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Resources
If you are living with aphasia, are a family member, a carer or a healthcare professional, we have a number of helpful resources and organisations (Australian & International) that can provide you with additional information and support.
Helpful links for people with aphasia, family & carers
Aphasia CRE Resources
Seminar Series Video Recordings
Aphasia CRE Seminar Series now on YouTube - youtube.com/@aphasiacre
Australian and international specialist guest presenters share their expertise and research. The Aphasia CRE provides free access to seminars and we welcome you to join our Community of Practice to receive invitations for upcoming seminars and events. Past seminars can be viewed on our YouTube channel.
Professional Development - Health Professionals are welcome to watch these seminars free of charge to aid in your professional development.
- Seminar Series Introduction - by Prof Miranda Rose, Aphasia CRE Centre Director (Watch this first)
2024 Seminars -
- Seminar 47 - Co-constructing Stories: Supporting People with Aphasia in Meaning-Making and Moving Forward. Presentation by: Dr Katie A. Strong
- Seminar 46 - Inner Speech in Aphasia: Considerations for measurement, and implications for understanding daily life with aphasia, the language system, and response to therapy. Presentation by: Dr Brielle C. Stark
2023 Seminars-
- Seminar 45 - Implementing evidence into practice in aphasia services: Priorities and Practical Steps. Presentation by: Dr Kirstine Shrubsole
- Seminar 44 - The First Four Years of the Queensland Aphasia Research Centre: Are the Times A-Changin? Presentation by: Prof David Copland, QARC. University of Queensland
- Seminar 43 - Adapting measures, processes and interventions for people with cognitive and communication difficulties to enable meaningful participation in valued activities. Presentation by: A/Prof Dana Wong, La Trobe University
- Seminar 42 - Enabling speech pathologists (SPs) to feel confident and competent in counselling for supporting psychological wellbeing in people affected by post-stroke aphasiaPresentation by: Dr Jasvinder Sekhon, La Trobe University
- Seminar 41 - Clinical delivery and evaluation of the Comprehensive, High-dose Aphasia Treatment (CHAT) program. Presentation by: Dr Jade Dignam. QARC, The University of Queensland
- Seminar 40 - Music-based interventions in aphasia rehabilitation Presentation by: Dr. Aleksi Sihvonen. Helsinki University Hospital and Senior Researcher University of Helsinki, Finland.
- Seminar 39 - Examining the role of treatment dose in post-stroke aphasia recovery. Presentation by: Dr Sam Harvey. University of Queensland
- Seminar 38 - Recovery from Aphasia in the first year after stroke. Presentation by: Associate Professor Stephen Wilson, University of Queensland
- Seminar 37 - Quality of Life and Self-management in Aphasia and Older Age - Biographic-narrative intervention and peer support. Presentation by: Dr Sabine Corsten, Catholic University of Applied Sciences, Mainz, Germany.
- Seminar 36 - The road less travelled: charting a path towards the consistent inclusion of people with aphasia in stroke research. Presentation by: Dr Ciara Shiggins, QARC. University of Queensland.
Join our Community of Practice mailing list for notifications on future seminars, news, events and updates.
Previous Seminars -
- Seminar 35 - ADaPT: Aphasia, Depression, and Psychological Treatment: modified cognitive behavioural therapy to treat depression in stroke survivors with aphasia. Presentation by: A/Prof Rene Stolwyk and Sonia Thomas
- Seminar 34 - TeleCHAT: Preliminary findings from the first ICAP to be delivered via telerehabilitation. Presented by Dr Annie Hill (Aug 2022)
- Seminar 33 - Driving quality improvement through Meaningful Evaluation of Aphasia SeRvicES (MEASuRES). Presentation By Dr Sarah J Wallace (July 2022)
- Seminar 32 - Accessible healthcare for people with aphasia through trained staff. Presentation by Dr Jytte Isaksen (June 2022)
- Seminar 30 - ‘Isn’t it obvious? You have to involve us in the design phase, because we will be the ones who end up using it’: Developing and testing ListenIn. Presented by Dr Sonia Brownsett & Mr Rupert Lynch (April 2022)
- Seminar 29 - What does the ASK study tell us about preventing depression in aphasia? Presentation by: Professor Emerita Linda Worrall (Feb 2022)
- Seminar 28 - Family-focused management of people with aphasia who have children. Presentation by Dr Brooke Ryan.
