timely way across all life stages, and in ways that respect their rights, values and preferences.

A lack of community-based research has adversely impacted knowledge of the health and wellbeing issues affecting adolescents and adults with IVSCs. These populations may have received 'obsolete' and unnecessary treatments without personal consent, often lack appropriate information about their bodies and health needs, and may lack engagement with clinical and community services. Understanding the health and wellbeing experiences of this population is necessary to inform policies and improve models of care.

The PhD studies will be conducted as part of the Interconnect Health Research project, which is being conducted by a national consortium of researchers, community groups and clinicians. A major component of the project will be a survey, led by ARCSHS and conducted in partnership with academics and the project team Australia-wide, aiming to gain a comprehensive understanding of the health, wellbeing and health service experiences of adolescents and adults with IVSCs.

This research will seek to understand:

  • The health and wellbeing experiences and needs of people with IVSCs
  • The risk and protective factors associated with health and wellbeing outcomes
  • Health service experiences, preferences and utilisation among this population

We are seeking a PhD student with a background in sociology, psychology, public health, health promotion, policy or systems science or a related field. Experience in quantitative research and an interest in issues related to IVSC health and wellbeing are highly desirable. The successful candidate will have the opportunity to work with a world-leading team of experts in IVSC health and wellbeing, and key community partners. The successful candidate will be expected to undertake original research as part of their PhD that will complement the Interconnect project.

Expected to commence from March 2026 (or later by negotiation).

This scholarship will have an emphasis on health and wellbeing experiences of people with IVSCs. Possible areas of focus include, but are not limited to:

  • Mental health and wellbeing outcomes of people with IVSCs, including an exploration of risk and protective factors
  • Health service experiences and preferences among people with IVSC, this may include both general health service experiences and IVSC-specific health service experiences
  • Experiences of discrimination, harassment or abuse, both interpersonal and environmental

The successful candidate will also be invited to participate in project meetings, workshops, and other activities relevant to the specific focus of their PhD.

The successful scholarship applicant will receive a stipend of $36,000 per annum (2026 full-time rate) for 3.5 years, a tuition fee scholarship for four years and allowances.

The successful applicant will be supervised by one or more researchers from Interconnect, including Dr Natalie Amos, Professor Ashleigh Lin and Dr Jordan Hinton from ARCSHS.

To express interest, please send a CV and cover letter outlining your research interests and experience, as well as how you believe you would contribute to this project, to Dr Natalie Amos at n.amos@latrobe.edu.au.

The successful candidate will be based at ARCSHS, La Trobe University.

Researchers

Velissa Aplin, Simone-lisa Anderson, Y. Gávriel Ansara, Phil Batterham, Adam Bourne, Annette Brömdal, Kate Burry, Alison Calear, Morgan Carpenter, Brian Earp, James Fowler, Vik Fraser, Katie Gabriel, Bridget Haire, Bonnie Hart, Phoebe Hart, Peter Hegarty, Martin Holt, Elissa Jacobs, Aileen Kennedy, Cynthia Kraus, Ashleigh Lin, Michelle McGrath, Julie Mooney-Somers, Paul Byrne-Moroney, Alyssa Morse, Amy Mullens, Christy E. Newman, Ainsley Newson, Prakash Poudel, Katrina Roen, Ingrid Rowlands, Cody Smith, Gwen Smith, Stephen Stathis, Penelope Strauss, Agli Zavros-Orr

Funding

Interconnect Health Research is funded by the Medical Research Future Fund.