Advances in early detection of Autism
A decade-long research project
Dr Josephine Barbaro, Senior Research Fellow at OTARC, has been working on the early signs of autism in babies and toddlers for more than 15 years. The method she developed in the Social Attention and Communication Study (SACS) identified a set of behaviours or 'early markers' that are characteristic of children on the autism spectrum, from as young as 12 months old.
Originally implemented in Maternal and Child Health services in Victoria, the SACS method is now used across more than 12 countries.
Social Attention and Communication Surveillance-Revised (SACS-R) Online Training
Social Attention and Communication Surveillance (SACS) online will equip all professionals working with 11- to 30-month-old children with the necessary skills to effectively identify children on the autism spectrum, discuss their findings with families as part of routine care, and provide a streamlined referral pathway for families. Relevant professionals include:
The specific approach to early identification of autism used in this training is based on the Social Attention and Communication Studies (SACS) conducted by Dr. Josephine Barbaro. The SACS-R is the most accurate and sensitive early detection method for autism available (Barbaro & Dissanayake, 2010; 2013; Mozolic-Staunton et al., 2020; 81%-83% Positive Predictive Value).
The SACS-R is observationally based, requires training of child-health and education professionals, and works best when implemented in a setting that routinely monitors child development.
This comprehensive training module includes:
- Narrated PowerPoint presentation recorded at a recent workshop
- Additional notes and resources on each of the topic areas
- Clinical videos of autistic and non-autistic children
- Downloadable resource sheets, brochures, and key additional readings
- Professionals who see infants and toddlers will have the required knowledge and tools to screen children for autism
- Professionals will be confident in using the SACS-R tool to determine whether the children that present to their services demonstrate typical or atypical social attention and communication behaviours, relative to their developmental level
- Professionals will be able to sensitively discuss the results of the SACS-R tool with parents and carers and refer children with a high likelihood of autism for further diagnostic assessment and intervention services. This will be possible as a result of:
- confidence in the specificity, sensitivity and other psychometric properties of SACS-R checklists,
- group work and role play on raising concerns with parents and addressing parents’ queries and concerns,
- knowledge of the necessary referral pathways following a positive SACS-R result, and
- understanding of the importance of proactive referral and intervention to maximise the developmental outcomes for children on the autism spectrum.
Enrol Now by clicking the link below! and take advantage of our introductory rate of $399 + GST
Our Research and Outreach
This program is developed by Dr Josephine Barbaro, Senior Research Fellow and Registered Psychologist at the Olga Tennison Autism Research Centre at La Trobe University, and co-Founder and lead clinician in Australia's first 'Early Assessment Clinic' for Autism Spectrum Disorders (ASD).
Dr Barbaro's research interests are in the early identification and diagnosis of ASD in infants and toddlers, and family health and well-being following a diagnosis.
The Social Attention and Communication Surveillance (SACS) approach, developed during her PhD, has been translated in 8 languages and disseminated across 12 countries. The SACS was incorporated into the 7-year Tianjin Women and Child Health plan, China’s 4th largest city, where we trained 600 early childhood medical professionals in 2013 to monitor every baby born from 2013-2020 (700,000 in total). In Australia, the SACS has been used to monitor over 45,000 infants and toddlers in the Victorian and Tasmanian Maternal and Child Health (MCH) systems alone.
The efficacy of the SACS has been investigated in two large-scale studies in Victoria (SACS: 2006-08; SACS-Revised: 2013-18) where ~36,000 children were monitored as part of their routine MCH health checks between 12-24-months of age by ~400 trained MCH nurses. The children referred as having a “high likelihood” of autism (based on 3 of 5 “key” behaviours) were referred to the SACS team at La Trobe University for a diagnostic assessment, followed-up every 6 months until 24-months, and again at 3.5 years (Barbaro & Dissanayake, 2010; Mozolic-Staunton et al., 2020).
