Our research into capacity building spans three study areas. Cumulatively they reflect a team committed to working alongside:
- private and public sectors
Public health palliative approach in residential disability care
Until recently, we hosted a working group for disability palliative care project workers from all Victorian regions and undertook funded research in two of these regions. It’s becoming increasingly clear that the disability context highlights policy and practice issues (advance care planning, realistic choice, shared decision-making) that are of wider significance to end of life care in general, and that intersect with our community capacity building interests in particular.
North & West Metropolitan Region Palliative Care Consortium
- Grindrod, A., Rumbold, B., Varney, H. (2016). Final Research Report for NWMRPCC & DHHS DAS End of Life & Palliative Care Project: People with Intellectual Disabilities Living In Residential Services (2013-15)
Loddon Mallee Region Palliative Care Consortium
- Grindrod, A., Rumbold, B. (2015). Final Report to Loddon Mallee Region Palliative Care Consortium Disability Health Promoting Palliative Care (HPPC) Project 2014-15
Grindrod, A., Rumbold, B. (2017). Providing end-of-life care in disability community living services: An organizational capacity-building model using a public health approach. J Appl Res Intellect Disabil. DOI: 10.1111/jar.123972
Support from communities
The Department of Health Victoria (as it was then) funded a collaboration that saw Palliative Care Victoria and La Trobes Palliative Care Unit sharing oversight of community capacity building projects initiated by three Victorian palliative care services. We supervised evaluation of the projects and linked this with a wider review of the impact of community capacity building strategies that have been carried out in several Victorian regions with $120,000 funding.
A further research partnership with Gippsland Region Palliative Care Consortium explored the consortium’s contribution to building capacity in Gippsland communities.
Grindrod, A., Rumbold, B., Dagher, W. (2015). Gippsland Lakes Community Health and Gippsland Region Palliative Care Consortium Site Evaluation Report for practitioners 2013-2015
Victorian Local Government End of Life Project
This project has been funded by the Victorian Department of Health and Human Services, and is being carried out in partnership with the Municipal Association of Victoria. We are the fund holder for the project.
The project aims to expand the range of activities undertaken by local governments by including explicit attention to end of life issues. The approach uses a public health framework for end of life care, and local governments that participate are being equipped to develop sustainable end of life policy, planning and practice relevant to their regions.