Dr Sophie Hill
Head, Centre for Health Communication and Participation, Coordinating Editor, Cochrane Consumers and Communication Review Group
College of Science, Health and Engineering
School of Psychology and Public Health
Department of Public Health
Health Sciences 2, room 417, Melbourne (Bundoora)
Centre for Health Communication and Participation
PhD La Trobe, MA La Trobe, BA (Hons) UMelb.
Area of study
Sophie Hill is the Head of the Centre for Health Communication and Participation (www.latrobe.edu.au/chcp ), at La Trobe University, a centre she has established from the foundation of the Cochrane Consumers and Communication Group (http://cccrg.cochrane.org/). The Centre investigates the best ways to increase the participation of consumers in health care through effective communication. Our '2015 Year in Review' report is here: http://www.latrobe.edu.au/chcp/about.
As Co-ordinating Editor of the Cochrane Group, she is responsible for academic leadership internationally in the areas of evidence-based health communication and participation. She is active in Cochrane, the international organisation and is a member of the Cochrane Knowledge Transfer Strategy Working Group.
In 2011, her book The Knowledgeable Patient was released by Wiley Blackwell, summarising much of the developmental research she has completed at the helm of the Cochrane Consumers and Communication Review Group (http://au.wiley.com/WileyCDA/WileyTitle/productCd-1444337173.html). She is active in consumer participation policy circles, being a member of Victoria’s Consumer Participation Reference Committee for the implementation of the policy ‘Doing it with us not for us’ for the Victorian Department of Health & Human Service from 2006 to 2016. She chaired its Subcommittee on Health Information and Health Literacy from 2011-2014.
Dr Hill is Senior Research Fellow at La Trobe University and was Head of Dpartment of Public Health from 2013-2014. She is the Subject Coordinator for Evidence-based Public Health in the Master of Public Health. Here she teaches the fundamentals of evidence-based concepts and practice to health service professionals working in community and hospital settings. She is also the Subject Coordinator of Service Users' Perspectives, a subject taught in the Master of Health Sciences (Rehabiltation Counselling).
Before joining La Trobe University, Dr Hill undertook consultancies for consumer groups and government on researching on patient experiences. From 1987 to 1992 she worked at the Health Issues Centre, a community-based consumer group, leading it from 1990-92.
- Health literacy
PHE5/6EBP: Evidence-based Public Health, http://www.latrobe.edu.au/students/subjects/2015/PHE5EBP
PHE5SUP: Service Users' Perspectives, http://www.latrobe.edu.au/students/subjects/2015/PHE5SUP
Peer reviewed journal articles:
Walsh L, Hill S, Allan M, Balandin S, Georgiou A, Higgins I, Krall B, McCarthy S, Hemsley B. 2017. A content analysis of the consumer-facing online information about My Health Record: Implications for increasing knowledge and awareness to facilitate uptake and use. Health Information Management Journal. Advance online publication. DOI:10.1177/183335817712200
Meyer C, Dow B, Hill K, Hill S. Sharing knowledge of falls prevention for people with dementia: Insights for community care practice. Australian Journal of Primary Health. Accepted 23 May 2017.
Kaufman J, Ryan R, Ames H, Bosch-Capblanch X, Cartier Y, Cliff J, Glenton C, Lewin S, Muloliwa AM, Oku A, Oyo-Ita A, Rada G, Hill S, 2017. The comprehensive 'Communicate to Vaccinate' taxonomy of communication interventions for childhood vaccination in routine and campaign contexts. BMC Public Health 17:423.
Pollock A, Campbell P, Struthers C, Synnot A, Nunn J, Hill S, Goodare H, Watts C, Morley R. 2017. Stakeholder involvement in systematic reviews: a protocol for a systematic review of methods, outcome and effects. Research Engagement and Involvement 3:9. DOI 10.1186/s40900-017-0060-4.
Muloliwa AM, Cliff J, OKU A, Oyo-Ita A, Glenton C, Ames H, Kaufman J, Hill S, Cartier Y, Bosch-Capblanch X, Rada G, Lewin S. 2017. Using the COMMVAC taxanomy to map vaccination commuinication interventions in Mozambique. Global Health Action 10(1).doi.org/10.1080/165497.2017.1321313
Lowe DB, Taylor MJ, Hill SJ. 2017. Multimorbidity increases likelihood of additional burden among working-age sub-populations with any musculoskeletal conditions. BMC Musculoskeletal Disorders 18:135. DOI: 10.1186/s12891-017-1496-2.
