Living with Disability Research Centre September 2019 Seminar

Event status:

September Seminar from the Living with Disability Research Centre

Wednesday 11 September 2019 03:00 pm until Wednesday 11 September 2019 05:00 pm (Add to calendar)
David Henderson; 03 9479 5740
Presented by:
Living with Disability Research Centre
Type of Event:
Current Student: Postgraduate; Public Lecture; Seminar/Workshop/Training

3:00 pm - Professor Christine Bigby - Developing an evidence-based practice framework to guide support for decision making

Director, Living with Disability Research Centre, La Trobe University

This presentation outlines the development of the La Trobe Support for Decision Making Practice Framework that can be applied by informal or paid supporters of people with intellectual disabilities or ABI. These two groups share in common stable – rather than declining – cognitive impairment, characterized by difficulties with executive function, self-direction and communication of varying severity. The framework was derived from a research program modelled on the Medical Research Council four-phase approach to development and evaluation of complex interventions. In phase one, we systematically reviewed the literature and explored the experiences of support for decision-making from the perspectives of people with cognitive disabilities and their supporters in several grounded theory studies. Phase two (feasibility and piloting) results supported phases three (evaluation) and four (implementation), which are currently underway. The framework outlines the steps, principles and strategies involved in support for decision-making. It focuses on understanding the will and preferences of people with intellectual disabilities and guides those who provide support, including families, support workers, guardians and health professionals.

4:00 pm - Dr Elizabeth Smith - Support for decision making: reviewing values and being committed to the rights of people with cognitive disability to decision making support

Research Fellow, Living with Disability Research Centre, La Trobe University

This presentation looks at the preliminary qualitative findings from the Support for Decision Making research project. The pre-training interviews from 14 dyads – consisting of either a person with an intellectual disability or an acquired brain injury and someone who supports them with their decision making – were analysed according to three aspects of the La Trobe Support for Decision Making Practice Framework. These were: (step 1) knowing the person and (step 2) identifying the decision; along with the three principles: commitment, orchestration, and reflection and review. The initial analysis of the qualitative data validated the usefulness of the Framework as well as extended our understanding about the steps and principles – including how they related to the different cohorts in this study.


Library Seminar Room 1.34 of the Borchardt Library, La Trobe University

Bochardt Library, La Trobe University

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16th Sep 2019 2:29pm

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