- Seminar 27 - Reporting on LUNA - a novel discourse intervention for people with mild to moderate aphasia. Presentation by Dr Madeline Cruice and Dr Lucy Dipper, University of London.
- Seminar 26 - Low-moderate intensity aphasia intervention – a pilot trial of Constraint Induced Aphasia Therapy and Multi-Modality Aphasia Therapy, presentation by Dr John Pierce, La Trobe University
- Seminar 25 - Constraint Induced Aphasia Therapy or Multi-Modality Aphasia Therapy: which is better and for whom? Results of the COMPARE RCT investigating CIAT Plus, M-MAT and usual care in people with chronic post-stroke aphasia presented by Prof Miranda Rose
- Seminar 24 - Applying the clinical “crystal ball” to aphasia treatment outcome. Presentation by Professor Julius Fridriksson, University of South Carolina.
- Seminar 23 - Predicting and explaining speech and language outcome and recovery in adult stroke survivors. Presentation by Professor Cathy Price, University College London. No recording is available for this seminar **
- Seminar 22 - Clinical Effectiveness of The Queen Square Intensive Comprehensive Aphasia Service for Patients with Post-Stroke Aphasia with Professor Jenny Crinion: Professor of Cognitive Neuroscience and Clinical Speech and Language Therapist, University College London and Professor Alex Leff: Professor of Cognitive Neurology and Consultant Neurologist, University College London (June 2021)
- Seminar 21 - Management of communication disability in the first 90 days after stroke: a scoping review, Presentation by Dr Caroline Baker (May 2021)
- Seminar 20 - Language and Epilepsy: Reasons for Speech and Language Pathologist involvement. Presentation by Dr Sonia Brownsett & Dr Lisa Gillinder (April 2021)
- Seminar 19 - What is therapy? Treatment fidelity and aphasia. Presented by Dr Emily Brogan (March 2021) (apologies for the broken link, we are working on fixing it)
- Seminar 18 - The three variants of primary progressive aphasia: What are they and what helps?” - Dr Anna Volkmer, University College London, UK. (Feb 2021)
- Seminar #17 - Living Stroke Guidelines: how does this support best practice care to people with aphasia? - Kelvin Hill from the Stroke Foundation Australia. (Dec 2020)
- Seminar #16 - Lessons learnt in implementation trials and how to improve implementation of high level evidence in health care settings. Professor Sandy Middleton (Nov 2020) - No recording available for this seminar **
- Seminar #15 - Preservation of singing skills and rehabilitative efficacy of music in stroke and aphasia - Associate Professor Teppo Särkämo. University of Helsinki. (Oct 2020)
- Seminar #14 - “Supporting wellbeing through peer-befriending: Results from the SUPERB feasibility randomised controlled trial” - Professor Katerina Hilari, Professor of Acquired Communication Disorders, City University London
- Seminar #13 - “Improving inclusion in stroke clinical trials and research” - Professor Julie Berhardt
- Seminar #12 - The Australian Stroke Clinical Registry: Progress over 10 years and relevance to those with aphasia. Can we do more? Professor Dominique Cadilhac, Monash University
- Seminar #11 - Dementia: New ideas for an old problem. -Professor Richard I Lindley, The University of Sydney
- Seminar #10 - Understanding and predicting outcomes in aphasia rehabilitation. Prof Swathi Kiran Professor & Doctoral Program Coordinator, Speech, Language and Hearing Sciences, Associate Dean for Research, Sargent College of Health and Rehabilitation Sciences, Boston University
- Seminar #9 -Online aphasia group therapy: feasibility, outcomes, lessons learned. Dr Rachelle Pitt, Director of Research and Innovation for West Moreton Health in Queensland.
