HIV Futures 10

Quality of life among people living with HIV in Australia

2022

HIV Futures is the largest and longest-running study of people living with HIV in Australia. Running since 1997, the study involves periodic surveys of Australians living with HIV. In 2022, the survey now includes people who have now been living with HIV for up to 40 years, as well as people diagnosed very recently, in the past five years or less.

The findings from HIV Futures show that, for the most part, people living with HIV are doing well and living healthy, productive and happy lives. However, despite significant medical advances that now mean HIV cannot be sexually transmitted by people on treatment (i.e., undetectable = untransmissible, or U=U), HIV continues to be a highly stigmatised condition. This has a significant effect on people’s lives and leaves some people to withdraw socially or experience loneliness and poor mental health.

HIV Futures demonstrates that people living with HIV both need and deserve ongoing and multifaceted support, access to services that are affirming of their needs, and opportunities to have meaningful social connections to cope with, and challenge, the negative impact of stigma that often accompanies living with HIV.

Publications

HIV Futures 10: Quality of life among people living with HIV in AustraliaFront cover of 'HIV Futures 10: Quality of life among people living with HIV in Australia' with the logos of the Australian Research Centre in Sex, Health and Society at La Trobe University, ASHm, NAPWHA and AFAO, and a design of young silver princess gum leaves in neon green against a plum background

A study of quality of life among people living with HIV (PLHIV) in Australia, with data collected from mid-2021 to early 2022.

Download HIV Futures 10

Key findings summary PowerPoint slide pack

To help you include findings from HIV Futures 10, we have created a PowerPoint slide pack with key findings:

HIV FUTURES Impact ReportCover of the HIV FUTURES IMPACT REPORT, with the logos of the Australian Research Centre in Sex, Health and Society at La Trobe University, NAPWHA (the National Association of People with HIV Australia), Health Equity Matters and ASHM, and a design of nine photographs of diverse people living with HIV.

A report on the ways the HIV FUTURES studies have been used to inform policy and practice at a national and state/territory level, as well as guide community and clinical responses, support advocacy, and underpin research and service planning.

Download the Impact Report

Journal articles

Bisexual Men Living with HIV: Wellbeing, Connectedness and the Impact of Stigma. <
Power, J., Amir, S., Lea, T., Brown, G., Lyons, A., Carman, M., Rule, J., & Bourne, A. (2021).

Antiretroviral therapy use, viral detectability and fear of onward transmission among people living with HIV in Australia: Changes between 1997 and 2018.
Norman, T., Bourne, A., Lyons, A., & Rule, J., & Power, J. (2022).

Health literacy, financial insecurity and health outcomes among people living with HIV in Australia.
Power, J., Lea, T., Melendez-Torres, G. J., Lyons, A., Norman, T., Hill, A. O, & Bourne, A. (2022).

Sexual satisfaction among people living with HIV in the era of biomedical prevention: enduring impacts of HIV-related stigma?
Norman, T., Bourne, A., Thepsourinthone, J., Murphy, D., Rule, J., Melendez-Torres, G.J., & Power, J. (2024).

The Relationship between Access to Peer Support Programs and Quality of Life among People Living with HIV in Australia.
Thepsourinthone, J., Norman, T., Murphy, D., & Power, J. (2025).

The intersection of HIV and migration: conceptualising quality of life among Asian-born men who have sex with men living with HIV in Australia.
Norman, T., Power, J., Yu Hsiang Chen, J., Ferguson, N., Canita, E., Istiko, S. N., Xiao, B. J., Rule, J., Murphy., D., Bourne, A. (2025).

If you are unable to access the links below, please contact arcshs@latrobe.edu.au.

Partners and funding

HIV Futures is funded by the Australian Government Department of Health and Aged Care, and produced in partnership with the National Association of People with HIV Australia (NAPWHA), the Australian Federation of AIDS Organisations (AFAO), and ASHM.

Researchers

Thomas NormanJennifer Power, John Rule, Jimmy Yu-Hsiang Chen, Adam Bourne