PRESTO
Online Training Resource
Prader-Willi syndrome is a rare complex genetic condition. While no two people with Prader-Willi syndrome are the same, this condition is commonly characterised by appetite dysregulation, obesity, low muscle tone, low lean muscle mass and developmental differences. An estimated 12% and 25% of people with Prader-Willi syndrome are also Autistic.
This source focuses on exercise in community gyms. Exercising at the gym is the second most common physical activity among Australian adults, particularly those aged 18 to 24 years. People with disability tell us they prefer to exercise at community gyms. They also say they value being involved in their communities, and that they want to be active alongside their peers without disability.
This training resource was developed as part of the PRESTO clinical trial completed in Australia. It was created in collaboration with consumers and other interest-holders including the Prader-Willi Research Foundation of Australia and the Foundation for Prader-Willi Research.
Designed for people supporting someone with Prader-Willi syndrome for the first time, this resource is primarily for exercise and health professionals, but the content may also be helpful for teachers, support workers and others working with people with Prader-Willi syndrome.
The training is self-paced and takes approximately one hour to complete. Topics covered include:
- What is Prader-Willi syndrome?
- Working with a person with Prader-Willi syndrome
- Behaviour considerations and support strategies
- Safety in the gym
- Exercise and Prader-Willi syndrome
Access the Training
To access the resource, please submit an expression of interest using this form.
Once your expression of interest has been received, login details will be sent within a week.
Funding
Development of this training resource was funded by the Medical Research Future Fund of Australia.
To support the ongoing maintenance, updates and accessibility of this resource, donations can be made to OTARC here.
Contact
Questions about this resource can be directed to Prof Nora Shields at n.shields@latrobe.edu.au
Partners
Avalable publications:
Shields, N., Bennell, K. L., Southby, A., Rice, L. J., Markovic, T., Bigby, C., Prendergast, L., Watts, J. J., Schofield, C., Loughnan, G., Franklin, J., Levitt, D., Chikani, V., McCallum, Z., Blair, S., Proietto, J., & Taylor, N. F. (2022). Progressive resistance training in young people with Prader-Willi syndrome: protocol for a randomised trial (PRESTO). BMJ Open, 12(12), e060306. https://doi.org/10.1136/bmjopen-2021-060306