HIV Futures publications

HIV Futures is a research series about the health and wellbeing of people living with HIV (PLHIV) in Australia. Each study forms part of a series of cross-sectional surveys that have been run every two to three years since 1997. Funded by the Australian Government Department of Health, the aims of the study are to provide information about factors that support physical and emotional wellbeing among PLHIV.

The study is designed to inform the Australian National HIV Strategy and guide community and clinical service provision for PLHIV. In order to explore the complexity of factors that support health and wellbeing among PLHIV, the HIV Futures series surveys a broad range of issues, such as financial security, housing status, antiretroviral treatment use, general health issues, stigma and discrimination, clinical and support service use, aging, drug and alcohol use, sexual health, relationships, and social connectedness.

If you have any difficulty accessing these documents, please email arcshs@latrobe.edu.au.


Cover of HIV Futures 9: Quality of life among people living with HIV in Australia, with design of round gum leaves

HIV Futures 9

2019

Quality of life among people living with HIV in Australia

Jennifer Power, Stephanie Amir, Graham Brown, John Rule, Jen Johnson, Anthony Lyons, Adam Bourne and Marina Carman

HIV Futures 9 (PDF, 7.4MB)
Executive summary (PDF, 0.7MB)

HIV Futures 9 is a study of quality of life among people living with HIV (PLHIV) in Australia. In each iteration of the HIV Futures study, a cross sectional survey of the Australian population of PLHIV is conducted. Data were collected for HIV Futures 9 from December 2018 until May 2019. Participants completed a questionnaire using a self-complete online or hardcopy form. The survey instrument comprised 148 questions related to quality of life, financial security, health, wellbeing, treatment, support, sex, relationships, HIV-related stigma, and ageing.


HIV Futures Community Impact Report front cover with leaves and La Trobe logo

HIV Futures: Community Impact Report

2018

Research Impact and the Australian HIV Response

Jen Johnson

Research Impact and the Australian HIV Response (PDF, 0.3MB)

This case study report explores the role of ARCSHS' HIV Futures series in the Australian HIV partnership response. Through in-depth interviews, citation analysis, and publication review, it examines how the HIV Futures publications have been used by the HIV sector (especially the community-based HIV sector) in informing policy development, advocacy work and service delivery. It explores the themes and topics which have had the most significant influence – and been of most use – to those in the HIV sector. Discussions were held with people working in diverse roles, including peer support, policy, community programs, advocacy, prevention campaigns, support services, and two former directors of PLHIV organisations.


HIV Futures 8 cover with design of gum leaves and La Trobe logo

HIV Futures 8

2016-2018

HIV Futures 8 was released as a series of broadsheets:

Health and wellbeing of people living with HIV (PDF, 0.2MB)
Jennifer Power, Rachel Thorpe, Graham Brown, Anthony Lyons, Gary Dowsett and Jayne Lucke (2016)
Experiences of antiretroviral treatment (PDF, 0.3MB)
Rachel Thorpe, Jennifer Power, Graham Brown, Anthony Lyons, Gary Dowsett and Jayne Lucke (2016)
HIV exposure and testing (PDF, 0.3MB)
Jennifer Power, Rachel Thorpe, Graham Brown, Anthony Lyons, Gary Dowsett and Jayne Lucke (2016)
Women Living with HIV in Australia (PDF, 0.2MB)
Rachel Thorpe, Jennifer Power, Graham Brown, Anthony Lyons, Gary Dowsett and Jayne Lucke (2017)
Service use, social support and connection among people living with HIV (PDF, 0.5MB)
Jennifer Power, Gosia Mikolajczak, Graham Brown, Anthony Lyons, Gary Dowsett and Jayne Lucke (2017)
Financial security among people living with HIV in Australia (PDF, 0.3MB)
Jennifer Power, Gosia Mikolajczak, Graham Brown, Anthony Lyons, Gary Dowsett and Jayne Lucke (2018)

HIV Futures 7 logo with gum leaf design

HIV Futures 7

2013

The Health and Wellbeing of HIV Positive People in Australia

Jeffrey Grierson, Marian Pitts and Rachel Koelmeyer

HIV Futures 7 (PDF, 1.13MB)


HIV Futures 7 logo with gum leaf design and text 'HIV futures six Making positive lives count

HIV Futures 6

2009

Making positive lives count

Jeffrey Grierson, Jennifer Power, Marian Pitts, Samantha Croy, Thomas Clement, Rachel Thorpe and Karalyn McDonald

HIV Futures 6 (PDF, 0.4MB)


HIV Futures 5 cover - dark purple with orange 'HIV Futures 5: Life as we know it' text

HIV Futures 5

2006

Life as we know it

Jeffrey Grierson, Rachel Thorpe and Marian Pitts

HIV Futures 5 (PDF, 0.5MB)


HIV Futures 4 cover with orange design and 'HIV FUTURES 4: STATE OF THE [POSITIVE] NATION' text

HIV Futures 4

2004

State of the [Positive] Nation

Jeffrey Grierson, Rachel Thorpe, Mark Saunders and Marian Pitts

HIV Futures 4 (PDF, 0.7MB)


HIV Futures 3 cover with 'HIV Futures 3: Positive Australians on Services, Health and Well-Being' text and ARCSHS logo

HIV Futures 3

2002

Positive Australians on Services, Health and Well-Being

Jeffrey Grierson, Sebastian Misson, Karalyn McDonald, Marian Pitts and Mary O’Brien

HIV Futures 3 (PDF, 0.5MB)


HIV Futures 2 cover with 'HIV Futures II: The Health and Well-Being of People with HIV/AIDS in Australia' and ARCSHS logo

HIV Futures 2

2000

The Health and Well-being of People with HIV/AIDS in Australia

Jeffrey Grierson, Michael Bartos, Richard de Visser and Karalyn McDonald

HIV Futures 2 (PDF, 0.3MB)


HIV Futures 1 cover, with text 'HIV Futures Community Report', author names and date visible through cutout window in blue and yellow card front cover and spiral binding visible at left.

HIV Futures Community Report (HIV Futures 1)

1998

Health, Relationships, Community, and Employment

Douglas Ezzy, Richard de Visser, Michael Bartos, Karalyn McDonald, Darryl O'Donnell and Doreen Rosenthal

HIV Futures Community Report (PDF, 0.05MB)

The first HIV Futures Survey drew together the largest sample of people with HIV/AIDS to have been surveyed in Australia at that time, and was conducted from 1 July 1997 to 5 September 1997. The 925 respondents represented over eight percent of the population of people then living with HIV in Australia. While a substantial number of the participants were gay men living in Sydney, the survey included significant numbers of people living with HIV from smaller sub-populations such as women, rural respondents and people living outside NSW and Victoria.

The survey examined five main issues: health (focused on the anti-retroviral treatments that had recently become available), relationships (including the changing nature of relationships with family, friends and partners, and sexual practice), community life (including HIV/AIDS-related organisations and publications), finances (experience of poverty and changes in accommodation), and employment (movement in and out of the work force).

The study was endorsed and supported by the Australian AIDS Federation Organisation (AFAO) and the National Association of People Living With HIV/AIDS (NAPWA), with assistance from over 75 organisations, government departments, hospitals, clinics and individuals across Australia. The report was supported by a Commonwealth AIDS Research Grant.