- Seminar #8 - Hospital care for people with aphasia: A long term perspective, Dr Robyn O'Halloran. La Trobe University.
- Seminar #7 - Psychological management of stroke. Presented by Professor Ian Kneebone, University of Technology Sydney Aphasia CRE Chief Investigator (Feb 2020)
- Seminar #6 - Neurobiological principles and predictors of aphasia recovery - Presented by Professor David Copland, University of Queensland Aphasia CRE Chief Investigator (Jan 2020)
- Seminar #5 - Very early aphasia management. Presented by Assoc Prof Erin Godecke Senior Research Fellow at Edith Cowan University. Aphasia CRE Chief Investigator (Nov 2019)
- Seminar #4 - Sexuality and intimacy after stroke: is it really any of our business? Presentation by Associate Professor Emma Power, University of Technology Sydney, Graduate School of Health on behalf of the Sydney Sexuality Group. Aphasia CRE Associate Investigator (Oct 2019)
- Seminar # 3 - Who benefits, and why? Person specific and practice-related predictors of naming treatment response in aphasia. Presented by Ass Prof Mike Dickey, Department of Communication Science and Disorders. University of Pittsburgh, USA. (Sept 2019)
- Seminar # 2 - Improving the Quality of Life in Aphasia. The effectiveness of the biographical narrative approach in different settings. Presented by Prof Sabine Corsten. Catholic University of Applied Sciences, Mainz, Germany. (Aug 2019)
- Seminar # 1 - Technology Solutions to Healthcare Communication. Presented by Prof Leanne Togher, Aphasia CRE Chief Investigator (Jul 2019)
** Please note Seminars are recorded only when we receive permission to do so from the presenter. There are many reasons why the presenter may not wish for these to be recorded and we are grateful to all of our presenters for their generous contributions to the Aphasia CRE seminar series. There is also the possibility that technology will not be our friend on the day so we recommend registering and attending on the day.
Healthcare Communication Support Resources - including COVID-19
Repository developed by the Aphasia CRE for healthcare professionals working with people with aphasia. It provides resources that can be used to support conversations with people with aphasia or given to people with aphasia or family members to support them during this time. The aim of the repository is to disseminate resources widely and to reduce production time and resource duplication.
Resources for health professionals to assist you in working with people with aphasia, download a PDF or Excel file
(Occasionally links time out, please try again)
- Resources have been collected from aphasia professionals internationally, government sources and international health sites and we would like to thank all involved for their contributions
- This repository includes resources in both English and other languages
- The resource list is updated regularly
- Questions should be directed to the source of the link listed
- If you have additional unique resources to add, please email with original source information and links or PDF’s
Guidelines for Aphasia friendly documentation developed by the UK Stroke Association: accessible_information_guidelines.pdf1_.pdf (stroke.org.uk)
Video Abstract Resources (CATs)
Developing an aphasia-friendly video abstract
The aim of this guide is to help researchers to produce a video abstract for people with aphasia. It contains practical support in terms of technical tips, slide/video templates, software and technology suggestions, reflections on video production and examples of aphasia-friendly video abstracts.
This project was produced by the following researchers from the Centre of Research Excellence in Aphasia Recovery and Rehabilitation (Aphasia CRE), supported by funding from the Tavistock Trust for Aphasia and the Collaboration of Aphasia Trialists and the Aphasia CRE:
- Caroline Baker
- Marcella Carragher
- Sam Harvey
- John Pierce
- Miranda Rose
- Ciara Shiggins
- Sarah Wallace
List of documents within this guide
- Developing an Aphasia-friendly video abstract - The ‘why’ and ‘how’ of creating an abstract. Read first!
