Living with Disability Research Centre Research Seminar Series

Event status:

March Seminar

Wednesday 10 March 2021 03:00 pm until Wednesday 10 March 2021 05:00 pm (Add to calendar)
Lauren De Losa
Presented by:
Living with Disability Research Centre
Type of Event:

Increasing  the participation of people with intellectual disabilities in physical activity

Four presentations look at recent and upcoming research about people with intellectual and developmental disabilities participating in physical activity.

Professor Nora Shields - La Trobe University

A new community-based study of exercise for people with Prader-Willi syndrome

Prader-Willi Syndrome is a rare genetic condition. It is common for people with Prader-Willi syndrome to have an intellectual disability and to experience difficulties with how they move. This can make it harder to participate in physical activities. This is a problem when managing your health involves a strictly controlled diet and daily exercise. This presentation will focus on a study we recently started called PRESTO to learn more about the effectiveness and cost-effectiveness of community-based exercise for people with Prader-Willi syndrome.

Associate Professor Jenny Downs - Head, Child Disability Health and Wellbeing, Telethon Kids Institute

How can we support girls and women with Rett syndrome to engage in more light physical activities?

Rett syndrome is a rare genetically caused neurodevelopmental condition associated with severe disability. People with Rett syndrome experience difficulties with gross motor skills, limiting their capacity to engage in physical activities and participation. Supports are usually needed for participation in light physical activities. There is limited evidence of the effectiveness of supported physical activity interventions in people with Rett syndrome. This presentation will discuss the barriers, enablers and strategies for promoting physical activity for people with Rett syndrome and how a participation model could inform how to increase physical activity, reduce sedentary behaviour and improve quality of life.

Cara Schofield - PhD Candidate, La Trobe University

What happens in a community gym setting when people with Prader-Willi syndrome are exercising? A focused ethnography study

We are using an ethnographic method to aid our understanding about what it is like for people with a developmental intellectual disability to go out and exercise in a community gym. This focused ethnography study is part of the PRESTO randomised control trial and will help assess if a structured gym routine is of benefit to people with Prader-Willi syndrome. The presentation will explore what happens in the community gym when people with Prader-Willi syndrome complete a program with an exercise professional.

Georgia McKenzie - PhD candidate, La Trobe University

What are the barriers and facilitators to participating in community gym exercise for young adults with cerebral palsy? A qualitative study

This study looked at the experiences of young adults with cerebral palsy who participated in a peer-supported gym-based exercise intervention called FitSkills. Many of these young adults had associated intellectual disabilities. They were matched with a student mentor who provided social support during the 12-week program and completed the exercises with them. This presentation will focus on the barriers and enablers to gym exercise and how this knowledge might be used to facilitate future participation in physical activity for this group.



21st Oct 2021 10:24pm

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