Participate in our research

Have you ever thought about volunteering to participate in our research studies?

We're always looking for children (from birth onwards) and adults of all ages to participate in our studies.

Even though we are an autism research centre, we are not only interested in studying children and adults who have an Autism Spectrum Disorder, but also in those who have another disability or no disability.

We make our studies as interesting as possible for everyone involved. For children, taking part in our studies is like playing a game. It's fun!

Please read OTARC Privacy Statement before registering.

Caregiver for a child aged between 11 and 30 months?
Sign up directly to our ASDetect Evaluation Study here.

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Register

Join one of OTARC's research studies or join the OTARC Research Participant Registry.

How to register

You can register yourself, your child or someone else in your family for whom you have legal responsibility to participate in studies at OTARC. There are two ways of participating.

1. Register for the OTARC Research Participant Registry

By completing and submitting the registration form, you are providing consent for your details to be included in the OTARC Research Participant Registry and to be passed on to relevant researchers. Find out more about the OTARC Research Participant Registry by going to 'What to expect'.

2. Register to participate in a current study

By completing and submitting the registration form, you are providing consent for your details to be passed on to the researcher who is conducting the study. You'll find details of current studies on the registration form.

All our studies have been approved by the La Trobe University Human Ethics Committee.

Who can complete the registration form?

  • Adults aged 18 years or older.
  • Parents or primary cares of children with an Autism Spectrum Disorder and/or other disabilities.
  • Parents or primary cares of children without disabilities.
  • Legal guardians (parents or primary cares) of people aged 18 years or older with an Autism Spectrum Disorder and/or other disabilities.

What to expect?

Joining the OTARC Research Participant Registry

The OTARC Research Participant Registry is a confidential database that holds the personal, diagnostic, and contact details of potential participants. By joining, you are simply agreeing to be contacted about future studies. You are under no obligation to join, it is entirely voluntary.

After you have registered, we will call to confirm your registration and to ask you some additional questions.

If you or your child meet the requirements for a study, the researcher will send you an information letter with the details of the study. You are under no obligation to participate in that study, but if you do choose to take part, you can contact the researcher. We may also follow up with a courtesy phone call or e-mail. You are always encouraged to ask questions if there is something you do not understand.

If you wish to access or make changes to your information or be removed from the registry, contact us.

Participating in a current study

Once you have agreed to participate, we will make an appointment with you and/or send you questionnaires to complete (depending on the study). Before you start you (and sometimes your child if s/he is old enough) will be asked to sign a consent form. All our studies have been approved by the La Trobe University Human Ethics Committee.

Thank you for your interest in our centre and our work. Your participation will leave an important and enduring legacy as you provide a valuable gift - the gift of information and knowledge.

For information about how to find us, visit our Contact Us page. You can also read more about our research.

How participants benefit

Direct benefits may include:

  • finding out more about ASDs and research
  • receiving assessment results free of charge
  • providing an enjoyable activity for your child.

Indirect benefits may include:

  • contributing to knowledge about ASDs
  • helping other children with an ASD in the future
  • helping students to complete their research studies.

All families who participate in an OTARC study or are on our registry will be invited to:

  • attend OTARC Forums, where you will have the opportunity to meet the researchers personally and find out about the latest trends and research findings in Australia and abroad
  • attend OTARC's public workshops and events.

Thank you for your interest.