Kaufman J, Ryan R, Glenton C, Lewin S, Bosch-Capblanch X, Cartier Y, Cliff J, Oyo-Ita A, Ames H, Muloliwa AM, Oku A, Rada G, Hill S. 2017. Childhood vaccination communication outcomes unpacked and organized in a taxonomy to facilitate core outcome establishment. Journal of Clinical Epidemiology. Online 24 February 2017. DOI: 10.1016/j.jclinepi.2017.02.007.
Oku AO, Oyo-Ita A, Glenton C, Fretheim A, Eteng G, Ames H, Muloliwa A, Kaufman J, Hill S, Cliff J, Cartier Y, Bosch-Capblanch X, Rada G, Lewin S. 2017. Factors affecting the implementation of childhood vaccination communication strategies in Nigeria: a qualitative study. BMC Public Health 17:200, DOI 10.1186/s12889-017-4020-6.
Tong A, Sautenet B, Chapman JR, Harper C, MacDonald P, Shackel N, Crowe S, Hanson CS, Hill S, Synnot A, Craig JC. 2017. Research priority setting in organ transplantation: a systematic review. Transplant International. 21 February. DOI: 10.1111/tri.12924.
Lowe D B, Taylor MJ, Hill SJ. 2017. Estimating the joint issues of musculoskeletal conditions and multimorbidity: implications of different thresholds and definitions. BMC Research Notes 10:51, DOI 10.1186/s13104-017-2376-4.
Hill S. Sofra T. 2017. How could health information be improved? Implications of the findings from a Victorian Consultation on Health Literacy. Australian Health Review. Early online version 7 March. http://dx.doi.org/10.1071/AH16106.
Hemsley B, McCarthy S, Georgiou A, Adams N, Hill, Balandin S. 2017. Legal, ethical, and rights issues in the adoption and use of the personally controlled electronic health record ‘My Health Record’ by people with communication disabilities in Australia. Journal of Intellectual and Developmental Disability. Published online 27 February 2017. DOI: 10.3109/13668250.2017.1294249.
Colquhoun HL, Helis E, Lowe D, Belanger D, Hill S, Mayhew A, Taylor M, Grimshaw JM. 2016. Development of training for medicines-oriented policy makers to apply evidence. Health Research Policy and Systems 14:57, DOI 10.1186/s12961-016-0130-3.
Colquhoun H, Lowe D, Helis E, Belanger D, Ens B, Hill S, Mayhew A, Taylor M, Grimshaw J. 2016. Evaluation of a training program for medicines-oriented policy makers to use a database of systematic reviews. Health Research Policy and Systems 14:70, DOI: 10.1186/s12961-016-0140-1.
Walsh L, Hill S, Wluka A, Brooks P, Buchbinder R, Cahill A, Dans L, Lowe D, Taylor M, Tugwell P. 2016. Harnessing and supporting consumer involvement in the development and implementation of Models of Care for musculoskeletal health. Best Practice and Research in Clinical Rheumatology 30(3), 420-444.
Ryan RE, Hill SJ. 2016. Making rational choices about how best to support consumers' use of medicines: a perspective review. Therapeutic Advances in Drug Safety 7:4, 159-164, DOI: 10.1177/2042098616651198.
Hemsley B, Georgiou A, Carter R, Hill S, Higgins I, van Vliet P, Balandin S. Use of the My Health Record (MyHR) by people with communication disability in Australia: a review to inform the design and direction of future research. Health Information Management Journal 45:3.
Santesso N, Morgano GP, Jack SM, Haynes RB, Hill S, Treweek S, Schunemann HJ and the DECIDE Workpackage 3 Group. 2016. Dissemination of Clinical Practice Guidelines: A Content Analysis of Patient Versions. Medical Decision Making 36:6, 692-702.
Lowe D, Taylor M, Hill S. 2016. Changing definitions altered multimorbidity prevalence, but not burden associations, in a musculoskeletal population. Journal of Clinical Epidemiology 78, 116-126. http://dx.doi.org/10.1016/j.jclinepi.2016.03.016.
