Capacity building

Our research into capacity building spans three study areas. Cumulatively they reflect a team committed to working alongside:

  • private and public sectors
  • services
  • agencies
  • communities.

Public health palliative approach in residential disability care

Until recently, we hosted a working group for disability palliative care project workers from all Victorian regions and undertook funded research in two of these regions. It’s becoming increasingly clear that the disability context highlights policy and practice issues (advance care planning, realistic choice, shared decision-making) that are of wider significance to end of life care in general, and that intersect with our community capacity building interests in particular.


Reports

North & West Metropolitan Region Palliative Care Consortium

  • Grindrod, A., Rumbold, B., Varney, H. (2016). Final Research Report for NWMRPCC & DHHS DAS End of Life & Palliative Care Project: People with Intellectual Disabilities Living In Residential Services (2013-15)

Loddon Mallee Region Palliative Care Consortium

  • Grindrod, A., Rumbold, B. (2015). Final Report to Loddon Mallee Region Palliative Care Consortium Disability Health Promoting Palliative Care (HPPC) Project 2014-15

Publications

Grindrod, A., Rumbold, B. (2017). Providing end-of-life care in disability community living services: An organizational capacity-building model using a public health approach. J Appl Res Intellect Disabil. DOI: 10.1111/jar.123972

Support from communities

The Department of Health Victoria (as it was then) funded a collaboration that saw Palliative Care Victoria and La Trobes Palliative Care Unit sharing oversight of community capacity building projects initiated by three Victorian palliative care services. We supervised evaluation of the projects and linked this with a wider review of the impact of community capacity building strategies that have been carried out in several Victorian regions with $120,000 funding.

A further research partnership with Gippsland Region Palliative Care Consortium explored the consortium’s contribution to building capacity in Gippsland communities.


Reports

Grindrod, A., Rumbold, B., Dagher, W. (2015). Gippsland Lakes Community Health and Gippsland Region Palliative Care Consortium Site Evaluation Report for practitioners 2013-2015

Victorian Local Government End of Life Project

This project has been funded by the Victorian Department of Health and Human Services, and is being carried out in partnership with the Municipal Association of Victoria. We are the fund holder for the project.

The project aims to expand the range of activities undertaken by local governments by including explicit attention to end of life issues. The approach uses a public health framework for end of life care, and local governments that participate are being equipped to develop sustainable end of life policy, planning and practice relevant to their regions.

The project will provide knowledge and produce evidence concerning the role of local government in supporting residents and their families as they near the end of their life. This will be achieved through public health initiatives, community capacity building programs and developing end of life policy. Its successful implementation will position Victoria to lead future developments on public health approaches to end of life care in local government.

The project is an innovative response to the health and social dilemmas faced by an ageing and dying population, and will provide crucial elements missing from current end of life policy in Australia.