- Video abstracts – PowerPoint tips - Tips and tricks for things like animations, images, etc., held within a PowerPoint document
- Template for aphasia-friendly video abstracts - A template PowerPoint to get you started – edit as needed
- Pierce et al. abstract - The original PowerPoint document of a completed video abstract – to show you how it comes together
- Storyboard template - A template table to make a storyboard
Download the guide here
COMPARE Resources
The main results of the COMPARE research trial are now published in the Journal of Neurology, Neurosurgery and Psychiatry. The link to the publication is here: http://dx.doi.org/10.1136/jnnp-2021-328422
We have created aphasia friendly information about the trial that you can find here:
More detailed information on COMPARE is available on the Compare Trial Webpage .
Build your own Aphasia Talk for Community Awareness of Aphasia
Build Your own Aphasia Talk Increasing Community Awareness of Aphasia - PowerPoint template for presentations
ASK Therapist & Secondary Prevention Manuals
- Before we Begin
- Setting Your Goals
- Choose Your Topics
- Goal Development Handout
- Finding the Positive
- Staying Connected
- Your Story
- Living the Learning
- Not Just Words
- Summing Up
- Before We Begin
- Setting Your Goals
- Choose Your Topics
- Stroke - What is it?
- Medications to Prevent Stroke
- Lifestyle Changes for Stroke Prevention
- Stroke Prevention Planning
- Stroke - What are the Risk Factors?
- Summing Up
- Medicine List
Intervention programs
ASK intervention program
Secondary Stroke Intervention program
Training manuals
ASK therapist manual
Secondary Stroke Prevention therapist manual
Accessible goal setting for rehabilitation professionals
Access G-AP (v2021)
Resources for Rehabilitation staff (speech pathologists, physiotherapists, occupational therapists, clinical or neuropsychologists, rehabilitation assistants, nurses, and dieticians who set goals with people with aphasia often lack confidence and receive inadequate training and support to set goals with people with aphasia. These resources can be used to frame the discussion and record the goals.
This co-developed accessible set of resources (manual, log book, and single page action plan for the person with aphasia) helps rehabilitation professionals set goals with people with aphasia. A full description of how it was developed is here
Authors: Eleanor Brown, Lesley Scobbie, Linda Worrall, Ruth McMeniman, Marian Brady.
Title: Access G-AP.
Date developed: 2021
Rehabilitation staff (speech pathologists, physiotherapists, occupational therapists, clinical or neuropsychologists, rehabilitation assistants, nurses, and dieticians who set goals with people with aphasia often lack confidence and receive inadequate training and support to set goals with people with aphasia. These resources can be used to frame the discussion and record the goals.
Tweetchat Transcripts - @aphasiacre
#AphasiaCREchat
Tweetchats are hosted by our Post Doctoral team at Aphasia CRE, if you are on twitter, use the hashtag #AphasiaCREchat to follow along or contribute to discussions. As there is a lot of discussion about resources, if you wish to access resources from the discussions, please search the transcripts of the chats below.
Podcasts
- Kathryn Pettigrove. Making Aphasia Groups Work Podcast. Aphasia Access Podcast Episode #86
- Understand the range of roles speech-language pathologists can play within community aphasia groups.
- Learn about the skills required to successfully facilitate aphasia groups.
- Identify different models for community aphasia group facilitation.
- Aoife Reardon. Collaboration with Epilepsy Queensland produced video about our research as part of their education and engagement.
Epilepsy Queensland was invited to participate in a research study looking into Presurgical Language Mapping for people with epilepsy. The study aims to investigate how MRI can be best used to assess language function in people with epilepsy when planning for surgery in order to improve treatment outcomes and lead to clearer information on the risks and benefits of surgery. - Jas Sekhon. Counselling education to enable SLPs to support psychological wellbeing in people with post-stroke aphasia. Podcast. Aphasia Access Podcast Episode #95
- Learn about the stepped model for psychological care.
- Understand how speech-language pathologists can support psychological well-being for people with post-stroke aphasia.
- Identify the role of speech-language pathologists within an interdisciplinary team providing psychological care for people with post-stroke aphasia.
- Jas Sekhon. Enabling Counselling Practice in Aphasia Rehabilitation Podcast. Speech Pathology Aust. Podcast S04 E39
- Jasvinder explores her current research into counselling training for speech pathologist to support the psychological wellbeing of people with post-stroke aphasia.