Oku A, Oyo-Ita A, Lewin S, Glenton C, Fretheim A, Ames H, Kaufman J, Hill S, Cartier Y, Cliff J, Muloliwa A, Rada G, Bosch-Capblanch X. 2016. Communication strategies to promote the uptake of childhood vaccination in Nigeria: A systematic map. Global Health Action 9:30337. DOI: 10.3402/gha.v9.30337.
Colombo C, Filippini G, Synnot A, Hill S, Guglielmino R, Traversa S, Confalonieri P, Mosconi P, Tramacere I. 2016. Development and assessment of a website presenting evidence-based information for people with multiple sclerosis: the IN-DEEP project. BMC Neurology 616:30, DOI: 10.1186/s12883-016-0552-0.
Hemsley B, Georgiou A, Hill S, Rollo M, Steel J, & Balandin S. 2016. An Integrative Review of Patient Safety in Studies on the Care and Safety of Patients with Communication Disabilities in Hospital. Patient Education and Counseling 99:4, 501-511. DOI: 10.1016/j.pec.2015.10.022.
Kaufman J, Ryan R, Bosch-Capblanch X, Cartier Y, Cliff J, Glenton C, Lewin S, Rada G, Ames H, Muloliwa AM, Oku A, Oyo-Ita A, Hill S. 2016. Outcomes mapping study for childhood vaccination communication: too few concepts were measured in too many ways. Journal of Clinical Epidemiology 72:33-44. http://dx.doi.org/10.1016/j.jclinepi.2015.10.003.
Meyer C. Hill K, Hill S, Dow B. (2015) Translating falls prevention knowledge for community-dwelling people living with dementia: Design protocol for a mixed-method intervention. Journal of Alzheimer’s Disease & Parkinsonism 5:185, DOI: 10.4172/2161-0460.1000185.
Ames H, Njang DM, Glenton C, Fretheim A, Kaufman J, Hill S, Oku A, Cliff J, Cartier Y, Bosch-Capblanch X, Rada G, Muloliwa A, Oyo-Ita A, Lewin S. 2015. Mapping how information about childhood vaccination is communicated in two regions of Cameroon: What is done and where are the gaps? BMC Public Health 15:1264, DOI: 10.1186/s12889-015-2557-9.
Lowe DB, Taylor MJ, Hill SJ. 2015. Communication vulnerabilities in working-age Australians with musculoskeletal conditions, a cross–sectional analysis. The Journal of Rheumatology 42:8,1484-1493, DOI: https://doi.org/10.3899/jrheum.140989.
Hemsley B, Balandin S, Sheppard JJ, Georgiou A, Hill S. (2015) A Call for Dysphagia-Related Safety Incident Research in People with Developmental Disability. Journal of Intellectual & Developmental Disability, 3 Jan 2015, DOI: 10.3109/13668250.2014.994172
Synnot AJ, Hill SJ, Garner KA, Summers MP, Filippini G, Osborne RH, Shapland SDP, Colombo C, Mosconi P (2014) Online health information-seeking: how people with multiple sclerosis find, assess and integrate treatment information to manage their health. Health Expectations, early online, doi: 10.1111/hex.12253.
Colombo C, Mosconi P, Confalonieri P, Baroni I, Traversa S, Hill SJ, Synnot AJ, Oprandi N, Filippini G. (2014) Web search behavior and information needs of people with multiple sclerosis: the qualitative stage of the Italian IN-DEEP project. Interactive Journal of Medical Research 3(3):e12, DOI: 10.2196/ijmr.3034
Ryan R, Santesso N, Lowe D, Hill S, Grimshaw J, Prictor M, Kaufman C, Cowie G, Taylor M. (2014) Interventions to improve safe and effective medicines use by consumers: an overview of systematic reviews. Cochrane Database of Systematic Reviews 2014, Issue 4. Art. No.: CD007768. DOI: 10.1002/14651858.CD007768.pub3.
Synnot A, Hill S, Summers M and Taylor M. (2014) Comparing face-to-face and online qualitative research with people with multiple sclerosis. Qualitative Health Research, 24(3), 431-438.