In September 2015, the Minister for Human Services in Tasmania (The Hon. Jacquie Petrusma) announced in Parliament that Tasmania was implementing SACS across the State. See this link for a summary of the training:
In September 2018, the Victorian Government announced that all 1250 Victorian Maternal and Child Health (MCH) nurses will be trained using the SACS method to monitor babies for autism at their routine health checks between 12- and 24-months-of-age. See:
A mobile application for parents and caregivers
Based on the SACS method, ASDetect is a free mobile app that guides parents through age-appropriate assessments, using videos of autistic and non-autistic children to illustrate questions about social communication milestones. Parents receive an on-screen result of either 'low' or 'high' likelihood of autism, and a comprehensive formal assessment results email, which they can take to their family doctor.
With over 65,000 downloads since launch in February 2016, ASDetect is now being translated into Mandarin Chinese and Spanish, bringing this groundbreaking early detection research to parents and caregivers around the world.
'Early Markers' or the early signs of autism
In children under 2 years old, the ‘early markers’ include infrequent or inconsistent use of:
- eye contact
- gestures, like pointing at objects
- response to being called by name
- imitation or copying others' activities.
These and other social communication milestones have been incorporated into 3 SACS assessments for children aged 12 months,18 months and 24 months, and used by trained Victorian Maternal and Child Health Nurses.
The SACS method currently has the best psychometric properties of any autism identification tool, with an accuracy of 81 - 83%, more than seven times more accurate than the next-best early detection tool.
Research papers – developmental surveillance
Barbaro, J., Masi, A., Gilbert, M., Nair, R., Abdullahi, I., Descallar, J., Dissanayake, C., Eastwood, J., Hasan, I., Jalaludin, B., Karlov, L., Khan, F., Kohlhoff, J., Liaw, S. T., Lingam, R., Mendoza Diaz, A., Ong, N., Tam, C. W. M., Unwin, K., Woolfenden, S., & Eapen, V. (2021). A Multistate Trial of an Early Surveillance Program for Autism Within General Practices in Australia [Study Protocol]. Frontiers in Pediatrics, 9(260). https://doi.org/10.3389/fped.2021.640359.
Mozolic-Staunton, B., Barbaro, J., Yoxall, J., & Donelly, M. (2021). Monitoring children’s development in early childhood education settings to promote early detection of autism. Australasian Journal for Early Childhood. https://doi.org/10.1177/1836939121998085.
Mozolic-Staunton, B., Donelly, M., Yoxall, J., & Barbaro, J. (2020). Early detection for better outcomes: universal developmental surveillance for autism across health and early childhood education settings. Research in Autism Spectrum Disorders. 71, 101496. doi.org/10.1016/j.rasd.2019.101496
Mozolic-Staunton, B., Donelly, M., Yoxall, J. & Barbaro, J. (2017). Interrater reliability of early childhood education professionals involved in developmental surveillance for autism spectrum disorder and related conditions. Australian Journal of Early Childhood, 42(2), 61-68.
Barbaro, J. & Dissanayake, C. (2013). Early markers of Autism Spectrum Disorders in infants and toddlers prospectively identified in the Social Attention and Communication Study (SACS). Autism: International Journal of Research and Practice, 17, 64-86.
Barbaro, J., Ridgway, L., & Dissanayake, C. (2011). Developmental surveillance of infants and toddlers by Maternal and Child Health nurses in an Australian community-based setting: Promoting the early identification of Autism. Journal of Pediatric Nursing, 26, 334-347.
Barbaro, J., & Dissanayake C. (2010). Prospective identification of Autism in infancy and toddlerhood using developmental surveillance: The Social Attention and Communication Study (SACS). Journal of Developmental and Behavioral Pediatrics, 31, 376-385.
Barbaro, J. & Yaari, M. (2020). Study Protocol for an Evaluation of ASDetect - A Mobile Application for the Early Detection of Autism. 20(1), 21. doi:10.1186/s12887-019-1888-6.
Research papers – intervention studies and outcomes of SACS identified children
Barbaro, J. & Dissanayake, C. (2012). Developmental profiles of infants and toddlers with Autism Spectrum Disorders identified prospectively in a community-based setting. Journal of Autism and Developmental Disorders, 42, 1939-1948.
