Effective decision-making support

About this project

Most people require support when making decisions about their lives. They may talk to friends and family, or seek support from professionals in relation to decisions about their health, finances, or career. Being able to make all kinds of decisions for ourselves is important for our mental health and well-being and increases self-determination and agency over our own lives.

People with cognitive disabilities (including intellectual disability and acquired brain injury) benefit from making their own decisions. Oftentimes, this requires support from other people.

The National Disability Insurance Scheme (NDIS) means that people with cognitive disability will be required to make decisions about the services they use and the kinds of care that they receive. Within this new climate, decision-making is particularly important.

Download our flyer to find out more about the project and find out how to participate.

Flyer for the Decision Making Project (Intellectual Disability Participants) [PDF 572KB] or:

Flyer for the Decision Making Project (Acquired Brain Injury Participants) [PDF 500KB]

What is the project aiming to do?

It is not yet known what processes work best for providing support for decision-making, including what kind of training and education works for people who are supporting others to make decisions.

Academics at La Trobe University, The University of Sydney, The University of New South Wales, and Queensland University of Technology, have developed a Training Program and support package for people providing support for decision-making to a person with a cognitive disability.

This training program has been piloted is now being trialled

In order to explore the effectiveness of this training program, the researchers are seeking people who provide support for decision-making along with the person they support to take part in this research.

The research will include 2 groups. The first group (Training group) will undertake the training program at the beginning of the research project. The second group (Waitlist group) will undertake the training program at the end of the research project after improvements have been made.

More than 60 people with intellectual disabilities or acquired brain injury and their supporters are participating in the study. The results will available at the end of 2019. Other parts of this program of research have involved, training LAC’s and Ability Linkers from St Vincent de Paul Society in NSW in support for decision making, training advocates at ‘Leadership +’ in support for decision making, and designing a set of online training resources which will be available by mid 2019. A new part of this research program commences in 2019 funded by the TAC.

Be involved

This project was initiated through generous funding provided by:

  • Australian Research Council - Linkage Project
  • The University of Sydney
  • Queensland University of Technology
  • The University of Melbourne
  • Endeavour Foundation
  • Inclusion Melbourne
  • Melbourne City Mission
  • Office of the Public Advocate, Victoria
  • Office of the Public Guardian, (Queensland)
  • Office of the Public Advocate, (Queensland)
  • New South Wales Trustee and Guardian
  • New South Wales Public Guardian
  • NSW Department of Family and Community Services