Living with Disability Research Centre June 2019 Seminar

Event status:

Dr Tal Araten Bergman on Models for Forming and Supporting Circles of Support for People with Intellectual Disability. Dr Robyn O'Halloran on why ​hospitals don’t measure the patient experience of patients with communication disability?

Wednesday 12 June 2019 03:00 pm until Wednesday 12 June 2019 05:00 pm (Add to calendar)
Melanie (Mim) Hayes; 03 9479 3826
Presented by:
Living with Disability Research Centre
Type of Event:
Future Student: Postgraduate; Current Student: Postgraduate; Public Lecture; Seminar/Workshop/Training

3:00 pm - Dr Tal Araten Bergman - Models for forming and supporting circles of support for people with intellectual disability

Lecturer, Social Work & Social Policy, La Trobe University

Circles of support involve a group of people coming together – on a voluntary basis with varying levels of formality – to support an individual through relationships of trust and intimacy. These innovative interventions have recently assumed particular importance in the field of intellectual disability, as they are perceived to be effective in harnessing social capital and promoting social inclusion, choice and control. In this presentation we will present findings from research conducted by the Living with Disability Research Centre and funded by Inclusion Melbourne through an NDIS Information Linkage and Capacity Building grant. The research aimed to analyse the organisational operation and perceived outcomes of circles of support programs. In depth and cross-case analysis revealed the variability in circles programs and outcomes. The comparison illustrated that key areas of staff practice, resources required and intended outcomes are primarily dependant on the nature of the person’s pre-existing informal network.

Slides from this presentation - Tal Araten-Bergman [PDF:300kb]

4:00 pm - Dr Robyn O'Halloran - Why don't hospitals measure the patient experience of patients with communication disability?

Senior Lecturer Speech Pathology, La Trobe University

Patient experience is an important indicator of the quality and safety of hospital care. In Victoria, the Department of Health measures patient experience by sending out the Victorian Healthcare Experiences Survey (VHES) to people who have been discharged from hospital. Recently, the Australian Commission of Safety and Quality in HealthCare (ACSQHC) released a core set of patient experience questions, so that hospitals across Australia can survey people about their patient experience in a consistent way. It sounds good, but where do these questions come from? Do these questions measure what’s important to people with communication disability when they are patients in hospital? If not, why not? And what are the implications if they don’t? In this presentation we will describe a series of studies that helped us recognise a serious problem with patient experience questions and the unexpected source of the problem.

Slides from this presentation - Robyn O'Halloran [PDF:1mb]


Library Seminar Room 1.34, Level 1 of the Borchardt Library, La Trobe University, Bundoora Campus

Borchardt Library, La Trobe University, Bundoora

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18th Nov 2019 1:50am

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