Clark, M. L., Barbaro, J., & Dissanayake, C. (2017). Continuity and Change in Cognition and Autism Severity from Toddlerhood to School Age. Journal of Autism and Developmental Disorders, 47, 328-339. DOI: 10.1007/s10803-016-2954-7.
Clark, M. L., Vinen, Z., Barbaro, J., & Dissanayake, C. (2018). School age outcomes of children diagnosed early and later with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 48, 92-102.
Whitehouse, A. J. O., Varcin, K. J., Alvares, G. A., Barbaro, J., Bent, C., Boutrus, M., Chetcuti, L., Cooper, M. N., Clark, A., Davidson, E., Dimov, S., Dissanayake, C., Doyle, J., Grant, M., Iacono, T., Maybery, M., Pillar, S., Renton, M., Rowbottam, C., Sadka, N., Segal, L., Slonims, V., Taylor, C., Wakeling, S., Wan, M. W., Wray, J., Green, J., & Hudry, K. (2019). A randomised-controlled trial of a pre-emptive intervention for infants showing early behavioural risk signs of autism spectrum disorder. The Lancet Child and Adolescent Health. 3(9), 605-615. https://doi.org/10.1016/S2352-4642(19)30184-1.
Whitehouse, A. J. O. Varcin, K. J., Pillar, S., Billingham, W., Alvares, G. A., Barbaro, J., Bent, C. A., Blenkley, D., Boutrus, M., Chee, A., Chetcuti, L., Clark, A., Davidson, E., Dimov, S., Dissanayake, C., Doyle, J., Grant, M., Green, C., Harrap, M., Iacono, T., Matys, L., Maybery, M., Pope, D., Renton, M., Rowbottam, C., Sadka, N., Segal, L., Slonims, V., Smith, J., Taylor, C., Wakeling, S., Wan, M, W., Wray, J., Cooper, M. N., Green, J., & Hudry, K. (2021). Pre-emptive intervention for infants showing early behavioral signs of autism. JAMA Pediatrics.
Research papers – gender differences of SACS identified children
Hollier, L. P., Joshi, R., Barbaro, J., Dissanayake, C (2018). Gender Differences during Toddlerhood in Autism Spectrum Disorder: A Prospective Community-Based Longitudinal Follow-Up Study. Journal of Autism and Developmental Disorders, 48, 2619-2628.
Barbaro, J., & Freeman, N. (2021). Investigating gender differences in the early markers of Autism Spectrum Conditions (ASC) in infants and toddlers. Research in Autism Spectrum Disorders, 83, 101745. doi: 10.1016/j.rasd.2021.101745
Research papers – international implementation of SACS
Okuno, M., & Uehara, T. (2018). Early childhood behavioral features that discriminate autism from other developmental problems in Japan. Journal of Child and Adolescent Psychiatric Nursing 31(1):23-9. doi: 10.1111/jcap.12205
Mohd Zambri, N., Lau LHS., Koh, HC., Yeleswarapu, SP., Daniel, LM., & Wong, CM. (2019). Screening for Autism in Younger Siblings of Children with Autism: Preliminary Findings. Asia Pacific Autism Conference; Resorts World Convention Centre Singapore
Barbaro, J., Wang, C., Wang, J., Liu, G., Liang, Y., Wang, J., Abdullahi, I., & Dissanayake, C. (2020). A pilot investigation of the Social Attention and Communication Surveillance (SACS) tool for the early identification of autism in Tianjin, China (SACS-C). Frontier in Neurology, Paediatrics, 11, 1389. doi: 10.3389/fneur.2020.597790.
Shrestha, R., Barbaro, J. & Dissanayake, C. (2021). Changes in knowledge on the signs of autism in young children (11-30 Months) among Female Community Health Volunteers in Nepal. Journal of Autism and Developmental Disorders. doi: 10.1007/s10803-021-04944-7.
Shrestha, R., Dissanayake, C., & Barbaro, J. (2021). Implementing and evaluating Social Attention and Communication Surveillance (SACS) to prospectively identify autism in very young children in Nepal. Research in Developmental Disabilities.