Meyer C, Hill S, Dow B, Synnot A, Hill K. Translating falls prevention knowledge to community-dwelling older people living with dementia: a mixed-method systematic review. The Gerontologist, 2013. doi: 10.1093/geront/gnt127.
Pitt VJ, Lowe D, Prictor M, Hetrick S, Ryan R, Berends L, Hill S. 2013. A systematic review of consumer-providers’ effects on client outcomes in statutory mental health services: the evidence and the path beyond. Journal for the Society of Social Work and Research 4(4).
Prictor M, Hill S. 2013. The Cochrane Consumers and Communication Review Group: leading the field on health communication evidence. Journal of Evidence-based Medicine. 27 September, doi: 10.1111/jebm.12066.
Kaufman J, Synnot A, Ryan R, Hill S, Horey D, Willis N, Lin V, Robinson P (2013) Face to face interventions for informing or educating parents about early childhood vaccination. Cochrane Database Systematic Reviews Issue 5. Art. No.: CD010038. DOI: 10.1002/14651858.CD010038.pub2.
Willis N, Hill S, Kaufman J, Lewin S, Kis-Rigo J, Bensaude De Castro Freire S, Bosch-Capblanch X, Glenton C, Lin V, Robinson P, Wiysonge CS (2013) 'Communicate to vaccinate': The development of a taxonomy of communication interventions to improve routine childhood vaccination. BMC International Health and Human Rights 13:23. doi:10.1186/1472-698X-13-23. http://www.biomedcentral.com/1472-698X/13/23
Pitt V, Lowe D, Hill S, Prictor M, Hetrick SE, Ryan R, Berends L (2013) Consumer-providers of care for adult clients of statutory mental health services. Cochrane Database of Systematic Reviews, Issue 3. Art. No.: CD004807. DOI: 10.1002/14651858.CD004807.pub2.
Ryan R, Hill S. (2013) Improving the experiences and health of people with multimorbidity: exploratory research with policy makers and information providers on comorbid arthritis. Australian Journal of Primary Health. http://dx.doi.org/10.1071/PY12083
Tovey D, MacLehose H, Chandler J, Hill S, Hilton J. (2012) The Cochrane Library: revolution or evolution? Shaping the future of Cochrane content. Cochrane methods. Cochrane Database of Systematic Reviews, Suppl 1: 9.
Grimshaw JM, Eccles MP, Lavis JN, Hill SJ, Squires JE. (2012) Knowledge Translation of Research Findings. Implementation Science, 7:50. www.implementationscience.com/content/7/1/50
Hill S, Filippini G, Synnot A, Summers M, Beecher D, Colombo C, Mosconi P, Battaglia MA, Shapland S, Osborne RH, Hawkins M. (2012) Presenting evidence-based health information for people with multiple sclerosis: The IN-DEEP project protocol. BMC Medical Informatics and Decision Making 12:20.
Lewin S, Hill S, Abdullahi LH, Bensaude de Castro Freire S, Bosch-Capblanch X, Glenton C, Hussey GD, Jones CM, Kaufman J, Lin V, Mahomed H, Rhoda L, Robinson P, Waggie Z, Willis N, Wiysonge CS. ‘Communicate to vaccinate’ (COMMVAC). Building evidence for improving communication about childhood vaccinations in low- and middle-income countries: protocol for a programme of research (2011) Implementation Science 6:125 (2 December 2011), http://www.implementationscience.com/content/6/1/125
The Knowledgeable Patient: Communication and Participation in Health. October 2011. S. Hill (ed). Wiley Blackwell, UK. [http://au.wiley.com/WileyCDA/WileyTitle/productCd-1444337173.html]
Recent book chapters:
Stacey D and Hill S (2013). The Knowledge to Action Cycle. Selecting KT interventions: Patient-direct and Patient-mediated KT Interventions. In: Graham I, Strauss S (eds), Knowledge Translation in Health Care. 2nd edition.
Hill S. (2013) Involving the user in health research. In: Saks M, Allsop J (eds), Researching Health: Qualitative, quantitative and mixed methods, Sage Publications, London. 2nd edition, pp. 384-401.
Hill S, Prictor M (2011) Does communication with consumers and carers need to improve? In: Hill S (ed), The Knowledgeable Patient: Communication And Participation in Health, Wiley Blackwell, UK, pp. 1-11.
