Living with Disability Research Centre Research Seminar Series

Event status:

February Seminar

Date:
Wednesday 10 February 2021 03:00 pm until Wednesday 10 February 2021 05:00 pm (Add to calendar)
Contact:
Lauren De Losa
Lids@latrobe.edu.au
Presented by:
Living with Disability Research Centre
Type of Event:
Public

Managing and coordinating individual support for people with intellectual disabilities

3:00pm Lyn Romeo

Chief Social Worker for Adults, England UK

Putting people at the heart of social work – the named social worker project in England 

The named social worker project was initiated by the Chief Social worker in the Department of Health and Social Care, in England in 2017. The project involved several local authorities, more than 50 social workers and over 400 people with intellectual disabilities, autism or mental health issues. The project aimed to test what difference it would make and what it would take in practice for people to have a named/allocated social worker who could be: 1) a trusted responsible practitioner who supports an individual and their family with a meaningful and consistent relationship, 2) a dedicated case worker who coordinates care and help makes peoples aspirations a reality, and 3), a professional voice of challenge and advocacy, always representing the person’s wishes. This seminar will explore the key aspects of the named social worker project and outline some of the findings from the programme at both the individual and systems level.

4:00pm Michelle King

PhD Candidate, Australian Centre for Health Law Research, Queensland University of Technology

“I do it for nothing": Parents as case managers

Parents of adult children with profound intellectual and multiple disabilities have many roles, and perhaps the least recognised is that of case manager. In addition to the physical and emotional support of everyday parenting and the added demands of complex and profound disabilities, parents of adult children with profound intellectual and multiple disabilities also undertake a coordination and management role for the multiple, complex services and supports needed to provide adequate care and quality of life for their child. Individualised case management is not provided by current support systems or funded by the NDIS, and much of this work falls to parents (usually women) or is not provided at all. The case management and advocacy role performed by family is vital, but it is also unrecognised, unsupported, poorly understood, and unpaid. Using my lived experience as parent to a 21-year-old daughter, and data from interviews with 18 parents of young adults with profound intellectual and multiple disabilities, this presentation explores the vexed issue of case management in the Australian context.

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