- Dana Wong. Neuropsychological Rehabilitation After Acquired Brain Injury. Navigating Neuropsychology Podcast
- This episode is a conversation about neuropsychological interventions for adult patients with acquired brain injuries such as TBI, stroke, or hypoxia. We define and differentiate different terms for neuropsychological interventions, we list and describe specific cognitive interventions, we discuss the importance of emotional symptoms following brain injuries, and we explain characteristics of intervention effectiveness.
- Bonnie Cheng. Podcast on ABC Radio National Ockham’s Razor Podcast presentation and episode at ABC radio. Listen here
- Brooke Ryan. Podcast on Episode #75: Family Impacts on Children When a Parent has Aphasia: A Conversation with Brooke Ryan. Listen Here
- Caroline Baker. Podcast on Optimising mental health and wellbeing after aphasia. at Speech Pathology Australia podcast series. Listen Here
- David Copland. Podcast on Neuroplasticity and Aphasia Recovery. Little Girl Dreams (Spotify), by Chelsea Reid, a person with aphasia who completed our TeleCHAT program. Listen Here
- Aphasia Access - Dr Robyn O'Halloran - Broadening the role of the SLP in acute care assessment
- learn the importance of supporting your patients participate in their health care while they are in the hospital and how that might impact their overall health outcomes.
- be challenged to imagine how your role as an SLP in acute care can broaden by addressing the barriers to communication in the hospital environment.
- hear about a new tool, the Inpatient Functional Communication Interview (IFCI) for assessment in acute care.
- listen to questions posed from SLPs working in acute care about IFCI -
Dr. Katie Strong, Assistant Professor in the Department of Communication Sciences and Disorders at Central Michigan University talks with Robyn O’Halloran, a Senior Lecturer in the Discipline of Speech Pathology at La Trobe University. Robyn is the lead author of the Inpatient Functional Communication Interview: Screening, Assessment and Intervention (IFCI:SAI), published by Plural in November 2019. (Nov 2019)
In this episode:
- Aphasia Access - Mental Health Concerns in People with Aphasia In Conversation with Prof Ian Kneebone - Ian Kneebone is head of discipline within the discipline of Clinical Psychology in the Graduate School of Health at the University of Technology – Sydney. In this episode, Jerry Hoepner speaks with Ian about our roles in addressing mental health concerns among individuals with aphasia.
- Enable Me - Hidden Disability We speak to stroke survivor and StrokeSafe Ambassador Toni Arfaras, psychologist and researcher Professor Ian Kneebone, and social worker Siobhan McGinniss from StrokeLine.
Many of the challenges that people face after stroke, including fatigue, memory loss, even speech difficulties, aren’t visible to those around them. In this podcast, we talk about the impact of invisible and hidden disabilities, how to make others understand and some things you can do to live well while dealing with them.
We welcome you to listen to podcasts about Aphasia Research from our Aphasia CRE Team.
Professor Miranda Rose, Director of the Aphasia CRE talks about evidence based aphasia therapy across the continuum of care. (Nov 2019)
Videos
- Professor Miranda Rose: talks about why she is passionate about studying Aphasia - Interview for La Trobe Research Connect.
- Mental health and well-being for people with aphasia: Information with Dr Caroline Baker. Produced for the Aphasia CRE healthcare repository in response to COVID-19. Video: 7.26 minutes long: narrated PowerPoint, which uses short sentences, slowed rate of speech and pictorial support. Provides general information about COVID-19, tips to help mental health and wellbeing, some tips for getting through COVID-19, ideas for home activities and links to support groups for people with aphasia and reliable information.
- Psychological care after aphasia Dr Caroline Baker. Video produced for an initiative by Collaboration of Aphasia Triallists and Aphasia Recovery Connection to make research evidence communicatively accessible. The video is 9.41 minutes long: narrated PowerPoint using aphasia friendly format. Provides information about research evidence to address mood problems and depression after aphasia.
Video clips below include interviews and resources from the Aphasia CRE Research Team.
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