Hill S, Draper M (2011) A new conceptual framework for advancing evidence-informed communication and participation. In: Hill S (ed), The Knowledgeable Patient: Communication And Participation in Health, Wiley Blackwell, UK, pp. 12-26.
Hill S, Lowe D, Ryan R (2011) Interventions for communication and participation: their purpose and practice. In: Hill S (ed), The Knowledgeable Patient: Communication And Participation in Health, Wiley Blackwell, UK, pp. 27-39.
Hill S, Lowe D, McKenzie J (2011) Identifying outcomes of importance to communication and participation. In: Hill S (ed), The Knowledgeable Patient: Communication And Participation in Health, Wiley Blackwell, UK, pp. 40-53.
Hill S, Kaufman J (2011) What does participation mean? Reshaping our understanding of the meaning of surgery. In: Hill S (ed), The Knowledgeable Patient: Communication And Participation in Health, Wiley Blackwell, UK, pp. 67-81.
Ryan R, Kaufman J, Hill S (2011) Disclosure: a case study of communication about medically-acquired risk for a rare disease. In: Hill S (ed), The Knowledgeable Patient: Communication And Participation in Health, Wiley Blackwell, UK, pp. 82-93.
Dilkes H, Kaufman J, Hill S (2011) How I used a systematic review from The Cochrane Library. In: Hill S (ed), The Knowledgeable Patient: Communication And Participation in Health, Wiley Blackwell, UK, pp. 93-104.
Lowe D, Hill S, Ryan R (2011) Evidence and resources for systems decision making: improving the experience of health and treatment. In: Hill S (ed), The Knowledgeable Patient: Communication And Participation in Health, Wiley Blackwell, UK, pp. 105-114.
Horey D, Kaufman J, Hill S (2011) Getting the most out of research: using what we know. In: Hill S (ed), The Knowledgeable Patient: Communication And Participation in Health, Wiley Blackwell, UK, pp. 143-150.
Ryan R, Hill S (2011) Managing multiple health problems: is there evidence to support consumer-focused communication and participation? In: Hill S (ed), The Knowledgeable Patient: Communication And Participation in Health, Wiley Blackwell, UK, pp. 161-172.
Hill S, Johnson M, Draper M (2011) Partners in care – an evidence-informed approach to improving communication with women in a hospital setting . In: Hill S (ed), The Knowledgeable Patient: Communication And Participation in Health, Wiley Blackwell, UK, pp. 173-183.
Hill S, Lowe D, Liu G, Santesso N (2011) Building health literate societies. In: Hill S (ed), The Knowledgeable Patient: Communication And Participation in Health, Wiley Blackwell, UK, pp. 184-195.
Dilkes H, Kaufman J, Hill S (2011) Tools for building research capacity and knowledge transfer. In: Hill S (ed), The Knowledgeable Patient: Communication And Participation in Health, Wiley Blackwell, UK, pp. 196-207.
Hill, S. (2014) Report of the Victorian 2014 Consultation on Health Literacy. Melbourne: Centre for Health Communication and Participation, La Trobe University. http://www.latrobe.edu.au/chcp/publications
Taylor M and Hill S. (2014) ‘Consumer expectations and healthcare in Australia’. Prepared for the National Lead Clinicians Group. June. The Deeble Institute, Australian Healthcare and Hospitals Association, Canberra. http://ahha.asn.au/publication/issue-briefs/consumer-expectations-and-healthcare-australia.
Farquhar C, Hill S, Bero L, Tovey D. (2014) Commercial Sponsorship Policy, Cochrane Collaboration policy on commercial sponsorship of Cochrane reviews and Cochrane groups, March 2014, At http://www.cochrane.org/organisational-policy-manual/appendix-5-commercial-sponsorship-policy
Ryan R, Weir M, Leslie B, Worswick J, Lowe DB, Hill SJ (2011) Evidence on Optimal Prescribing and Medicines Use for Decision Makers: Scope and Application of the Rx for Change Database. Journal of Pharmacy Practice and Research, 41: 4.
Ryan R, Santesso N, Hill S, Lowe D, Kaufman C, Grimshaw J (2011) Consumer-oriented interventions for evidence-based prescribing and medicines use: an overview of systematic reviews. Cochrane Database of Systematic Reviews, Issue 5.
Cowie GA, Hill S, Robinson P. (2011) Using an online service for breastfeeding support: what mothers want to discuss. Health Promotion Journal of Australia, 22: 113-118.
Ryan R, Hill S, Lowe D, Allen K, Taylor M, Mead C (2011) Notification and support for people exposed to the risk of Creutzfeldt-Jakob disease (CJD) (or other prion diseases) through medical treatment (iatrogenically). Cochrane Database of Systematic Reviews, Issue 3.
Weir M, Ryan R, Mayhew A, Worswick J, Santesso N, Lowe D, Leslie B, Stevens A, Hill S, Grimshaw J (2010) The Rx for Change Database: A first-in-class tool for optimal prescribing and medicines use Implementation Science, Issue 5.
Lowe D, Ryan R, Santesso N, Hill S (2010) Development of a taxonomy of interventions to organise the evidence on consumers' medicines use, Patient Education and Counseling. DOI: 10.1016/j.pec.2010.09.024.
Glasziou P, Chalmers I, Altman DG, Bastian H, Boutron I, Brice A, Jamtvedt G, Farmer A, Ghersi D, Groves T, Heneghan C, Hill S, Lewin S, Michie S, Perera R, Pomeroy V, Tilson J, Shepperd S, Williams JW (2010) Taking healthcare interventions from trial to practice, BMJ, 341:c3852, 384-387.
Hill S, Spink J, Cadilhac D, Edwards A, Kaufman C, Rogers S, Ryan R, Tonkin A (2010). Absolute risk representation in cardiovascular disease prevention: comprehension and preferences of health care consumers and general practitioners involved in a focus group study. BMC Public Health, 10:108. DOI:10.1186/1471-2458-10-108, http://www.biomedcentral.com/1471-2458/10/108
Hill S (2009) Editorial. Directions in Health Communication. Bulletin of the World Health Organization 87:648-648.http://www.who.int/bulletin/volumes/87/9/09-070680/en/
Ryan R, Kaufman C and Hill S (2009) Building blocks for meta-synthesis: data integration tables for summarising, mapping, and synthesising evidence on interventions for communicating with health consumers, BMC Medical Research Methodology, 9:16. DOI:10.1186/1471-2288-9-16.http://www.biomedcentral.com/1471-2288/9/16
Draper M, Hill S (1995) The role of patient satisfaction surveys in a national approach to hospital quality management. A report to the Commonwealth Department of Human Services and Health, Canberra.
Centre for Health Communication and Participation and related research projects at www.latrobe.edu.au/chcp.
Cochrane Consumers and Communication Review Group, http://cccrg.cochrane.org/
Hemsley B, Balandin S, Georgiou A, Hill S. Personally Controlled Electronic Health Records for young adults with communication disabilities: charting the course for successful child to adult health service transition. NHMRC Project grant, 2014-2017.
Hemsley B, Georgiou A, Hill S. Keeping people with communication disability safe in hospital. NHMRC Project grant, 2013-2015.
Lewin S, Hill S, Bensaude De Castro Freire S, Bosch-Capblanch X, Carlsen B, Cliff J, Etokidem, Lin V, Muloliwa A, Oyo-Ita A, Rada G. ‘Communicate to vaccinate’ (COMMVAC) 2: Implementing communication interventions to improve childhood vaccination uptake in low income countries. Global Health and Vaccination Research (GLOBVAC). Research Council of Norway. 2013-2016. http://www.commvac.com/
Lewin S, Hill S, Hussey G, Lin V, Robinson P, Mittelmark M. ‘Communicate to vaccinate’ (COMMVAC): Building evidence for improving communication about childhood vaccinations in low- and middle-income countries. Global Health and Vaccination Research (GLOBVAC). Research Council of Norway. 2010-2012. http://www.commvac.com/
Hill S, Filippini G, Osborne R, Summers M, Multiple Sclerosis Australia National Services Leadership Group (S. Shapland signatory). 00025. Integrating and deriving evidence, experiences and preferences (IN-DEEP): developing research-based health information applicable to decision making and self-management by people with multiple sclerosis. MS Research Australia Grant Application 00025. (2010-12). http://www.makingsenseofmsresearch.org.au/